Friday, June 1, 2012

My Website Monthly Feature is on Ehlers-Danlos Syndrome

June is “chronic pain awareness month,” so I am featuring Ehlers-Danlos Syndrome Awareness even though last month is its official awareness month, and May is a busy month, I could not let it go by. There are great number of FM and MPS patients with EDS and I did not want to skip over this most important condition.

Ehlers-Danlos Syndrome (EDS) pronounced, ey-lerz dan-los, is considered a rare disease or condition. The Ehlers-Danlos syndromes are genetically passed from parents to offspring. It is characterized by joint hypermobility, skin extensibility and tissue fragility due abnormal genes that produce atypical proteins that result in imperfection of collagen, which is the protein glue for our tissue.

There are now thought to be six types of EDS. 1) The Classical Type, 2) The Hypermobility Type , 3) The Vascular Type , 4) The Arthrochalasia, 5)The Dermatosparaxis, and 6) The Tenascin-X Deficient.

Resources and more to read at

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.

Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complies by Deirdre Rawlings, ND, PhD

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