Monday, July 9, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 7-9-12


"An illness is like a journey into a far country; it sifts all one's experience and removes it to a point so remote that it appears like a vision." Sholem Asch

 I am confident I have purpose.~ Celeste

*Tips for writing your own affirmations    *Tips on journaling


Blogspeak by Celeste, Exposing the Cover Up of Myofascial Trigger Points in Fibromyalgia, Mention in CFS/ME

*Celeste’s Blogspeak Links for April and June now available.


From Frugal Living for Spoonies. Housework for Spoonies

Avoid These Foods if You Have Rheumatoid Arthritis from John Hopkins

FEATURING Q&A by Celeste at Sharecare

What if my fibromyalgia causes too much pain to exercise?

How long does it take to diagnose fibromyalgia?

*Follow all answers by Celeste here.
INSPIRING MOMENTS: Giving forward momentum a shove

What Those with Chronic Pain or Illness DON’T Want to Hear You Say
Even the well-intentioned often don’t know how to talk to the chronically ill.
by Toni Bernhard, J.D.

X Rx Blog. I am in Hawaii, treating Andrew, an 11 year old boy with severe ME from Northern Ireland who has been essentially bedridden for three years. He has been seen by the best doctors in the UK and offered no work-up or treatment. He was sent to me by an amazing group of people who have started an organization called Little Acorns to help ME children get treatment Read on….

Hope in determination


PANDORA celebrating ten years, join us as we applaud their dedicated service to helping all people with neuroendocrineimmune disorders.
Look for PANDORA and Classy Awards

Tweet sharing now available at

If you like what you see at my website offering featured conditions, research updates, blog links, news for you on different conditions, important articles including how to write an affirmation, about FM, CFS/ME, and MPS, helpful links, about the books, and about the authors, you can now tweet it to your friends. I hope you will check it out!


ME/CFS Orgs Push Secretary of Health Sibelius For Strategy Meeting. by Cort on July 2, 2012. [Standing together for the greater good. Don’t miss this most important article from Phoenix Rising.

Joint Request from the ME/CFS Community for Action

Confessions of a RX Pharmaceutical Drug Pusher on You Tube

The Wall Street Journal in the Lab. How old viruses may haunt us by AMY DOCKSER MARCUS

4 genes linked to migraines found


Avoiding Lockdown


Chung JH, Kim SA, Choi BY, Lee HS, Lee SW, Kim YT, Lee TY, Moon HS. The association between overactive bladder and fibromyalgia syndrome: A community survey. Neurourol Urodyn. 2012 Jun 5. doi: 10.1002/nau.22277. [Epub ahead of print][The presence of myofascial trigger points in the pelvic floor, including those surrounding the urethra play a role in symptoms of urgency, AND interstitial cystitis. Cc]

Jarrell J, Giambarardino MA, Robert M et al. 2011. Bedside testing for chronic pelvic pain: discriminating visceral from somatic pain. Pain Res Treat 2011:692102. “Tests of cutaneous allodynia, myofascial trigger points, and reduced pain thresholds are easily applied and well tolerated. The tests for cutaneous allodynia appear to have the greatest likelihood of identifying a visceral source of pain compared to somatic sources of pain.”
[Well of course, CPP has been correleated with myofascial pain and trigger points, a very biological condition, Cc].

*See all featured research for July here.


Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic [Paperback] by Hillary Johnson

This book is pivotal, interesting, enlightening and timeless regarding chronic fatigue syndrome (CFS), now also known by many as CFS/myalgic encephalomyelitis or chronic fatigue immunodysfunction.

Hillary Johnson, journalist and patient spent nine years of unremitting, scrupulous research on CFS. Osler’s Web reads like a mystery novel, as she exposes the inept attempts by the CDC to respond to epidemics and their failure to recognize the existence of what we call CFS/ME today. The mystery unwinds as she exposes the unwillingness of biomedical research to respond to the dismal picture playing out before their eyes, one of the first of many missed opportunities.

Hillary’s uncovers the medical research establishment’s breakdown in recognizing CFS/ME as a serious illness. Her account, interviews of patients, advocates, medical professionals, epidemiologist and more, covers the span of a decade, 1984 to 1994. Those who should have been protecting humankind from this unknown and little understood disease ignored the facts because they were clueless as to how to respond to such a complex disease. Today nearly two decades later, a causative agent has not been found, despite the fact that millions of people have had their lives, as they knew them, ravaged by a disease that attacks the immune system, leaving them unable to exercise or participate in activities because it makes their symptoms unbearable.

Osler’s Web gives a crucial, historic account of CFS/ME and is extraordinarily well written book. Hillary Johnson’s dedication to investigative journalism is obvious as you turn each page. If you have or suspect you have CFS/ME, "Raggedy Ann disease," or "yuppie flu," this is a book you won't want to put down. Read Hillary’s overview here.

SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010, available here.
“Brain Fog—Symptoms of Blowout before a Power Failure” ©

Stress is often blamed for many things, and rightly so. Does this mean that if we control the stress in our lives, we will be rid of the cognitive difficulties some of us suffer? According to what I’ve read about our conditions, probably not. However, learning to recognize stress stimuli and work through the experience will help us control our reactions. (Excerpt, Chapter Six)

Chapter 6 Dealing with Circuit Overload 294

Brain Fog—Symptoms of Blowout before a Power Failure 295
Time Management—An Exercise in Energy Conservation 302
Crisis Management—Dealing with Major Life Events 307
Chapter Conclusion 309
Summary Exercise: Unloading the Gray Matter 309

Also See Brainfog at
*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books


Why Are So Many People Getting Thyroid Disease?  By Mary Shomon


Seventeen year old CFS/ME writes a letter to President Obama, July 2, 2012.

Doc Talk: Filling the Information Gap Between CFS Clinicians and Patients, by Lucinda Bateman MD, Founder, Fatigue Consultation Clinic


Nancy Likespizza Celeste, I love u. You're a beauty soul. Than you. Been reading more of yr book this week. Such a good reference when sick. Bless u.


Is there something I can do to improve my bedtime ritual?


Sharecare. Q&A Health Site created by Jeff Arnold (Web MD), Dr. Mehmet Oz, Harpo Studios, SONY Pictures Television, and Discovery Communications

National Fibromyalgia and Chronic Pain Association
Chronic Intractable Pain and You
Dr. John Whiteside
Dr. Mark Guariglia
Deirdre Rawlings, ND, PhD
Devin Starlanyl, author/researcher
Bill Douglas, author, T’ai Chi expert for Dr. Andrew Weil, book endorsement for Integrative Therapies
Jeff Miller, PhD, co-author


The many others who share information, support our books, and promote the philosophies of this newsletter.
*Additional Help Links 

“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away. Hold on tight, it's going to be quite a ride.”

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.

Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD

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