Showing posts with label IC. Show all posts
Showing posts with label IC. Show all posts

Wednesday, February 27, 2013

Pelvic Pain, Bladder Disorders, Prostate Problems, Fibromyalgia, Chronic Fatigue Syndrome, and Other Female and Male Related troubles: Is it more than co-incidence?



The muscles in the pelvic girdle are what keep our organs from falling to the floor. These muscles make up the perineum, the urogenital triangle, and the anal triangle. They support the rectum, the vagina/penis, and the urethra, but they may not be the only muscles involved in your pain and dysfunction.


Causes

Pelvic pain can be from many causes such as, vulvodynia, irritable bladder or interstitial cystitis, infection, vaginal atrophy, prostate problems/pain, testicular and or pain in the penis, pain in the urethra (where your urine comes out), rectal pain, ovarian cysts, ectopic pregnancy, neuralgia, endometriosis, inflammatory bowel diseases, irritable bowel syndrome, diverticulitis, and myofascial trigger points (MTrPs), but for this blog we are looking specifically at the bladder and the perineum (area of the urethra, penis, vagina, and rectum).

Myofascial trigger points have been identified as the greatest aggravator of chronic pelvic pain, and pain is not the only symptom. Pelvic floor problems can also cause a decrease in urine flow in men and women, erectile dysfunction, urinary retention (setting the stage for infection), urgency (always feeling like you have to urinate), and constipation.

For more on myofascial trigger points and myofascial pain see “Myofascial Pain” at my website and
 my blog: Points That Need More Than Pondering: Defining Myofascial Trigger Points


Offending trigger points

Myofascial trigger points in adductor magnus (thigh), or internal oblique (abdomen), are capable of causing bladder pain and frequency, and MTrPs in the adductor magnus can cause a host of referred pain to groin and inner thigh, pelvic and pubic bones, rectum and vagina and can cause menstrual cramping (as can MTrPs in the rectus abdominus, abdomen), and trigger points in the internal oblique can also cause bladder difficulties. The muscles of the pelvis, and the multi-layered muscles of the pelvic floor can become tight, unforgiving and short due to MTrPs. Myofascial trigger points in pelvic related muscles can refer pain to the urethra, rectum, coccyx, or the crease of the buttocks.

This is speaking in generalities, but it’s important to understand that the source of your pain can be close by or well away from pelvis itself.  Treating MTrPs, whether active (painful without touching) or latent (only painful with touched) that refer pain to a specific region is just as important as treating those directly relatable. Often times, those who claim to know myofascial trigger points do not understand the complexity, this includes physicians, physical therapists, and body workers.


Chronic myofascial pain in fibromyalgia, chronic fatigue syndrome, and pelvic dysfunction

Myofascial pain syndrome often co-exists in fibromyalgia, and has been identified in some chronic fatigue syndrome (ME/CFS) patients, chronic pelvic and bowel disorders.  Myofascial trigger points are a peripheral nerve to muscle problem that lends to centralized (amplified) pain in fibromyalgia, interstitial cystitis, bladder difficulties, ME/CFS, IBS, and other overlapping conditions.  This hypersensitive state is also present in these disorders. Ignoring the obvious bloodies the diagnostic waters and most importantly delays appropriate treatments and leads to flawed research.


Therapies

It is important to identify perpetuating factors, such as, co-existing hip problems, piriformis syndrome, pudendal neuralgia, low back or sacroiliac joint dysfunction, and other overlapping conditions, bringing them under control when possible. Pay close attention to aggravating factors such as, sitting too long or on hard surfaces and chairs that can’t be adjusted to your body type, over activity, infection, poor posture, wearing pants that are too tight, consuming offending foods, etc.

There are a variety of therapies to help you, including intravaginal and pelvic floor trigger point injections, external and internal massage of the perineum and in women the vagina, biofeedback, bladder retraining, transcutaneous electrical nerve stimulation (TENS), tennis ball therapy (as discussed in our book),
acupuncture, dietary changes, over-the-counter probiotics for the bladder, stretching movements, topical analgesics (such as oragel), oral analgesics, and of course specific myofascial therapy by a trained specialist. Sometimes, all are necessary.

Seldom are doctors well informed about myofascial pain s and trigger points, so I am a firm believer that women should see a urogynecologist, that men should see a urologist and in both cases, the physician should understand the role of the myofascial in chronic pelvic pain.  The same is true for the physical therapist. Why? Those who do not understand the role of trigger points chronic pelvic pain and dysfunction may suggest traditional therapies, such as, Kegel exercise, which can worsen your symptoms, and when co-existing conditions such as piriformis syndrome, spinal disease, IBS, etc. are involved; a host of referral patterns are involved.  This is why identifying ALL your pain patterns (whether you feel a trigger point there or not) is important information for your specially trained healthcare provider.

Always discuss your symptoms with your doctor to make sure other causes are ruled out. If your pain and dysfunction is not found to be from another source, please look for those myofascial trigger points and a specialized therapist, they are treatable.

Resources for you:

IC and Irritable bladder
Blatman Pain Clinic
What Your OB/GYN Should Know About FMS and CMP by Devin J. Starlanyl
Pelvic Floor Myofascial Trigger Points: Manual Therapy for Interstitial Cystitis and the Urgency-Frequency Syndrome by Jerome Weiss
Fibro Care Center
National Association of Myofascial Trigger Point Therapists
ICA – Physical Therapy
ICA – Pelvic Floor Dysfunction
International Myopain Society
IC Network


(Signature line appended, March 2018)

In healing,
Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!

~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  

Monday, November 5, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 11-5-2012



KaleidoPain NEWS: Ever Changing Colors of Chronicity, containing news for all pain and neuro-endocrine-immune patients, healthcare providers, and caregivers. 

                                   
“The weak can never forgive. Forgiveness is the attribute of the strong.”
~Mahatma Gandhi, Unsurpassed leader of Indian nationalism in British-ruled India,
and led non-violence movements for civil rights. 1869 - 1948 


CELESTE’s BLOGSPEAK  Click here for direct links to each blog  


  • Are Your Power Lines Down: Sensitivity of Neuro-Endocrine-Immune Disorders.
  • Fighting for the right of choice. RE: PROPS.
  • KaleidoPain News: Changing Colors of Chronicity 10-17-12.
  • Human Touch: Soft Tissue and Massage Therapy in Chronic Pain Conditions.
  • Book Launch for Those Living with Chronic Pain.
  • Monthly feature for October is CRPS/RSD.
  • A Thief in the Night: Is pain robbing you of love?

FEATURED BLOG or Website



HEALTHY HABITS



INSPIRATION

Mindful awareness expands my being, encouraging me to live consciously without judgment. 


FEATURING Q&A by Celeste at Sharecare
(I hope you chose to join Sharecare and follow the links directly, however you can also go to www.sharecare.com and copy and paste the question into the ASK search box to go directly to my answers for the question.) 
*See over 280 questions answered by Celeste 


THE ADVOCATE

Be an advocate, vote in the CITGO Fueling GoodIn the running: 

National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels. NPAF translates the experience of millions of patients who have been helped by our companion, Patient Advocate Foundation, which provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.

If you are in need of direct patient services, please contact Patient Advocate Foundation at 1-800-532-5274 or on the web.


PAIN STRATEGIES 

ANNOUNCEMENTS

If you have or know someone who has CFS, please view and share this video testimony by Jeri McClure Kurre at the CFSAC Committee Meeting.


IN THE NEWS

Not on Twitter?  Follow my tweets from Celeste Speaks 


NEWS FOR YOU! 

Tuesday, October 30, 2012

Are Your Power Lines Down: Sensitivity of Neuro-Endocrine-Immune Disorders




It's not enough that we hurt interrupting sleep and other important activities, but with fibromyalgia and chronic fatigue syndrome, we know our brain is on hyper alert for different reasons, but sensitive all the same.  This puts us at risk for sensitivity to light, sound, household chemicals and odors, cold, heat, and even some medications.

Particularly troublesome are those things in our environment that we have little to no control over, which has an effect on many neuro-endocrine-immune disorders

We can’t live in a dark room all day every day.  Recommendations are that we spend about 20 minutes a day in sunlight, a great source of vitamin D, which is low in some patients.  After other causes of photophobia (light sensitivity) have been ruled out, we should protect our eyes with dark polarized sunglasses with UV protection. Even snow can be a source of irritation, so wear your sunglasses or a wide brimmed hat year round. Light sensitivity, is also common in migraine so these precautions could help prevent a migraine attack too. If ambient light or a computer screen is a factor for you, a lighter tinted glass you can wear all the time may help.

Sound sensitivity (hyperacusis) or misophonia (sensitivity to certain sounds) is another matter, and it seems not only sound and tones, but several people talking at one time can be irritating.  Tinnitus, ringing in the ear, may also play a part for you, and is sometimes caused by the presence of myofascial trigger points of myofascial pain syndrome. Total avoidance may not be possible because it is important to spend time with others to combat isolation, but we can identify and avoid certain known toxic noise situations.  Carrying ear plugs for those times when you have one nerve left and noise/sound/music is unbraiding it may be helpful.  Try to keep your environment as chaotic free as possible. There are auditory retraining therapies available so you may need a referral to a specialist.

If light and sound sensitivity causes a great deal of anxiety, discuss this with your doctor, there may be a medication or supplement that can help. Deep breathing, Qi Gong, mindfulness therapy, and meditation have been scientifically proven to lower our hyper alert response.

Multiple chemical sensitivity (MCS) is best treated by first identifying offensive environmental chemicals and medications.  Once the culprit/s is identified, the best solution is avoidance.  Unfortunately, this is not always possible.  Discuss particular aggravating factors with your doctor to explore treatment options

Talk to your doctor about your sensitivities so he or she can work with you to come up with an effective treatment plan.

In healing and hope, Celeste

All blogs, posts and answers are not meant to replace medical advice.

Want to know more about Celeste’s books?  (click on the title)







Celeste's Website

Celeste's Website
Click on the picture