Monday, June 4, 2012

KaleidoPain NEWSLETTER, Realities and Review: Ever Changing Colors of Chronicity

by Celeste Cooper, RN, author, patient, advocate
June 4, 2012

“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away.  Hold on tight, it's going to be quite a ride.”


“Neither fire not wind, birth nor death can erase our good deeds.” ~Buddha
“Writing poetry is the window to my soul.” ~ Celeste Cooper
*Tips for writing your own affirmations
*Tips on journaling


Plumping up our prunes, sinusitis in Fibro and CFID.

*Blogspeak Links for May and April now available.

Dr Kevin White, MD, PhD, Fibro Doc, taking a survey, help him collect accurate data at

Sharing the philosophies of Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN and Jeff Miller PhD is the American Academy of Pain Management. Their mission is to advance the field of pain management using an integrative model of patient-centered care by providing evidence-based education for pain practitioners, as well as credentialing and advocacy for its members.

John Hopkins on the Power of Prayer. (Discussed in Chapter Five of Integrative Therapies for Fibroyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).

Andrew Weil, MD. Allergy Best Test! (Comorbid Allergy discussed in Chapter One of Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).

FEATURING Q&A by Celeste at Sharecare
How can fibromyalgia be diagnosed if no one knows what causes it?

How do I know if a fibromyalgia support group is right for me?

Am I a good candidate for Tai Chi as therapy for fibromyalgia?

*Follow all answers by Celeste at

INSPIRING MOMENTS: Giving forward momentum a shove

Venus Williams, Seven-times grand-slam champion, still learning to live with autoimmune Sjogren's Syndrome and associated severe fatigue, battled into the second round of the French Open on Sunday with a 4-6 6-1 6-3 victory over Argentine Paula Ormaechea. [Rock on Venus!]

June is Migraine Awareness month.

Looking forward to what happens at the Chronic Fatigue Syndrome Action Committee, who reports directly to the Secretary of Health and Human Services, Katherine Sebelius under the administrative branch of the United States government.

DASH Diet Cooking voted #1 diet by US News & World Reports because it works! Deirdre Rawlings' passion for holistic medicine was ignited by her success in healing her own high cholesterol, high triglycerides, fatigue problems, sugar addiction, adrenal exhaustion, and food allergies.

Chronic Opioid Therapy: Preparing for Your Appointments, Dos and Don’ts to Help Avoid Problems and Six Opioid Safety Steps.”

Research to share with your physician. Pick the citation and search the abstract in Google or directly from

The result for botox in treatment of migraine have fallen short of expectation.

Berstad A, Undseth R, Lind R, Valeur J. Functional bowel symptoms, fibromyalgia and fatigue: A food-induced triad? Scand J Gastroenterol. 2012 May 18. [Epub ahead of print] [This could be correlated with LGS, as discussed in our book, is prevalent in many autoimmune disorders. I wish they would have included a C-Sucrose Breath Test in this]

Demir-Göçmen D, Altan L, Korkmaz N, Arabacı R Effect of supervised exercise program including balance exercises on the balance status and clinical signs in patients with fibromyalgia. Rheumatol Int. 2012 May 12. [Epub ahead of print] [ I am not sure that exercise can improve balance in FM since studies show that balance and proprioception are the result of a CNS involvement and HPA deregulation, or due to the presence of untreated MTPs.. I am not certain why a depression scoring (Beck Depression) would be an equivalent tool for such a study in lieu of known biological changes. CC]

*See all featured research for June at

Ehler’s Danlos Syndrome. Symptoms can mimic or coexist with FM and CFID, and the disease can be a perpetuator of MPS. Read more… Ehler’s Danlos Syndrome

SNEAK PEEK (Cooper and Miller, Healing Arts Press: Vermont, 2010 )

“It’s Not All in a Name” ©

It’s difficult to find correct terminology for each of the three disorders discussed in this book. Although that may seem trivial to some, the name of a disorder can have a tremendous impact on the way it is perceived and treated.

*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books

Meshea Crysup. Oh Celeste...kindred spirits gal! In chapter 1 you make my argument for fibroLIFE. I read each line shaking my head, "Yes, yes, yes!" Won't go on and on...just wanted to share this with you and hope it lifts you up as I know such a note would me! Blessings!

What healthy habit can I exchange for one that keeps me from moving forward in a healthy way?

The many others who share information, support our books, and promote the philosophies of this newsletter.

*Additional Help Links at

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.

Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD

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