Monday, June 18, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity, 6-18-12


“People may forget what you said, people will forget what you did, but people will never forget how you made them feel.”


“I am reminded that others define me by how I let them in.”


Thyroid, what have you done to me now?

*Celeste’s Blogspeak Links for May and April now available.


Recipes for Healthy Living from Nutri-Living.

The TOP10 things you should know about arthritis

FEATURING Q&A by Celeste at Sharecare

What are possible complications for fibromyalgia?

How is fibromyalgia different from chronic pain?

How is temperature sensitivity treated in fibromyalgia?

*Follow all answers by Celeste at


Migraine Brain and Bodies C. M. Shifflett the whole package written in very interesting style.

My review at Carol Shifflett does an amazing job of covering every single aspect of migraine. As a migrainuer for 45 years, I have read many books, but this is the first one I have read that covers ALL aspects of migraine from symptoms and triggers to all possible causes, including a myofascial component. Not only is "Migraine Brain and Body" informational, it is a book you won't want to put down. Carol writes with a flare like none other. It is difficult to make any medical book exciting to read, but she has done it. If you have migraines, this is the book for you.

INSPIRING MOMENTS: Giving forward momentum a shove

Running On Empty
By Clarissa Shepherd (printed with permission)

All of us here can understand the feeling of running on empty, no fuel left in our tank, having nothing in reserve to function on. ME/CFS and Fibromyalgia all are the definition of exhaustion. We don't get proper, deep, restful sleep which causes exhaustion as well. Then when life problems come up, we just don't have the type of reserves as a well person does, in order to cope. Stress is very much our enemy. We then, can't get caught up on our rest, and continue to spiral down, this causing a flare which can last days, weeks or months. Its like a vehicle running out of fuel. This same running on empty, effects us emotionally. It can bring us from feeling content to feeling anxious and even to tears within minutes. Most of you are using breathing techniques and taking supplements to rebuild fuel, yet many times life comes at us so hard that we still find ourselves in a flare or in tears. Cont’d in Topics at FB page Fellow Travelers,


TMJ and active myofasical trigger points. Treat those trigger points (TrPs). This short video shows the anatomy.


Living with Pain: Physician Abandonment and Suicide in Florida

Web MD Avoiding Exercise-Related Migraines. Warming up, knowing your triggers, and staying hydrated are key.


Neurally Mediated Hypotension in FM and CFID.

SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010 )

“Journal Writing: An Internal Dialogue” ©

Journaling helps us change negative energy into thoughts of encouragement, which promote the healthy coping strategies necessary to deal with the physical and emotional side effects of FM, CFID, or CMP. (Excerpt, Chapter Three)


The Train is Moving” at One Agent for Change, asynopsis of the CFSAC meeting last week.

Migraine Research Foundation. Directory of Diplomates* in Headache Medicine


Research to share with your physician. Pick the citation and search the abstract in Google or directly from

Jackowska M, Dockray S, Endrighi R, Hendrickx H, Steptoe A. J Sleep problems and heart rate variability over the working day. Sleep Res. 2012 Feb 7. doi: 10.1111/j.1365-2869.2012.00996.x. [Epub ahead of print]
[HR variability and sleep disturbance have both been noted in FM and CFID, this could put us at a higher risk of cardiovascular disease. cc]

Tanaka Y. Biomarkers of stress and fatigue. Nihon Rinsho. 2012 May;70(5):880-6. "Psychological stress is known to stimulate the autonomic nervous, endocrine, and immune systems. Since chronic stress is associated with suppression of a variety of immune parameters, some immune markers are potentially useful. " [Biomarkers for stress can apply to any disease process and is not specific to CFS. CC]

*See all featured research for June at


Dr. Linda Cheek, MD blog, alternative to pain.

You Can Do Anything from Fibro TV, Jen Reynolds.

COMMENT CORNER on Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body connection

“I'm reading your book before I go to sleep and am so so so encouraged by the wealth of information in it. Thanks again for publishing such an informative and useful book.  And also for all the practical solutions that we can apply in our daily living.. Everybody who has fibromyalgia should get their hands on a copy. I w...ant to order another copy for my family doc next to order another book for my family doc next...:-)”


What mistakes can I learn from?

1 comment:

Muscle Pain said...

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