2018 Musings From The Pained Ink Slayer

Celeste on Amazon

I am blessed to have wonderful people who collaborate. So many give of themselves in an effort to offer support to those suffering with chronic pain, FM, ME/CFS, myofascial pain, CRPS/RSD, Lupus, Migraine, Lyme's Disease, Ankylosing Spondylitis, interstitial cystitis, arthritis and other painful conditions. It is because of the fortitude of others, I am inspired to keep on keeping on. Following is a compilation of what I have written in 2018.

PROHEALTH

Complex Regional Pain Syndrome: Similarities and Contrasts with Fibromyalgia

THE PAINED INK SLAYER

Could Biofeedback Be On Your Chronic Pain Gift List?

THE PAINED INK SLAYER  

The GERD-Fibro Connection

PROHEALTH

Five Things You Should Know About Dysautonomia If You Have Fibromyalgia 

THE PAINED INK SLAYER  

A Fall Lesson on Mindfulness

10 Fast Facts Fibromyalgia is Real (Blog Reprint of original 2016 ProHealth article)

PROHEALTH

Brain Under Siege: Centralization, Chronic Pain, and Fibromyalgia

THE PAINED INK SLAYER  

Chronic Pain: Does Sex Matter?

FMa Test - BCG Fibromyalgia Vaccine Trials Receive FDA Approval

PAINS Project Moves to Academy of Integrative Pain Management (AIPM)

PROHEALTH

Standing On The Shoulder Of Giants: Managing Chronic Pain And Invisible Illness With Words From the Wise

THE PAINED INK SLAYER  

A Day in the Rockies Poem about Rockies for mom

THE PAINED INK SLAYER  

4 Ways to Power Up Your Positivism

PROHEALTH

The Physicality Of Fibrofog, The Brain, And Pain

Diagnosing And Living With Irritable Bowel Syndrome

THE PAINED INK SLAYER  

FDA responds on behalf of chronic pain patients who require opioids to treat their pain

The FM/a® Blood Test and Participation in Fibromyalgia Vaccine Study

_______________________________________________________________________________

You can follow my ProHealth profile page where I write about fibromyalgia and its frequent partners, and Health Central has archived the articles I have written for them, here.

_______________________________________________________________________________

PROHEALTH

Fibro Playmate of the Month – The Migraine Connection

THE PAINED INK SLAYER  

Opportunity Knocks Again: Public Comments on Patient-Focused Drug Development for Chronic Pain

Migraine and Me: If you could see me now #MHAM2018 challenge

Comment Now to NIH Pain Management Best Practices or Forever Hold Our Peace

12 Months and 14 Fibro Musings

PROHEALTH  

7 Tips for Reclaiming Control over Fibromyalgia

THE PAINED INK SLAYER  

Science, Fibromyalgia, and Exercise

PROHEALTH

3Tips for Reducing Stress in Fibromyalgia

THE PAINED INK SLAYER  

9 Reasons Tai Chi Reduces Pain and Promotes Health

Balancing Pain and Illness through Poetry

PROHEALTH

Myofascial Pelvic Pain in Men and Women with Fibromyalgia

THE PAINED INK SLAYER  

Mindfulness and Chronic Pain

Never Again Will I Travel Without My Oska® PEMF Device. #sponsor discount code CCRN60

PROHEALTH

Does Rare Disease—EDS—Plague Fibromyalgia?

THE PAINED INK SLAYER  

Fibromyalgia FM/a Blood Test and EpicGenetics Landmark Clinical Research Efforts

Making the Best of AFFIRMATIONS

THE PAINED INK SLAYER  

A PATIENT's VOICE – Life in Chronic Pain with Frank Elliot

PROHEALTH

Fibromyalgia and Thyroid Resistance

THE PAINED INK SLAYER  

The Thyroid and Fibromyalgia: Is there more than a butterfly connection?

Avoiding Lockdown

HEALTH CENTRAL

How Kinesiology Can Help Manage Chronic Pain

THE PAINED INK SLAYER  

New Year’s Wish for Fellow Pain Warriors (January, 2018) 

  

As I look back at 2018, I am filled with gratitude, love, and admiration for each of you, and look ahead to the New Year with hope and promise.

THANK YOU for your comments and for sharing any and all information, not only from me, but from the many other advocates, bloggers, and writers who share this space with all of us.

In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!

http://www.CelesteCooper.com

~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

CELESTE SPEAKS - An autumn overview

The fall season is a time of harvest and preparation, and that is the metaphor for “Fall Devotions”. It is not a book of daily religious devotions; instead, it is a book for taking one day at a time, learning to live in the moment. As leaves turn brilliant colors and fall from the trees to provide a protective blanket for the harshness of winter, so does this book help our readers view life through a door open to a landscape of honor and hope.  (Excerpt from http://www.celestecooper.com/fall-devotions.html )

As we prepare for the days ahead, I thought it would be a good time to share a sampling of topics I have covered as free lance writer at Health Central and ProHealth. A few of the articles are listed below in alphabetical order according to the main topic. You can find more articles and direct links on my website.

Check out Celeste's articles for articles on topics, such as:

What is Centralized Pain: An Interview Dr. Karl Hurst-Wicker, MD

Chronic Pain and Movement Motivation
Illusive Disorder-Complex Regional Pain Syndrome
Dry Eye and Chronic Pain
The Connection Between TMJ and Chronic Pain​
How to Report Foot Pain Symptoms
Tips for Managing Fibrofog
Fibromyalgia Awareness and Aggravating Conditions​
Fast Facts: Fibromyalgia Is Real
Fibromyalgia Centralization and Peripheral Myofascial Pain
Fibromyalgia Concerns for a Healthy Mouth
A Nervous System at Odds: Dysautonomia and Fibromyalgia
Taking up the Slack: Flares, Frets and Fibro
Are There Objective Tests for Fibromyalgia?
Fibromyalgia Tender Points or Myofascial Trigger Questions
Essential Factors for Relating Fibromyalgia Symptoms
When Fibromyalgia Is More than Pain                                                    
Treatment of Foot Pain: How to Care for Our Feet
Joint Hypermobility and Chronic Pain
Downloading a Pain Tracking App
The Legs of Fibromyalgia and Myofascial Pain
Marijuana and Chronic Pain-QA-Dr David Barton
Migraine, Fibromyalgia and ME/CFS
Myofascial Pain Treatment
What is a Myofascial Trigger Point, and Their Relationship to Pain?
Why knowing the cause of pelvic pain is essential to treatment
Piriformis Syndrome or Sciatica, Is There a Difference?
Pitfalls & Pearls-Resistance Training - fibromyalgia and myofascial pain
Restless Leg Syndrome: Sleep, Fibromyalgia, and Myofascial Pain Syndrome 
6 Reasons Why Trigger Point Injections Aren’t Helping Your Fibromyalgia
What’s Causing This Chronic Rib Pain?
Sculpting Our Thoughts on Pain
The Romance of Fibromyalgia with Tai Chi
Yoga and Chronic Pain

​ and more...

Articles from Celeste at CelesteCooper.com list just updated. See what’s new at:

http://www.celestecooper.com/freelance-articles-for-you.html

Be sure to check out the archives here on the blog, too.

In healing,,Celeste

~ • ~ • ~ • ~ • ~ • ~

"Adversity is only an obstacle if we fail to see opportunity."  

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN

Author—Patient—Freelance Writer at Health Central & ProHealth —Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.  

What the heck is a syndrome?

A syndrome is a collection of symptoms that remains the same throughout a particular patient group, but the cause is unknown. These might include fibromyalgia syndrome, chronic fatigue syndrome, Cushing’s syndrome, irritable bowel syndrome, AIDS, Asperser’s syndrome, Barrett’s syndrome, carpal tunnel syndrome, leaky gut syndrome,  paradoxical orthostatic tachycardia syndrome, Sjögren’s syndrome, Ehlers-Danlos Syndrome, urethral syndrome,  restless leg syndrome, Raynaud's syndrome, CREST Syndrome (a form of Scleroderma), complex regional pain syndrome, and many more. You may not realize it, but even rheumatoid arthritis is considered a syndrome. 

Some disorders are confusingly called diseases, when they are actually syndromes.  Diseases generally have a known cause. And syndromes, even when we know something about them are still syndromes. For instance, research shows there is an excessive release of acetylcholine at the neuromuscular (nerve to muscle) junction of a myofascial trigger point, but myofascial pain syndrome is still considered a syndrome. This is because we don’t know what causes the excessive release of acetylcholine, a neurotransmitter, the chemical messenger between the body and the brain.

When invisible disorders have no biological marker, a test that says you specifically have the disorder/syndrome, and sometimes when they do, there is always the doubting Thomas.  We think these folks mission in life is to prey on our psyche.  Why is this? Pretty much the answer is simple; they don’t experience our pain, lack of restorative sleep, life altering fatigue, severe chronic headache, a bladder that is constantly on fire, constantly cold extremities, or feel like everything they touch is barb wire, just to mention a few symptoms of invisible illnesses. Syndromes are not seen as real because some people operate on the assumption that if you can’t see it, it isn't so, even some healthcare providers migraines were once attributed to a woman’s frenzied inability to cope with stress.

Newer research into genetic markers will plow under the misconceptions of those who do not share our syndrome. In the mean time, it is up to us to support those who support the research.  Orphan disorders of all sorts face the same challenges.

In healing and hope, Celeste Cooper, RN author, patient, activist

All blogs, posts and answers are not meant to replace medical advice.  www.thesethree.com

KaleidoPain NEWS 10-17-12

Have the KaleidoPain News and my blog delivered right to your Inbox by subscribing to the RSS feed.

KaleidoPain NEWS: Ever Changing Colors of Chronicity

by Celeste, RN, author, patient

Happiness is when what you think, what you say, and what you do are in harmony.

~Mahatma Gandhi

*Tips for writing your own affirmations 

*Tips on how to journal 

CELESTE’s BLOGSPEAK

Human Touch: Soft Tissue andMassage Therapy in Chronic Pain Conditions

 

Book Launch for Those Living with Chronic Pain

Monthly feature for October is CRPS/RSD

*Seepast blog links 

FEATURED BLOG or Website

TheMind and Brain | Ask Deepak!

HEALTHY HABITS

Five foods to help you sleep better from Dr. Oz

TheMold Help Diet

FEATURING Q&A by Celeste at Sharecare

Are there alternative treatmentsfor fibromyalgia?

*Follow all answers by Celeste   

THE ADVOCATE

The activist 

PAIN STRATEGIES

Soothe Joints With Heat. Arthritis Today

ANNOUNCEMENTS

Important announcement for everyone reading this newsletter!

Following my own in-out rule something new has come in so something old must go out.  This is purely in an effort to keep myself on track and manage my own personal needs as a patient. Read on

IN THE NEWS

Migraine ‘Miracle’Results in Death of Olympic Hopeful

FibroLife endorsingour new book. 

Not on Twitter?  Follow my tweets on the bottom of the welcome page at http://TheseThree.com

NEWS FOR YOU !

A new study published by the Bartonella research team at NC State University’s College of Veterinary Medicine–led by Dr. Ed Breitschwerdt–links Bartonella infection to rheumatologic symptoms in patients with historical diagnoses of Lyme disease, arthritis, chronic fatigue, and fibromyalgia. The study is reported in the May issue of the Emerging Infectious Diseases…. 

Read on 

ROLFING THE RESEARCH 

Featured research www.thesethree.com/Featured_Research.html

SUPPORTING THOSE WHO SUPPORT ME

WakeUpNow and National Fibromyalgia & Chronic Pain Association: Fundraising Partners

Listen in

COMMENT CORNER

Broken Body Wounded Spirit: Balancing the See Saw of Chronic Pain – Fall Devotions

Essential and inspiring! Puts us in touch with our unspoken and unacknowledged inner self-understanding that gets pushed aside when pain steals our attention.

--Jan Favero Chambers, President, National Fibromyalgia and Chronic Pain Association

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection (Paperback)

5.0 out of 5 stars Love this book! By Anna Leviti "A. Leviti" (MN)

This is by far one of the best books I've read on fibromyalgia...and I've read many…. I love her wisdom and sharing of her obvious expertise in unraveling how to get well and what works AND what doesn't. Good quality book and very well priced.

ABOUT THE BOOKS  

Broken Body Wounded Spirit: Balancing the See Saw of Chronic Pain.

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome,and Myofascial Pain: The Mind-Body Connection

Contributing author to FibromyalgiaInsider Secrets: 10 Top Experts, 2^nd Ed. 

BOOK REVIEW

Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness [Paperback]

Jon Kabat-Zinn is a mastermind in understanding the impact of the body-mind connection. 

Anyone with chronic illness will benefit from the practices found in this and other books written by Jon Kabat-Zinn.  As a patient, author and fibromyalgia expert, I understand and write about the importance of physical, mental, emotional, and spiritual balance.  The works herein provide a means to achieving that end.

Celeste Cooper, author, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection.  (co-author, Jeff Miller, PhD) and fibromyalgia expert at Sharecare.

POINT TO PONDER    

Should I write a  paragraph  about something that has awakened my senses?

*This virtual newsletter is for informational purpose only and is not meant as medical advice.

KaleidoPain News, 9-11-2012

“Use what talent you possess:  

the woods would be very silent if no birds sang except those that sang best.” 

~Henry Van Dyke, American author, poet, 1852 – 1933.

*Tips for writing your own affirmations www.thesethree.com/Key_to_Affirmations.html

*Tips on journaling www.thesethree.com/Journaling.html

CELESTE’s BLOGSPEAK

Who Should Be Prescribing Our Pills?

Demanding body, cellular strength, LGS:  Are we what we eat?

Notes:

Blogs also available at Sharecare www.sharecare.com/user/celeste-cooper/blogs

See past blog links at www.thesethree.com/Featured_Blog_Links.html

HEALTHY HABITS

Johns Hopkins Health Alert! Lifestyle Factors and Cognitive Decline: What's the Link?

Five Caffiene-Free Ways to Boost Your Energy via Kate Bartolotta 

FEATURING Q&A by Celeste at Sharecare

Can an old trauma lead to fibromyalgia?

Are there alternative treatments for fibromyalgia?

*Follow all answers by Celeste at  www.sharecare.com/user/celeste-cooper/answers

ANNOUNCEMENTS

Check out the announcement on the home page of www.TheseThree.com

“Everyone challenged by chronic pain - please join us wherever you are in the world on September 16th for a day sure to enlighten, inspire, educate and empower! To watch, simply view the live stream either here,  www.forgrace.org/women/in/pain/C265/  , on the 2012 Women In Pain 

Marly Silverman is retiring and she is handing off PANDORA (Patient Alliance for NEI Disorders Organization, Research and Advocacy) to capable hands. Read the news. 

IN THE NEWS

Which Endocrine Problems Cause Fatigue And How Does Salt Affect This? - Dr. Friedman (VIDEO)

From FDA Approvals > Medscape Medical News, New Option for Constipation: FDA Approves Linaclotide by Nancy A. Melville 

Pain Misdiagnosis and CRPS Spotlighted by FOX 11 LA.

TNX-102, sublingual low dose cyclobenzaprine, for Fibromyalgia

Fibromyalgia has been unrecognized by the Social Security Administration in the listing of impairments.  Times are changing, “medically determinable impairment (MDI) of fibromyalgia (FM), “  see Social Security Ruling, SSR 12-2p; Titles II and XVI: Evaluation of Fibromyalgia.

NEWS FOR YOU from Celeste

“Osteoarthritis” www.thesethree.com/Osteoarthritis.html

More “NEWS FOR YOU”  at www.TheseThree.com 

ROLFING THE RESEARCH 

This months featured research at www.thesethree.com/Featured_Research.html

BOOK REVIEWS

I just finished reading an excellent book by Anita Moorjani called "Dying to be me". It is highly recommended for us, who struggle on a daily basis to live with this FM-thingie! Her book - about her Near Death experience and the resulting healing from stage 4B Lymphoma puts it all into perspective. To say I finally made peace with my illness is an understatement.

--review by Elke Hutton

"When Movement Hurts: A Self-Help Manual for Treating Trigger Points" by Barbara Headley MS PT. It gives many of the most common trigger points. The muscle sections contain associated diagnoses, signs and symptoms, causes, management tips, and prevention hints. There is a chapter that deals with other causes of muscle pain, one on exercise, and one on repetitive stress, and one dealing with chronic postural stress. The author is an authority on trigger points and well loved by many of us in the field. Her teachers included Janet Travell and David Simons.

--Review by Devin Starlanyl, author and advocate for fibromyalgia and myofascial pain syndrome.

ABOUT OUR BOOKS  

www.thesethree.com/About_the_Books_WPCN.html

FEATURED WEBSITE OR BLOG!

The National Fibromyalgia and Chronic Pain Association.  I hope you will join me by supporting the NFMCPA however you can.  They work behind the scenes, collaborate, educate, advocate, and network within political and health organizations that are striving to make a difference in our lives.  (Disclaimer, I do not work for the NFMCPA) 

How To Get Well From ME (CFS)? 10 Areas Of Treatment To Look At by GetWellFrom ME.  [Inspiring overview, Cc] 

Fantastic presentation for some patients with fatigue, with valuable information. Which Endocrine Problems Cause Fatigue And How Does Salt Affect This? - Dr. Friedman (VIDEO)

COMMENT CORNER 

This review is for: Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection (Paperback) 5.0 out of 5 stars The holistic approaches presented are great resources for anyone dealing with these conditions!, July 8, 2012 

By Lyn, Massage Therapist 

I know how debilitating these conditions can be for my clients and how important it is for them to gain control in managing their symptoms. This thoroughly researched book provides a variety of practical solutions to managing a myriad of symptoms. The science is presented in easily understandable terms; the focus on mind, body and spirit is truly integrative. Tips provided for dealing with the challenges of securing treatment in our broken health care system are not found in other books. This is an excellent resource! 

POINT TO PONDER    (Sneak Peek from our soon to be released, Broken Body, Wounded Spirit: Balancing the See Saw of Chronic Pain, a series beginning with “Fall Devotions”)

Do I exude the pleasures I seek in others? 

Have the KaleidoPain News delivered right to your Inbox by subscribing to the RSS feed.

The KaleidoPain newsletter is for you, join in and submit one of your inspiring moments or book review's. Make a contribution and share with others. To submit contributions put "inspiring moment" or "book review" in the subject line and email to Celeste@TheseThree.com

*This virtual newsletter is for informational purpose only and is not meant as medical advice.