Sunday, September 30, 2012

KaleidoPain News Sept 30, 2012

"To lose patience is to lose the battle."
 - Mahatma Gandhi

*Tips for writing your own affirmations
*Tips on journaling


Raising the roof on the article, “Fibromyalgia Patients Self-Medicating With Cannabis May Have Poor Mental Health Outcomes.”

Intimacy and Fibro: The nuts and bolts of the pelvic floor
at Sharecare

KaleidoPain News 9-11-12

Demanding body, cellular strength, LGS:  Are we what we eat?

*Who Should Be Prescribing Our Pills?
On Sharecare

*See past blog links at httpss://

Relieving Pain in America: How you can help to improve care. by nfmcpa

Occupy CFS, Will FDA Step Up?


Six ways to use your mind for healing

Tight Jean Syndrome
Wearing tight clothes can compress a sensory nerve called the lateral femoral cutaneous nerve that runs from the abdomen through the thigh. The compression can cause numbness, tingling, and a burning pain in the legs above the knees, a condition called "meralgia paresthetica," also known as "tingling thigh syndrome" and now sometimes termed "tight jean syndrome."

FEATURING Q&A by Celeste at Sharecare
*Follow all answers by Celeste at

Who should I tell about my fibromyalgia?

Can my diet affect my fibromyalgia?

How is dizziness in fibromyalgia treated?

What qualifies a psychologist to treat my fibromyalgia?

A note for everyone dealing with chronic pain.  Please know that many are working hard to realize, collaborate, and facilitate the Institute of Medicine (IOM) “Perspectives on Pain.”  The Patient Action Alliance to Implement a National Strategy (*PAINS) has established the mission, “To help Americans who struggle with pain have access to integrative pain care consistent with their goals and values."  I am happy to be affiliated with this group and make contributions as requested. See my note,
For Grace’s Women in Pain,  ***An archive of the complete 2012 Women In Pain webcast will be available October 1st!  Please join us then to re-live the magic of our 5th Annual Women In Pain Conference!***
Women in Pain.

Not on Twitter?  Follow my tweets on the bottom of the welcome page at

Major changes needed to end inadequate pain management for millions, say Stanford authors of IOM study by Krista Conger.  Phillips Pizzo, Chair-IOM, Advancing Pain Research, Care, and Education; Dean Stanford University School of Medicine.

Chronic Fatigue Syndrome Not Linked to Suspect Viruses; Study Puts to Rest Notion That XMRV or pMLV Cause the Mysterious Ailment
CII Press Conference: Multicenter Study on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.  W. Ian Lipkin, MD (Moderator)

NEWS FOR YOU from Celeste

Don’t miss the Sept/Oct edition of the National Fibromyalgia and Chronic Pain Life, a journal for all patients in pain.  Featured, “Relieving Pain in America.”  An organization dedicated to doing just that. The online journal is at no cost, just click on the magazine icon at the bottom of the page.

What is a “Pain Activist?”

How to Cope With Unsolicited Advice When You Have an Invisible Chronic Illness

*Follow other “NEWS FOR YOU”  at

September’s Research Updates with comments


How to Be Sick by Toni Bernhard
I earmarked too many pages to share all of them in this review, so I will share two that will forever be affirmations to me, finding joy in the joy of others, and implementing loving-kindness that I often give others, but seldom reserve for myself.  This book offers a personal journey and provides true enlightenment for those of us who cope with chronic illness.
--Celeste Cooper, RN, author, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection, and FM expert at


5.0 out of 5 stars Very information and helpful!, July 8, 2012
By TruthSeeker - See all my reviews
This review is from: Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection (Paperback)
Book is presented as a textbook and is easy to read with helpful explanations, definitions and exercises. Very informative on a variety of related syndromes/illnesses. My problem, Chronic Fatigue Syndrome, is seriously misunderstood and misdiagnosed. Those of us who have it need verification and support, not to be dismissed as just crazy/lazy. Will share this book with many others.

POINT TO PONDER    (Sneak Peek from our soon to be released, Broken Body, Wounded Spirit: Balancing the See Saw of Chronic Pain, a series beginning with “Fall Devotions”)

How can I balance my teeter totter?

*This virtual newsletter is for informational purpose only and is not meant as medical advice.
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