Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Saturday, May 29, 2021

Accepting Our Limits While Exploring Our Passion

 

Courtesy Celeste's Photography

ACCEPTING OUR LIMITS

As people who live with chronic pain and illness, we know the importance of identifying our limitations and learning to work within our boundaries. These coping impositions and repositions mostly affect our physical capabilities and our abilities to perform certain tasks.  We talk about Measuring Limits” in our book Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-body Connection. (Cooper, C and Miller, J, 2010


Regardless of courage or decisiveness, your first task is to accurately assess your ability today. You need an objective measure for determining if this is a “terrific” or “semi-terrific” day... Every day you should spend all your available energy pennies, but not one more. One extra penny of effort today will cost a dollar tomorrow. Make daily deposits in your well-being bank... At the same time, you need to do a balancing act with your unconscious process of self-accommodation and deceit, the permission we give ourselves to loaf, stall, or nonperform. This tendency to give up prematurely, surrender to dread, to drop our own ball at the first sign of difficulty is universal. That’s right, universal. Everyone knows the decision to let the Frisbee pass without diving to try to catch it... The key point is that the one judging is also guilty

at some time.

 

Who we are is more than the body or the personality.

Ram Dass

 

It is equally important to explore what we can do. In Broken Body, Wounded Spirit: Balancing theSee-Saw of Chronic Pain Spring Devotions,  we call this Optivity."

 

Optivity (our word for envisioning positive thought, word, and deed) empowers us to balance the four-seated teeter-totter we talk about throughout this series. Each seat, which makes up our teeter-totter, represents physical, emotional, mental, and spiritual elements of who we are as a total package, and it is based on - and inspired by - the wisdom of the Native American Medicine Wheel. Each seat should be equally off the ground with the same weight and attention.

 

EXPLORING OUR PASSION


There are many ways to become full of life in thinking. We can be present in our compassion for others, be active in mindfulness, and look at things from a different perspective. These things help us broaden the boundaries of not too much, yet enough. It allows us, gives us, permission to explore our hidden talents. For instance, I learned that writing poetry allows me to immerse myself in learning new words and new ways to express something I find interesting. It gives me a different perspective that takes me to a place where I can put my pain or current health issue in the backseat.  It was really fun and rewarding to write this poem.

 

The Promise of Like ©
 
I like camping, picnics, mountains with streams,
Invading my space and into my dreams,
Loony family, self, friends, and birds,
Even failing to speak with words.
 
Fortune to learn, watching children at play,
Scenery, lakes that reflect on the day,
Cakes, spirituality, flowers, a good book,
And cactus that winks with a funny look.
 
Mixed sun, rain, fall, a cloud that churns,
Laughter, antiques, Hummel’s and urns,
Gentle music, dogs, sea horses and cats,
Wildlife inspires me, even the bats.
 
I like promise and hope, flowers I like.
I like beginnings and endings, I just like.



I wrote this poem from a random list of things I like and found a stirring of many passions I might not have thought of otherwise.  Maybe you will try it.


In healing

Think adversity?-See opportunity!

The Pained Ink Slayer



~ • ~ • ~ • ~ • ~ • ~



Additional Reading:  

Wednesday, September 2, 2020

AACIPM: Resources For People With Pain



These have been trying times for everyone, and anxious times for many of us living with conditions that cause chronic pain and illness.  Everything I write about, being with people to avoid feelings of isolation, focusing on what we can do, and finding coping mechanisms that promote mental, physical, emotional, spiritual balance has been helpful to me, and I hope our readers. 


When I wrote my last blog, I talked about how we have a leg up on this staying in isolation thing. A lot has happened since then. We know more about COVID, we have better treatments and some options, all the things people living with intractable pain hope to have. However, the virus is not gone and neither is our chronic pain.

 

Though I have cut way back on the computer and social media time in an effort to manage my own pain issues, I cannot let September roll by without expressing the importance of accessing our resources. Therefore, when I got my monthly email from my wonderful group at PAINS-KC with a link to the updated resources at AACIPM, I was excited to highlight this valuable resource for my fellow fibro and chronic pain survivors.

 

WHAT IS AACIPM?

 

"The Alliance to Advance Comprehensive Integrative Pain Management (AACIPM) is the first-of-its-kind multi-stakeholder collaborative, comprised of people living with pain, public and private insurers, government agencies, patient and caregiver advocates, researchers, purchasers of healthcare, policy experts, and the spectrum of healthcare providers involved in the delivery of comprehensive integrative pain management.” Read on…

 

RESOURCES

 

The AACIPM website offers many helpful resources and useful tools for those of us living with chronic pain, such as:

 

  • Apps to help manage pain, track pain, deal with flares, etc.
  • Books written by friends and fellow authors, Toni Bernhard, Dr. Lynn Webster, and more that I look forward to reading.
  • Videos offering summaries and visual aids for understanding pain.
  • A short summary of various websites and the support or information they offer.

 

THE ALLIANCE

 

The patient and pain care providers are the two most important stakeholders for guiding and participating in important research to learn more about chronic pain as a society.  The Alliance to Advance Comprehensive Integrative Pain Management brings the stakeholders together with a united force. You can read about the history, here.


The AACIPM offers a plethora of additional information on symposiums, advocacy, who is participating, and more from those I have had the pleasure of working with in the past. I suspect you will find something that piques your interest.

 

“Those who have learned by experience what physical pain and bodily anguish mean, belong together all the world over; they are united by a secret bond.”

- Albert Schweitzer


Additional Reading:

Pain Justice: A Resource For Chronic Pain Survivors (Posted March 1, 2020)



In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Sunday, March 1, 2020

Pain Justice: A Resource For Chronic Pain Survivors




If you are in CRISIS, reach out IMMEDIATELY:
United States:

National Suicide Prevention Lifeline : 1-800-273-8255
Suicide crisis lines are listed by country 
here.





INTRODUCTION

Sadly, since my blog in 2013 — Walk a Mile in my Shoes — not much has changed. Some might say things are far worse. It’s time for a reawakening of patient centered care that embraces the ethical preservation of our right to choose. It is a moral obligation of all parties that all stakeholders are part of every process when discussing the treatment of pain.

Justice  = the principle of moral rightness; decency.

As a registered nurse, patient, and writer, I feel we are forced to work within a system devoid of a plan for addressing the physiological, psychological, financial, and social consequences of living with persistent pain. I also believe that if we want change, we are obliged to share our unique individual circumstances and our life encounters. It’s time to put into words our desires, needs, and rights as a voice for justice.

I hope the following categories allow you easy access to the resource you need for your particular experience. (Links updated February 20, 2020.)

1. Patient Rights
2. U.S. Government
3. Pain Law
4. Pain Advocacy and Patient Resources
5. Medical Organizations
6. Pain News
7. Additional Resources


1.  PATIENT RIGHTS
 


2.  U.S. GOVERNMENT


3.  PAIN LAW



4.  PAIN ADVOCACY AND SUPPORT



5.  MEDICAL ORGANIZATIONS - Pain Medicine

*NIH = National Institutes of Health



6.  PAIN NEWS – Current news, professional journals and patient publications
*Many of the advocacy organizations offer subscriptions to their newsletters



7.  ADDITIONAL RESOURCES

“Change does not roll in on the wheels of inevitability,but comes through continuous struggle. And so we must straighten our backs and work for our freedom. A man can't ride you unless your back is bent.”- Martin Luther King, Jr.


You can also access this blog from the blog header or in notes for The Pained Ink Slayer page on Facebook, titled Pain Justice: A Resource For Chronic Pain Survivors And Their Families.

Additional Reading:





In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Friday, February 7, 2020

Happy With Hemp: Fibromyalgia And Chronic Pain


This post contains affiliate links. See my 


https://HappyFlowerCompany.com


A couple of years ago as a freelance writer, I wrote several articles about cannabis and cannabinoids for Health Central. I gleaned a great deal of information in my writing assignments. In this slideshow, I cover things like the cannabis plant: is it hemp, CBD, or marijuana? Does it matter?

It was from those assignments that I decided to try CBD for my pain. However, the lack of reliability disappointed me. I purchased many different tinctures and topical products. However, there was no certainty about my purchase. Was there really a “broad spectrum” of cannabinoids? My pocketbook was not appreciating the cost of my experiments.

So, when the folks at Happy Flower Company asked me to try hemp, I was curious enough to say yes, and I am glad I did. Finally, I would know the presence of certain cannabinoids and their concentration. I could read the lab reports, which you can find on their website. I could give it a fair analysis independent of the guessing game of other products.


MY EXPERIENCE

There is no cure for my pain generating conditions and I am not making any claims that hemp is a miracle plant; however, I can say my joint pain is better, and my fibromyalgia tenderness has greatly improved.

Additionally:

  • I can use it and still write, because there aren’t any psychoactive effects.
  • The plant has a plethora of cannabinoids and terpenes that work together to provide the best effect.
  • I know the concentration because Happy Flower Company provides the lab reports.
  • It is grown organically.
  • It’s not addictive.
  • It’s affordable.


You can learn more about hemp, here.


WHAT THE HECK IS A TERPENE?

When I first heard this term, I was clueless. Here is what I have learned.

Terpenes are chemicals found in the cannabis sativa species, which includes both hemp and marijuana plants, other plants and foods. They give certain plants, vegetables, and fruits their identifiable aroma, taste, and color. Terpenes often influence the name of cannabis species plants.

You might find this interesting, like I did. In 2015, the European Journal of Pharmacology published the study, “Evaluation of the anti-inflammatory, anti-catabolic and pro-anabolic effects of E-caryophyllene, myrcene and limonene in a cell model of osteoarthritis.” Authors, Rufino, A.T., et al. concluded in particular, myrcene has a significant anti-inflammatory effect, fights the destructive effects on the cartilage matrix and believe it has the ability to halt or slow down cartilage destruction and osteoarthritis.

A more recent study, August 2019, by Jansen, C., et al., Myrcene and terpene regulation of TRPV1, suggests formulations containing mycrene have the potential to produce an analgesic effect.


GETTING AQUAINTED WITH HEMP

Having fibromyalgia, I am super sensitive to many things. Therefore, I found the abundance of terpenes in hemp to be overly strong when smoked. I solved that issue by investing in a leaf vaporizer, problem solved and I feel vaporizing the leaf is healthier.


WHAT THE FUTURE HOLDS

My plans are to keep vaping hemp leaf twice a day, because that works best for me. I am eager to try the isolate, because I can reconstitute it into a tincture or topical with a concentration that works best for me.

AND

I have decided to be an advocate for Happy Flower Company, so I can offer you a 15% discount when you use my code:

PainedInkSlayer




*If you are on medications please discuss hemp (cannabinoids) with your doctor or pharmacist. Like medications, including those we buy over the counter, it is a biochemical.   



In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Wednesday, April 17, 2019

The Texture Of Pain Through Poetry



"Poetry comes from the highest happiness or the deepest sorrow."
~A. P. J. Abdul Kalam


When Yellow Tundra Meets the Sky© Courtesy Celeste’s Photography

Those of us who live with chronic pain and illness understand respecting our limitations. But, there are many ways to be energetic, despite having a low physical battery. We can:


·        Be mindful.
·        Be compassionate.
·        Be grateful.
·        And, we can ALL write poetry!

Poetry has become a conduit to my most intimate inner feelings. I think that’s because I have learned to face the relevance of both anguish and joy, the reality that those of us living with chronic pain and illness know. Whether writing or reading poetry, I find there is a positive role for intervention, resolution, and learning to let go, which allows me to explore the diversion of creativity. So much is waiting to be explored.

When I prepare to write, I am energized by favorite words that tempt me with their sweet nectar. I have a favorite word list in my journal, which includes famous quotes that inspire me. I find the rich texture of expression that is born from the words I choose.

I try to share at least one of my poems in April to raise awareness for poetry. The following started as an “I Am” poem.

Dear Pain, Much to Your Chagrin© by Celeste Cooper

Don’t cloud my wits—attack, bother, or nag.
You know you have nothing positive to add.
You fractured the ability to create a red flag.

Dare not threaten my spirit or make me weak,
A tender, tired body deserves not your grief,
This survivor will not stop searching relief.

Mindful of judgments you pose in my ear,
My spirit remains positive in the absence of fear.
Affirmations are the armor that protects what is dear.

So, as constant and unyielding as you try to be,
I continue to bear arms to make you retreat.
Pain, you may have my body, but you don’t have me!

_______________________________________________________________________________

...Poetry has been described as the conduit to our soul. It provides us the emotional and spiritual energy to hurtle over life’s obstacles. It heightens our senses of sight, sound, touch, and smell, and it can be delicious. It offers a feel, a texture, to all we experience and work through in our mind, because it knows no time, no era, nor limits. We can express self and circumstances through the written word…

Pick up your favorite book, a thesaurus from the dollar store, a magazine, whatever, and make a list of some of your favorite words. ...Begin your journey of inner expression—start writing ...

[Excerpt, Broken Body, Wounded Spirit: Balancing the See-Saw of Chronic Pain, SPRING DEVOTIONS https://www.amazon.com/dp/0615958664/ ]

_______________________________________________________________________________

All our books have tips for writing for self-exploration. Poetry is one of those.

Additional Reading:




In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Thursday, April 4, 2019

4 Ways To Minimize Stress Vulnerability In Fibromyalgia







April is stress awareness month and I can’t think of a better time to review how stress interferes with wellness. There is a promise of new growth that encourages us to seek ways to minimize stress by managing our reactions and making better choices.






#1 Know the effects

We have all experienced the effects of stress. In fibromyalgia it can:

·        Interfere with sleep.
·        Make our pain worse.
·        Hijack our ability to cope with pain.
·        Cause autonomic nervous system problems.
·        Make comorbid or co-existing disorders harder to manage.

… and more

So, if we ask, - Does fibromyalgia make me vulnerable to stress? - The answer is yes.

#2 Identify manifestations of stress

How stress manifests itself may vary between each of us, and each of us may experience certain symptoms according to the event surround it. But, generally stress can cause or be part of:

·        Anxiety and/or depression.
·        Irritability.
·        Changes in vital signs and body temperature. This is particularly important to when dealing with the autonomic effects of fibromyalgia.
·        Increased pain.
·        Muscle tension, spasm, or dysfunction.
·        Headache.
·        Fatigue.
·        Gastrointestinal problems, like GERD or IBS.
·        Teeth grinding.
·        Disordered sleep.
·        Forgetfulness.
·        Immune system problems, like poor healing.
·        Tremors.
·        Changes in speech.

… and others that may be specific to you.

#3 Be aware of stress behaviors

While a certain amount of stress can be beneficial by temporarily improving our focus, chronic stress is a game changer. The behaviors we develop in response to chronic stress might include:

·        Fear and loss of control.
·        Impulsive behavior, such as stress eating, unnecessary spending, or taking risks.
·        Mood swings.
·        Avoidance of physical activity.
·        Inability to focus.
·        Difficulty setting and achieving goals.
·        Making poor decisions.
·        Interference in relationships.

Knowing our behavioral response to stress is important for us to set achievable goals and develop an effective plan for dealing with chronic stress.

#4 Focus on a personal strategy

Those of us living with fibromyalgia understand the consequences of stress. But, what are some things we can do to promote focus, minimize pain, improve sleep, and reduce the effects of stress gone awry.

·        Make a stress response plan with measurable action-oriented goals.
·        Make a real effort to get back to a hobby.
·        Find ways to explore nature. This is particularly helpful for me, because I can use my hobby of photography and writing poetry.
·        Celebrate accomplishments with family and friends.
·        Maintain a healthy diet.
·        Surround yourself with people who encourage one another.
·        Use mindfulness techniques, such as progressive muscle relaxation, meditation, creative visualization, etc.
·        Practice deep breathing.
·        Incorporate bedtime rituals to promote sleep.
·        Listen to music that has a calming effect on us.
·        Move around. When I realize I am drowning in stress, I get physical. I organize closets, clean out the refrigerator, take a walk, go through old computer files, practice Tai Chi, etc. I highly suggest this.
·        Write in our journal.
·        Get a massage or other bodywork.
·        Manage environmental triggers.
·        Find a therapist who understands chronic pain and can provide useful tools for reducing stress, like guided meditation, hypnosis, and biofeedback.

* If stress is interfering with your normal activities of daily living, it’s time to seek professional help.

Conclusion

"The greatest weapon against stress is our ability to choose
one thought over another."
~ William James, American philosopher and psychologist

We can’t always control our stress triggers, particularly when living with the unpredictability of fibromyalgia, but we can control our response. The more practiced we become, the quicker balance is restored.

Additional Reading:




In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Celeste's Website

Celeste's Website
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