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KaleidoPain
NEWS: Ever Changing Colors of Chronicity, containing news for all pain and
neuro-endocrine-immune patients, healthcare providers, and caregivers.
“A
bird doesn't sing because it has an answer,
it
sings because it has a song.”
~
Maya Angelou
FEATURED BLOGs or
Website
HEALTHY HABITS
INSPIRATION
By David O. Wiebers, neurologist/neuroscientist.
The Do’s and Don’ts of Fibromyalgia Caregiving. Find out what to
do -- and not do -- to help a person suffering from fibromyalgia. [I was a
collaborator for this article. Sharecare
and Real Age are meeting the needs of the fibromyalgia community. In healing
and hope, Celeste]
FEATURING
Q&A by Celeste at Sharecare
Don’t have a Sharecare account? Just copy and paste the question in the ask a
question tool bar at
www.Sharecare.com
THE ADVOCATE
PAIN STRATEGIES
There
are 100 million Americans in pain. The Pain Alliance to Implement a National
Strategy of which I am privileged to be a part, takes on the charges set forth
in the IOM report Relieving Pain in America.
ANNOUNCEMENTS
January is thyroid awareness month. Read my article:
IN THE NEWS
Rescheduling
hydrocodone from II to III
RE: Docket
No. FDA–2012–N–1172Impact of Approved Drug Labeling on Chronic Opioid Therapy;
Public Hearing;Request for Comments AGENCY: Food and Drug Administration,
HHS...Notice by FDA on 12/19/2012 ID: FDA-2012-N-1172-0001
NEWS FOR YOU!
When
pain and disability is life limiting. The Seven Rules
The
Seven Rules:
Rule #1
- Know what programs are available.
Rule #2
- If it isn’t in your medical record, it’s not so.
Rule #3
- Provide evidence of how your symptoms obstruct your daily living, and what
alterations you have made to survive. Get your documentation into your medical
records.
Rule #4
- Hire an appeal attorney that is familiar with chronic pain and invisible
illness.
Rule #5
- Don’t assume anything. Making the
information available to your physician should be welcome and it helps you
track your successes and failures too.
Rule
#6 - Brainfog? Get a neurocognitive
exam.
Rule #7
- Don’t give up.
ROLFING
THE RESEARCH
Fibromyalgia
Syndrome (FM)
Chronic
Fatigue Immunodysfunction (ME/CFS)
Myofascial
Pain Syndrome (MPS/CMP)
Migraine
Chronic
Pelvic Pain
Co-occurring
Disorders
Therapies
WHAT OTHER’S ARE SAYING ABOUT OUR
BOOKS
The
goal of living with any chronic illness is to focus on the living and move the
illness to the periphery. This book beautifully collects the wisdom of the
author and of the ages as daily exercises to focus on life, growth, and health
despite the presence of pain. Best wishes to all who use this book to reclaim
life day by day.
-
Patricia Geraghty, RNC, MSN, FNP-BC, Sharecare
Editorial Advisory Board
A nurse recommended this to me, as I've had FM for 10 years now.
I was really helped by Dr Devin Starlynal's "Fibromyalgia Advocate"
and seeing her name associated with this book gave me more assurance there was
good information here. The authors write first person stories and more fact
focused pieces in a combination that keeps it very interesting. Like Dr.
Starlynal's books this does not promote a single theory or cure...Read More
A nurse recommended
this to me, as I've had FM for 10 years now. I was really helped by Dr Devin
Starlynal's "Fibromyalgia Advocate" and seeing her name associated
with this book gave me more assurance there was good information here. The
authors write first person stories and more fact focused pieces in a
combination that keeps it very interesting. Like Dr. Starlynal's books this
does not promote a single theory or cure but shows the range of thinking on
these disorders. I had not made the connection with CFS & CMP but it
certainly bears out in talking with others. This is a very comprehensive and up
to the minute book, wish I had it 10 years ago
SNEAK PEEK
BROKEN
BODY, WOUNDED SPIRIT: Balancing the See Saw of Chronic Pain, FALL Devotions
Day Twenty-three, I strive to keep my words assenting,so they
don’t come back to bite me.~Celeste
Topic “You said what?”..........
INTEGRATIVE THERAPIES FOR FIBROMYALGIA,
CHRONIC FATIGUE SYNDROME AND MYOFASCIAL PAIN: The Mind-Body Connection
There are many helpful tools to help you in
chapter two of Integrative Therapies…, “Communicating Your Healthcare Needs,”
including relating symptoms & health
history, identifying and explaining aggravating and alleviating factors,
in-depth explanation of possible coexisting conditions, how to communicate with
all healthcare team members, a Summary Exercise, Medication Log, Symptom
Inventory Sheet, Anatomical Diagram of Pain, and Health History Log.
BOOK REVIEW
Living in the Theater of the
Absurd (Kindle Edition)2012 review By
Celeste Cooper
Susan McIntyre gives a well
written and empowering account of her personal experiences with pain and
fibromyalgia, including many faith-full tips for coping. She writes of the
vortex and within minutes you are pulled in with her. She speaks to each of us
in an amazing and uplifting way. I chuckled in many spots as I thought she was
writing a book about me! Honestly, I am not certain if it is aging with fibro
or that we share some inner connection. Spell binding, and I mean that
literally.
Do you have a special book that
has helped you? Pay it forward by
writing a review on Amazon, and send it to me so I can post it in the
newsletter. You can contact me through
my website, http://TheseThree.com
How can I live an enlightened, aware life?
Paying it forward, in pain, for pain, Celeste, RN, author, pain
patient/activist, educator, and fibromyalgia health expert
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*This virtual newsletter is for informational purpose
only and is not meant as medical advice.
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