Showing posts with label muscle pain. Show all posts
Showing posts with label muscle pain. Show all posts

Saturday, February 15, 2020

The Ins And Outs Of Chronic Myofascial Pain



Understanding chronic myofascial pain relies on our understanding of the illusive myofascial trigger point (TrP).










WHAT IS A TRIGGER POINT?


Trigger points (TrPs) are those knotted up pieces of muscle fiber that feel like a frozen pea in a taut band of average sized muscle. Anyone can usually feel a TrP unless it/they: 
  • are behind bone,
  • are in muscles that are under other muscle,
  • the muscle is too tight to locate the TrP.

If the band of muscle affected is too tight, it may be difficult to isolate the TrP causing pain. A specially trained physician or therapist may only be able to identify the TrP/s by the dysfunction and radiation of symptoms they create. A specific pattern is associated with the location of each specific TrP.


THE GREAT IMITATOR

Myofascial trigger points are the root cause of chronic myofascial pain, also called myofascial pain syndrome or MPS. The cranky knots can cause symptoms that mimic many things. They are not only responsible for pain, they can also cause muscle and joint dysfunction, and they do not have to be big to be mighty. They can cause numbness and tingling, burning and other nerve symptoms when a TrP is entrapping a nerve. These symptoms can be local or radiate in a specific pattern that remains consistent among all patients. Circulation and temperature changes can occur if TrPs are located next to a blood vessel and swelling can develop if the TrP is located next to a blood or lymph vessel.

Trigger points can develop in anybody who experiences muscle strain or injury. Generally, these isolated events can be successfully treated with lasting results. However, that is not the case in myofascial pain syndrome. In MPS trigger points resist treatment, develop in other parts of the body, and persist for a prolonged period.  

You can read more about trigger points, how they are classified and additional resources in “What Is a Trigger Point?”, which is also provided in the header tab of this blog.


WHAT IS CHRONIC MYOFASCIAL PAIN?

“Chronic myofascial pain is a disease that affects the chemicals that cross between nerve endings and muscles. It is literally, a disease at the neuromuscular junction—nerve to muscle... [it] is a chronic disorder in which myofascial trigger points (TrPs) cause sensory, motor, and autonomic symptoms. This condition may develop in muscles that are overstressed, overused, or injured. Different from isolated incidental occurrences of trigger points that can happen to normal individuals, CMP develops when TrPs are apparent in several quadrants of the body and have become chronic. The trigger points may be active, latent, or secondary.”

Excerpt from Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN and Jeffrey Miller PhD

Mayo Clinic (accessed February, 2020)  suggests sleep problems and development of fibromyalgia are complications of untreated myofascial pain syndrome. 



Myofascial pain syndrome coexists with many painful conditions. These include ─ but are not limited to ─ fibromyalgia and chronic fatigue/myalgic encephalomyelitis, migraine, spinal degeneration, teeth grinding, restless leg syndrome, TMJ, interstitial cystitis, irritable bladder, arthritic joints, congenital musculoskeletal malformation, repetitive motion, a static position, and more. Chronic myofascial pain can develop from the effect of diseases, such as polio, and can result from injury or post surgical scaring, too.

Hands on myotherapies, ultrasound guided trigger point injections, self-treatment of TrPs, controlling perpetuating factors are things we can do. It is helpful to know I have some control over the beast that can create so much agony.


Additional Reading:


In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Wednesday, August 20, 2014

Exercise and Fibro by Celeste Cooper





Because we are all unique individuals with varying comorbid or co-existing conditions, you will want to experiment with different types of what I like to call “movement therapies.” For instance, a person with lung disease will not have the same abilities as someone who is able to swim and jog without an increase in their
symptoms. A fibromyalgia patient who also has myofascial pain syndrome will want to make sure their myofascial trigger points are being successfully treated before exercising a shortened and weakened muscle. 


Exercise that keeps your muscles from wasting and keeps them from becoming stiff is the one that will help you most. Try not to become so afraid of pain that you stop moving all together, because research tells us a static or sedentary lifestyle is not good for the FM patient, and non movement can contribute to pain not to mention add other health complications.  If you have other physical limitations, try rocking in a rocking chair. If you have difficulty with balance or you have severe joint disease, you may want to try Yoga that incorporates the use of bolsters. T’ai Chi is also a good movement therapy because it requires focus and slow movement. If you choose to swim, do so in a warm water pool to avoid putting your muscles under any undue stress. Aerobic exercise is important too unless you fall into a subgroup of fibromyalgia patients that has heart rate and blood pressure drops, in which case the autonomic nervous system isn’t working quite right and aerobic exercise could be harmful. In other words, let your body be your guide.
"Keep a “Movement Report Card”


As with all things fibro, our bodies don’t respond normally, so soreness may not occur until several days later. A mild increase in muscle tenderness will occur in anyone so don’t let this stop you. However, if you find the tenderness is extraordinary, back off, change your movements, or rest for a few days before beginning again. Check your records to see if there is anything in particular you added that might be causing more problems. This might include a new yoga position or an increase in your time walking. Always be respectful of any other conditions you have in addition to fibromyalgia, and unless your doctor tells you otherwise, drink plenty of water.


Hobbies that require physical movement, such as gardening or chasing butterflies around with a camera are good movement therapies too. Use caution, and control movements so you don’t put undue stress on the same muscle groups, your spine, or your joints. Hobbies that require you to move and get outside not only helps physically, it helps us spiritually too. 


“Musical ideas sprang to my mind like a flight of butterflies, 
and all I had to do was to stretch out my hand to catch them.”
~Charles Gounod


Don’t forget to stretch. You don’t have to go overboard, be gentle with yourself. You might try incorporating a stretch while in the shower and then use your towel as an exercise tool while drying off. Put frequently used items at a level where it will provide a mild stretch to reach them. When up an about in the house, try bending over and touching your toes several times a day. Speaking from experience, come back up slowly so you don’t topple over. When you are not in a flare, try parking further away when you are on an outing. Try walking backwards from time to time, supposedly, it burns more calories and exercises the mind. Unrealized exercise works the same as a movement routine.


Always start low and go slow.


Use as much of your battery as possible without completely draining it.  If you expend all your energy in one day, it can set you back several. Whatever you choose, do it wisely and document your symptoms and tolerance. Always start low and go slow. Your best choice is a type of movement that you like to do.




You can read more about many different types of exercise, therapies, and precautions in 








~ • ~ • ~ • ~ • ~ • ~

All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.  

Celeste Cooper is a retired RN, educator, fibromyalgia patient, and author of books related to chronic pain and illness. You can read more about Celeste and her work on her Amazon Author Profile, here , or look to the right of this blog for direct links to her work.


Saturday, November 16, 2013

Reviews, availability, and information on Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection


Review from Goodreads, here. Tami Says:


Based upon my own personal experiences, I know that getting that Fibromyalgia and/or Chronic Fatigue Syndrome diagnosis is difficult. Saying that you hurt all over for no particular reason, that you just can’t seem to get out of bed each morning, that you could sleep for days and still be tired, or that you feel like you are thinking through several layers of cotton just tends to confuse most doctors. Even though there is nothing new about these conditions and there are a growing number of individuals suffering from them, few doctors know much about Fibromyalgia, Chronic Fatigue Syndrome, or Myofascial Pain. Diagnosis, even if your doctor believes you, can take months or even years. Then, once diagnosed, there is no set treatment options leaving us with the primary responsibility of finding options that ease our suffering. 

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain is the book that I wish I could have been given when I started this journey. I highly recommend it to anyone who thinks they might have Fibromyalgia, Chronic Fatigue Syndrome, or Myofascial Pain. This multifunctional book will educate you while reminding you that you are not alone. 

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain begins by explaining the similarities and differences between the three conditions. Many doctors and most of the literature tend to lump these together because the symptoms are very similar. Nonetheless, the root cause may not necessarily be the same which definitely suggests different treatment strategies. 

Next, the book tells us how to talk to our doctor. How to explain our symptoms: their location, the intensity and the duration, knowing our rights and when to find another doctor. This is important as after repeated testing and specialist visits, we all start to wonder if the pain is in our head. However, it is at this point that we need to stand up for ourselves and find appropriate healthcare specialists.

The final sections are for after the diagnosis. Things like finding support, educating yourself, and figuring out what treatment options might be useful to you. There are also some invaluable tips on living, getting through your day, reworking relationships, and understanding the emotional aspects of these conditions.



More about the book can be found here 

Available at:

  • Inner Traditions, Bear and Company, (Publisher, imprint Healing Arts Press) here.
  • Amazon.com, here
  •    Kindle, here.
  • Barnes and Noble, here.
  •    Nook Book, here
  • Booktopia, here.
  • Google Books, here.
  • Simon and Schuster, here.
  • Amazon UK, here.
  • Amazon Canada, here.
  • Amazon India (free shipping), here.
  • Australian Amazon Associate (note: you will need to type in the book title), here.
  • Alibris Books, here.
  • ebay, here
  • Abe Books, here.
  • Kobo ebooks, here.


For many diseases in our world, we are finally learning the treatments using only allopathic or only homeopathic remedies are seldom the best approach in and of themselves. Much of the confusion has come from the polarized arguments of both sides attempting to defend their points of view, but like most truths the answers are often found in the middle ground, hence “integrative medicine.” I found this book, at 448 pages, to be very comprehensive and I highly recommend it for anyone searching for a balanced approach for the treatment of these diseases.

~Dhara Lemos, Lotus Guide

~ • ~ • ~ • ~ • ~ • ~


Celeste Cooper is a retired RN, educator, fibromyalgia patient, and lead author of the Broken Body Wounded Spirit: Balancing the See Saw of Chronic Pain devotional series (coauthor, Jeff Miller PhD), and Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection (coauthor, Jeff Miller PhD) She is a fibromyalgia expert for Dr. Oz, et al., at Sharecare.com, here, and she advocates for all chronic pain patients as a participant in the Pain Action Alliance to Implement a National Strategy, here. You can read more educational information and about her books on her website, http://TheseThree.com

Monday, September 17, 2012

Intimacy and Fibro: The nuts and bolts of the pelvic floor


A hug a day keeps the psychiatrist away, right?

There are different forms of intimacy, and as human beings we all need and crave affection.  However, for the fibromyalgia patient sexual intimacy may be altered, particularly if you have pelvic floor dysfunction, impotence, endometriosis, vulvodynia, irritable bladder or interstitial cystitis known to co-occur more frequently in FM.

Be sure to discuss any problems with your doctor.  If you have a uro-gynecologist, a gynecologist that specializes in female urology, all the better.  They can help you get treatments that will improve pelvic floor pain and enhance your feelings for intimacy.  And if you are a man with fibro, discuss your problems with intimacy with a urologist.

Myofascial trigger points, part of myofascial pain syndrome, are great peripheral pain generators to FM, can cause a great deal of pelvic pain too.  In men it can cause impotence as well as pain, and for both men and women they can cause urgency and urinary retention and the pain can also include the rectum and bowel. 

Here is a great handout from UCSF/SFSU GRADUATE PROGRAM IN
PHYSICAL THERAPY on understanding trigger points and the pelvic floor.  Please note trigger points from other locations can cause referred pain, numbness and dysfunction. http://ptrehab.medschool.ucsf.edu/conted/spring_symposium2010/Goodrich.pdf

Make sure your vaginal area is moist because dry membranes, also prevalent in FM, can cause irritation and increase the risk of infection. 

If the pain is too severe, explore other ways of being intimate with your partner.


(Signature line appended, March 2018)

In healing,
Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!


~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.


All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  

Tuesday, September 11, 2012

KaleidoPain News, 9-11-2012



“Use what talent you possess:  
the woods would be very silent if no birds sang except those that sang best.” 
~Henry Van Dyke, American author, poet, 1852 – 1933.


*Tips for writing your own affirmations www.thesethree.com/Key_to_Affirmations.html

CELESTE’s BLOGSPEAK




Notes:
Blogs also available at Sharecare www.sharecare.com/user/celeste-cooper/blogs


HEALTHY HABITS




FEATURING Q&A by Celeste at Sharecare



*Follow all answers by Celeste at  www.sharecare.com/user/celeste-cooper/answers

ANNOUNCEMENTS

Check out the announcement on the home page of www.TheseThree.com

“Everyone challenged by chronic pain - please join us wherever you are in the world on September 16th for a day sure to enlighten, inspire, educate and empower! To watch, simply view the live stream either here,  www.forgrace.org/women/in/pain/C265/  , on the 2012 Women In Pain 

Marly Silverman is retiring and she is handing off PANDORA (Patient Alliance for NEI Disorders Organization, Research and Advocacy) to capable hands. Read the news. 


IN THE NEWS


From FDA Approvals > Medscape Medical News, New Option for Constipation: FDA Approves Linaclotide by Nancy A. Melville 



Fibromyalgia has been unrecognized by the Social Security Administration in the listing of impairments.  Times are changing, “medically determinable impairment (MDI) of fibromyalgia (FM), “  see Social Security Ruling, SSR 12-2p; Titles II and XVI: Evaluation of Fibromyalgia.


NEWS FOR YOU from Celeste


More “NEWS FOR YOU”  at www.TheseThree.com 


ROLFING THE RESEARCH 

This months featured research at www.thesethree.com/Featured_Research.html


BOOK REVIEWS

I just finished reading an excellent book by Anita Moorjani called "Dying to be me". It is highly recommended for us, who struggle on a daily basis to live with this FM-thingie! Her book - about her Near Death experience and the resulting healing from stage 4B Lymphoma puts it all into perspective. To say I finally made peace with my illness is an understatement.
--review by Elke Hutton

"When Movement Hurts: A Self-Help Manual for Treating Trigger Points" by Barbara Headley MS PT. It gives many of the most common trigger points. The muscle sections contain associated diagnoses, signs and symptoms, causes, management tips, and prevention hints. There is a chapter that deals with other causes of muscle pain, one on exercise, and one on repetitive stress, and one dealing with chronic postural stress. The author is an authority on trigger points and well loved by many of us in the field. Her teachers included Janet Travell and David Simons.
--Review by Devin Starlanyl, author and advocate for fibromyalgia and myofascial pain syndrome.


ABOUT OUR BOOKS  


FEATURED WEBSITE OR BLOG!

The National Fibromyalgia and Chronic Pain Association.  I hope you will join me by supporting the NFMCPA however you can.  They work behind the scenes, collaborate, educate, advocate, and network within political and health organizations that are striving to make a difference in our lives.  (Disclaimer, I do not work for the NFMCPA) 

How To Get Well From ME (CFS)? 10 Areas Of Treatment To Look At by GetWellFrom ME.  [Inspiring overview, Cc] 

Fantastic presentation for some patients with fatigue, with valuable information. Which Endocrine Problems Cause Fatigue And How Does Salt Affect This? - Dr. Friedman (VIDEO)


COMMENT CORNER 

This review is for: Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection (Paperback) 5.0 out of 5 stars The holistic approaches presented are great resources for anyone dealing with these conditions!, July 8, 2012 
By Lyn, Massage Therapist 

I know how debilitating these conditions can be for my clients and how important it is for them to gain control in managing their symptoms. This thoroughly researched book provides a variety of practical solutions to managing a myriad of symptoms. The science is presented in easily understandable terms; the focus on mind, body and spirit is truly integrative. Tips provided for dealing with the challenges of securing treatment in our broken health care system are not found in other books. This is an excellent resource! 


POINT TO PONDER    (Sneak Peek from our soon to be released, Broken Body, Wounded Spirit: Balancing the See Saw of Chronic Pain, a series beginning with “Fall Devotions”)

Do I exude the pleasures I seek in others? 


Have the KaleidoPain News delivered right to your Inbox by subscribing to the RSS feed.

The KaleidoPain newsletter is for you, join in and submit one of your inspiring moments or book review's. Make a contribution and share with others. To submit contributions put "inspiring moment" or "book review" in the subject line and email to Celeste@TheseThree.com

*This virtual newsletter is for informational purpose only and is not meant as medical advice.


Saturday, August 25, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 8-25-12

Have the KaleidoPain News delivered right to your Inbox by subscribing to the RSS feed.

The KaleidoPain newsletter is for you, join in and submit one of your inspiring moments or book review's.  Make a contribution and share with others. To submit contributions put "inspiring moment" or "book review" in the subject line and email to Celeste@TheseThree.com

BALANCING THE TEETER TOTTER OF CHRONIC PAIN:

A Dose of Nature, My Marriage and Pain ©

Pain interferes with my marriage, it’s so.
I know that it will, if I don’t let go.
My marriage falls prey to struggles of pain.
The life raft is nature, says the rain.

Twenty minutes a day the experts say
So I will take my mate with me today.
Harmony the example of all that live here,
The squirrels, the leaves, flowers and deer.

Any marriage needs to feel the swift breeze,
To be nourished by nature just as the trees.
If my marriage learns to crave these things,
Worries take a backseat, even my pain.

So carry on nature, keep up the good work,
We are glad to learn from your great book.
In nature I’m able to endure pain’s course,
All of God’s creatures abhor a divorce.

This is why nature is a good place to rest,
If only a short while, it brings out the best.
Be steadfast with nature, harmony abides,
If WE take a few minutes to go outside.

Celeste Cooper,  August 18, 2012

*Tips for writing poetry in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN and Jeff Miller, PhD
*Tips for writing your own affirmations http://thesethree.com/Key_to_Affirmations.html
*Tips on journaling https://thesethree.com/Journaling.html

BLOGSPEAK BY CELESTE

A comprehensive review on the proposed and modified American College of Rheumatogy diagnostics for fibromyalgia.


What the heck is a syndrome, and are the syndromes; fibromyalgia, chronic fatigue and myofascial pain different?



HEALTHY HABITS

Do vitamins really work with Dr Andrew Weil.
http://www.drweil.com/drw/u/TIP04474/Do-Vitamins-Really-Work.html

Nutritional expert Deirdre Rawlings speaks up on How to overcome America’s most overlooked disease. In healing, harmony and hope,  Celeste Cooper contributing author to her EBook series, Fibromyalgia Insider Secrets: 10 Top Experts
http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/05/21/How-to-Overcome-Americas-Most-Overlooked-Disease.aspx

Developing Healthy Habits, Southwest Wrap
http://www.youtube.com/watch?v=ZdIWlUeJcb4&feature=youtu.be

FEATURING Q and A by Celeste at Sharecare

What can I do to improve my fibromyalgia?
http://www.sharecare.com/question/what-can-do-improve-fibromyalgia

What criteria must I meet to be diagnosed with fibromyalgia?
http://www.sharecare.com/question/criteria-meet-diagnosed-with-fibromyalgia

How is my fibromyalgia affecting my thinking?
http://www.sharecare.com/topic/fibromyalgia-mental-effects

*Follow all answers by Celeste at  http://www.sharecare.com/user/celeste-cooper/answers

INSPIRING MOMENTS: Giving forward momentum a shove

Grieving Loss In Order To Heal

For most of us, only for a brief moment, you tell of your grief. We shed our tears for a while and then began our day. For me, its not only about where I am today, but about how long I've been here. Unlike some illness, when we speak of ours, it’s in terms of years not days or weeks. We all suffer at its hands, the loss of things undone, lives not lived, events missed and the days yet to come. 

Then there's the times when an event in our lives brings up painful memories, some taking us back to the time that we first got sick. We then feel as if we're right back there, in the thick of that early pain. It can be overpowering and scary, leaving us in a state of grief. We don't have to dwell on this grief, yet we must see it, feel it, and release it, each time it comes to the surface. Otherwise, it comes back the next time with reinforcements. Ignoring it doesn't cause it to go away. It only encourages it somehow.

My hope for us would be that through all of the grieving, we'll forgive ourselves for being in this place, not of our own making. In order to move forward, we must grieve our loss or we may find ourselves stuck within the walls of our illness. So grieve, cry, release and live the best life you can, for each day. Knowing, you're not alone in your brand of sorrow. We walk this path together, in order that the journey may be a bit lighter. Healing cannot begin until we let go.

Submitted by Clarissa Shepard at Fellow Travelers (Facebook)


IN THE NEWS

Chronic pain could be causing cognitive deficit.  NIH featured research by the NFMCPA.
http://www.fmcpaware.org/nih-mackey

Mysterious illness links teenage girls along S.A.'s I-10 corridor. KENS5.com News, San Antonio
http://www.kens5.com/news/ito-151467795.html

'Female' gene may be to blame for making women more prone to migraines
http://www.newkerala.com/news/newsplus/worldnews-33272.html

FEATURED ARTICLE

Augusts’ featured article is on Ankylosing Spondylitis (AS). Learn more and about its association with FM at  https://www.thesethree.com/Ankylosing_Spondylitis.html

The Dark Side of Pain: Serious Challenges We ALL Face
http://thepainjournal.wordpress.com/2012/08/23/dark-side-of-pain/#comment-90

ROLFING THE RESEARCH

July/August Research (some with comments) under Monthly Features just posted.
https://thesethree.com/Featured_Research.html

*See complete resource list from TheseThree categorized by condition and therapies 
https://thesethree.com/Resources_3379.html

BOOK REVIEW

The Trigger Point Therapy Workbook: Your Self-Treatment Guide for Pain Relief, Second Edition [Paperback]by Clair Davies(Author), Amber Davies (Author), David G. Simons (Author)

Myofascial pain syndrome is a common comorbid condition to fibromyalgia. This book has timeless information and superb diagramming of myofascial trigger points, their specific pain and symptoms patterns as defined by Drs. Travell and Simons.  Treating peripheral myofascial trigger points is paramount in improving muscle function and minimizing input and amplification of pain found in fibromyalgia. As a patient, RN, author and fibromyalgia expert at Sharecare, I found this book to be particularly helpful and well illustrated, something that isn’t always easy to find.  It is a must for your massage therapist, physical therapist or any bodyworker who wants to understand how myofascial trigger points can affect the body.
Celeste Cooper, author, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection.  (co-author, Jeff Miller, PhD) and fibromyalgia expert at Sharecare.

SNEAK PEEK (Cooper and Miller, Healing Arts Press: Vermont, 2010, available here  http://www.amazon.com/Integrative-Therapies-Fibromyalgia-Syndrome-Myofascial/dp/1594773238/ref=sr_1_1?ie=UTF8&s=books&qid=1267467759&sr=8-1

“The ADA and the EEOC” ©

Many people with chronic pain disorders, such as FM, CFID, and CMP, attempt to remain in the workforce in spite of their pain. What statistics do not show is how many of us do not utilize available resources, in part because we are unaware of what protections exist. (Excerpt, Chapter Seven)
Helpful Links https://www.thesethree.com/Helpful_Links_WXOJ.html#Legalities_and_Red_Tape

*You can review “about the book”  including the Table of Contents of Integrative Therapies…at  About the Books http://thesethree.com/About_the_Books_WPCN.html

NEWS for YOU!

Johns Hopkins Health Alerts takes a look at: ARTHRITIS: Knee Pain: An Early Warning Sign of Osteoarthritis

Osteoarthritis is the most common form of arthritis, affecting an estimated 27 million people in the United States. By age 40, approximately 90 percent of us have at least some signs of osteoarthritis continue reading.
http://www.johnshopkinshealthalerts.com/alerts/arthritis/Knee-Pain-Early-Warning-of-Osteoarthritis_6254-1.html?ET=johnshopkins:e87942:208366a:&st=email&s=W1R_120728_001

COMMENT CORNER

Christina Tina Bonafede I refer to her book [Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain] as my new health bible. I love it, it is so enlightening.

POINT TO PONDER   

Do I plan outings when I’m able?

*Additional Help Links at TheseThree.com http://thesethree.com/Helpful_Links_WXOJ.html
“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away.  Hold on tight, it's going to be quite a ride.”

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.  http://www.thesethree.com



Monday, April 23, 2012

Pain is Personal: How useful is 1-10 in rating chronic pain?

It is difficult for a healthcare practitioner, family member or friend to assess our pain, because pain is personal. Sometimes, it’s hard for me to assess my own pain overall. I am not sure it’s possible to rate overall pain from 1-10 without dissecting body parts like a lab rat. Read on… http://www.sharecare.com/user/celeste-cooper/blogs/show/pain-is-personal-how-useful-is-1-10-in-rating-chronic

Monday, March 19, 2012

Getting the Most from Yoga when

Follow my blog at Sharecare

http://www.sharecare.com/user/celeste-cooper/blogs/show/should-your-arsenal-for-fighting-chronic-pain-include-ultrasound-and

Healing, harmony and hope, Celeste

Monday, May 23, 2011

Thursday May 26th Teleconference on Myofascial Trigger Points

In honor of Fibromyalgia Awareness Month, I have been invited to speak on myofascial pain in fibromyalgia. The agenda will include myofascial trigger points, their involvement in fibromyalgia, symptom referral patterns, why it is important to understand more about these peripheral pain generators specifically in FM, what they are, the different types, perpetuating factors, treatment, and self care.

Title: Teleconference: Celeste Cooper on Myofascial Pain
Date: This Thursday, May 26, 2011
Time: 11:00am Pacific; 2:00pm Eastern; 1:00pm Central; 12:00pm Mountain
This is a Phone + Web Simulcast

To call in dial (503) 290-5016 PIN Code: 783111#

To visit live on the web: http://InstantTeleseminar.com/?eventID=19942302
Sponsor: The Oregon fibromyalgia Support Group
Moderator: Tamara Robinson Staples.

Hope to see you there.

Harmony and Hope, Celeste, author
Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome,, and Myofascial Pain (co-author, Jeff Miller, PhD)

RESOURCES for the presentation:

Ashkenazi A, Blumenfeld A, Napchan U, Narouze S, Grosberg B, Nett R, DePalma T, Rosenthal B, Tepper S, Lipton RB. Peripheral nerve blocks and trigger point injections in headache management - a systematic review and suggestions for future research. Headache. 2010 Jun;50(6):943-52. Epub 2010 May 7.

Cakit BD, Taskin S, Nacir B, Unlu I, Genc H, Erdem HR.Comorbidity of fibromyalgia and cervical myofascial pain syndrome. Clin Rheumatol. 2010 Apr;29(4):405-11.

Chen Q, Bensamoun S, Basford JR, Thompson JM, An KN.Identification and quantification of myofascial taut bands with magneticresonance elastography. Arch Phys Med Rehabil. 2007 Dec;88(12):1658-61.

Explore Plastic Surgery - Dr. Barry Eppley
The Importance Of Patient Selection in Migraine Surgery http://exploreplasticsurgery.com/category/migraine-headaches/

Fernández-de-las-Peñas C, Galán-del-Río F, Fernández-Carnero J, Pesquera J,
Arendt-Nielsen L, Svensson P. Bilateral widespread mechanical pain sensitivity in women with myofascial temporomandibular disorder: evidence of impairment in central nociceptive processing. J Pain. 2009 Nov;10(11):1170-8. Epub 2009 Jul 9.

Ge HY.Prevalence of myofascial trigger points in fibromyalgia: the overlap of two
common problems
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Ge HY, Arendt-Nielsen L. Latent myofascial trigger points. Curr Pain Headache Rep May 11 [Epub ahead of print]

Ge HY, Fernandez-de-Las-Penas C, Yue SW, Myofascial trigger points: spontaneous electrical activity and its consequences for pain induction and propagation. Chin Med. 6(1):13, 2011.

Ge HY, Nie H, Madeleine P, Danneskiold-Samsøe B, Graven-Nielsen T, Arendt-Nielsen
L. Contribution of the local and referred pain from active myofascial trigger points
in fibromyalgia syndrome
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Ge HY, Serrao M, Andersen OK, Graven-Nielsen T, Arendt-Nielsen L.Increased H-reflex response induced by intramuscular electrical stimulation of latent myofascial trigger points. Acupunct Med. 2009 Dec;27(4):150-4.

Ge HY, Wang Y, Danneskiold-Samsøe B, Graven-Nielsen T, Arendt-Nielsen L.
The predetermined sites of examination for tender points in fibromyalgia syndrome are frequently associated with myofascial trigger points. J Pain. 2010 Jul;11(7):644-51. Epub 2009 Nov 14.

Ge HY, Wang Y, Fernandez-de-Las-Penas C, Graven-Nielsen T, Danneskiold-Samsøe B, Arendt-Nielsen L. Reproduction of overall spontaneous pain pattern by manual stimulation of active myofascial trigger points in fibromyalgia patients. Arthritis Res Ther. 2011. 13(2):R48.

Ge HY, Zhang Y, Boudreau S, Yue SW, Arendt-Nielsen L. Induction of muscle cramps by nociceptive stimulation of latent myofascial trigger points. Exp Brain Res. 2008 Jun;187(4):623-9. Epub 2008 Mar 4.

Giamberardino MA, Affaitati G, Fabrizio A Costantini R. Effects of Treatment of Myofascial Trigger Points on the Pain of Fibromyalgia. Curr Pain Headache Rep. [May 5 Epub ahead of print].

Gerwin R. Treatment of Chronic Migraine Headache with nabotulinumtoxinA Curr Pain Headache Rep. 2011 May 6. [Epub ahead of print]

Hubbard JE. Myofascial trigger points. What physicians should know about these neurological imitators. Minn Med. 2010 May;93(5):42-5.

Li LT, Ge HY, Yue SW, Arendt-Nielsen L. Nociceptive and non-nociceptive hypersensitivity at latent myofascial trigger points. Clin J Pain. 2009 Feb;25(2):132-7.

Myburgh C, Lauridsen HH, Hartvigsen J. Standardized manual palpation of myofascial trigger points in relation to neck/shoulder pain; the influence of clinical experience on inter-examiner reproducibility. Man Ther. 2010 Aug 31. [Epub ahead of print]

Niddam DM, Chan RC, Lee SH, Yeh TC, Hsieh JC. Central representation of hyperalgesia from myofascial trigger point. Neuroimage. 2008 Feb 1;39(3):1299-306. Epub 2007 Oct 11.

Niddam DM. Brain manifestation and modulation of pain from myofascial trigger points. Curr Pain Headache Rep. 2009 Oct;13(5):370-5.

Partanen JV, Ojala TA, Arokoski JP. Myofascial syndrome and pain: A neurophysiological approach. Pathophysiology. 2010 Feb;17(1):19-28. Epub 2009 Jun 4.

Shah JP, Danoff JV, Desai MJ, Parikh S, Nakamura LY, Phillips TM, Gerber LH. Biochemicals associated with pain and inflammation are elevated in sites near to and remote from active myofascial trigger points. Arch Phys Med Rehabil. 2008 Jan;89(1):16-23.

Shah JP, Gilliams EA. Uncovering the biochemical milieu of myofascial trigger points using in vivo microdialysis: an application of muscle pain concepts to myofascial pain syndrome. J Bodyw Mov Ther. 2008 Oct;12(4):371-84. Epub 2008 Aug 13.

Sikdar S, Shah JP, Gilliams E, Gebreab T, Gerber LH. Assessment of myofascial trigger points (MTrPs): a new application of ultrasound imaging and vibration sonoelastography. Conf Proc IEEE Eng Med Biol Soc. 2008;2008:5585-8.

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Zhang Y, Ge HY, Yue SW, Kimura Y, Arendt-Nielsen L. Attenuated skin blood flow response to nociceptive stimulation of latent myofascial trigger points. Arch Phys Med Rehabil. 2009 Feb;90(2):325-32.

Friday, April 29, 2011

9-1-1 FM Awareness Letter on Proposed Diagnostics in Template Form for Using

The following is my letter which will be going out through the month of May to various physicians, researchers and professors. I have provided it in template form so that you may use it in anyway you desire. Feel free to use it as is as long as you state that it is written by Celeste Cooper, or change it up to make it yours.

Don’t be the person standing waiting for help to arrive assuming someone else has already called
9-1-1.

This is my 9-1-1 to you.


RE:
Diagnostic Criteria for Fibromyalgia

Dear Ladies and Gentlemen, (Personalize unless it is being sent to multiple recipients)

First Gear “The hook” – A statement that will engage the reader

You probably already know that fibromyalgia is a disorder of the central nervous system that is further sensitized by input from the peripheral nervous system. But did you know that currently the proposed diagnostic criteria for fibromyalgia does not include assessment of Hashimoto’s Thyroiditis, even though the study by Bazzichi L et al) shows Hashimoto’s patients may have a link to fibromyalgia? Did you know there is a higher incidence of restless leg syndrome in the fibromyalgia patient than the general public? Did you know that scientists believe what were once thought to be specific diagramed “tender points,” used to diagnose fibromyalgia, are now thought to be knotted up pieces of muscle fiber called trigger points? Or that these trigger points, which are easily felt by a trained examiner unless the muscle is too taut, or the trigger point is deep beneath other muscle or behind bone, can radiate pain to other parts of the body? While it is possible that more research is needed to include the presence of Hashimoto’s or restless leg syndrome as part of the diagnostics, it should be considered in assessing the FM patient, and the research on the association of myofascial trigger points (resulting from excessive release of acetylcholine across the neuro-muscular junction) as peripheral pain generators to FM is staggering. (See the citations in the copies of letters attached).

Did you know that Dr. Janet Travell is the pioneer in understanding myofascial trigger points AND the first female physician in the Whitehouse? Did you know she treated President Kennedy for his personal chronic pain issues?

Second Gear “Personalization”

Fibromyalgia is a biological disorder. We have been inappropriately labeled far too long. Many have been psychologically bruised by the medical community. Touch me. Feel the knots in my muscles, test me for thyroid autoimmune disease, and perform a sleep study on me that shows you I moved my legs 187 times in 4 hours and never reached slow wave progression sleep. See what you come up with and then try to tell me it is all in my head.

Third Gear “History” (What is your relationship with this piece. Are you outraged? Have you taken this issue up with someone else? Are you in agreement with something someone else has had to say? You are welcome to make reference to my letters stating it is the correspondence from Celeste Cooper)

I have communicated my concerns as a patient, author and advocate to Mr. Clark, Public Liaison, National Institute of Health, NIAMS division, editor of Arthritis Today, who published “The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity” (see footnote) and the liaison for the American College of Rheumatology.

Fourth Gear “State your case”

While the authors of the preliminary proposed criteria for diagnosing fibromyalgia have done a good job defining the central and autonomic effects of FM, it is not complete without the assessment of the body-wide myofascial trigger points (MTrPs) fibromyalgia patients deal with. Restless leg syndrome and its counterpart periodic limb movement, found at greater rates in FM which may be a factor in sleep quality, may also be related to the dysfunction caused by peripheral MTrPs. And it is a patient’s right to have their metabolism restored in the face of thyroid disease and not overlooked as a symptom of fibromyalgia.

We need to avail all treatments including complimentary therapies. Pain and muscle dysfunction caused by myofascial trigger points should be treated with appropriate hands on therapy by those trained in the guidelines set forth by Dr. Janet Travell later joined by Dr. David Simons (first physician in outer space).

Full Speed Ahead “Provide for follow up”

Can we, the fibromyalgia community, and most likely someone you know personally, count on you to take a stand? Without your support, we can expect another decade of unresolved pain, fatigue and dysfunction. I don’t expect that assessing and addressing these additional issues will cure fibromyalgia, however we need a scientifically based protocol that is consistent among all those treating, researching, and educating this disabling disorder.

One cannot or should not ignore the science set before us. We need to move the science in the right direction until a cause and a cure is found. We need validation so that our government and others will help support the research necessary to help fibromyalgia patients get back to work, and lead productive lives. We need to be able to count on someone. If you are unable to facilitate, would you share information here with someone who is in that position, so that we maintain forward momentum.

Sincerely,
Signature [Type or sign your name here.]

Celeste Cooper, author of
Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection (co-authored with Jeff Miller, PhD)

You may contact me at ….
For more information visit, www.TheseThree.com

Attachments: [Name any attachments that support your letter and its content.]

October 20, 2011 letter
Letter to Mr. Clark, Public Liaison, NIAMS (NIH)

Copy: [List anyone you feel would benefit from knowing you have sent out your letter]

Resources: (If you have made reference to a particular article or research be sure to list the full citation).

Bazzichi L, Rossi A, Zirafa C, Monzani F, Tognini S, Dardano A, Santini F, Tonacchera M, De Servi M, Giacomelli C, De Feo F, Doveri M, Massimetti G, Bombardieri S. “Thyroid autoimmunity may represent a predisposition for the development of fibromyalgia?” Rheumatology International, Nov 18, 2010.,

Viola-Saltzman M, et al "High prevalence of restless legs syndrome among patients with fibromyalgia: A controlled cross-sectional study" Journal of Clinical Sleep Medicine ,2010; 6: 423-427.

Wolfe F, Clauw DJ, Fitzcharles MA, Goldenberg DL, Katz RS, Mease P, Russell AS, Russell IJ, Winfield JB, Yunus MB. The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity. Arthritis Care Res (Hoboken). 2010 May;62(5):600-10.

Ge HY, Wang Y, Danneskiold-Samsøe B, Graven-Nielsen T, Arendt-Nielsen L. The predetermined sites of examination for tender points in fibromyalgia syndrome are frequently associated with myofascial trigger points. J Pain. 2010 Jul;11(7):644-51. Epub 2009 Nov 14.

Sunday, April 24, 2011

THE TREATMENT OF FIBROMYALGIA by Dr. John Whiteside with comments

Dr. John Whiteside is an Australasian College physician and Fellow of the Australian College of Nutritional and Environmental Medicine. He specializes in treatment of myofascial conditions including fibromyalgia. He had the grand opportunity to be mentored by and study under the world renowned expert and pioneer of myofascial medicine, Janet Travell, MD and lectured with David Simons, MD who later joined Dr. Travell in her research and authorship of medical textbooks regarding myofascial trigger points.

Hear what Dr. Whiteside has to say regarding myofascial trigger points in fibromyalgia, perpetuating factors like: amalgam fillings, hormonal deficiency in female and male fibromyalgia patients, hypothyroidism, diet, and supplements. You will also read about compounding pharmacies, myofascial therapies, physical therapy, and holistic treatments.

THE TREATMENT OF FIBROMYALGIA
By Dr. John Whiteside

The following information is the approach I take with my patients. I have selected the main factors I believe require attention. A full detailed account of all the factors can be found in the book by Celeste Cooper, RN and Jeff Miller, PhD, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain.

A spectrum exists running from a simple localized myofascial pain syndrome such as a hamstring injury in a young athlete, to the widespread pain and fatigue of fibromyalgia. The common denominator is the myofascial trigger point. In the first case the number of trigger points are few and the client/patient is healthy with minimal or no perpetuating factors. In the second case there are multiple trigger points and the patient is very sick.

With the athlete, all we have to do is inject the trigger points, and recovery is quick and usually permanent. With the fibromyalgia patient, we need to ask, “Why did this illness develop?” and we need to remove as many perpetuating factors as possible to allow healing.

My approach is to attend to as many perpetuating factors as I can first, then begin a series of trigger point injections. In practice this is difficult, because by the time I get to see these patients, they are usually unfit for work and have limited financial resources. Attention to perpetuating factors requires money, and the course of trigger point injections can be very long.

PERPETUATING FACTORS

DENTAL

This may well be the most important perpetuating factor in our modern society. If you have any amalgam fillings or root canal filled teeth, I urge you to read very carefully all the detail on the web site by Dr Robert Gammal. Robert is the leading alternative dentist in Australia, (now retired). Please spend time following the links and consider purchasing the DVD’s. www.robertgammal.com

This, together with the book by George Meinig, Root Canal Cover-Up, is compulsory reading. George was a Founding Member, and past president, of the Endodontic Society of the USA. After a lifetime of doing and teaching root canal therapy, he reviewed the evidence and renounced all his previous work to teach of the dangers of this practice. The evidence in this book is clear and conclusive: root canal fillings and amalgam fillings are toxic to humans.

Over 50% of the patients that come to me for assessment have root canal filled teeth, and a higher percentage have amalgam amalgam fillings. If this is representative of the general population then, clearly, there are many people walking around without obvious pathology. However in those with pathology this is the first perpetuating factor I would correct.

I watched a DVD about the Paracelsus clinic in Switzerland. This is one of the world’s finest holistic clinics. At the end of the presentation, the doctor in charge of the clinic summarized the information. He said, “the people who come to our clinic get better because of all the different things we do, but if I was able to do one thing only for each patient I would remove all their root canal filled teeth and all their amalgam fillings.”

I appreciate that this is a very difficult decision for patients to make. I explain that I can give no guarantee that their clinical condition will improve if they remove their root canal filled teeth and amalgams. I ask only that they read the evidence and then as informed consumers make up their own minds. Since I became aware of holistic dentistry 5 years ago I have seen many patients who became ill following root canal therapy and many who became well after their removal. I am a convert. I had a single root canal filling done when I was 23 years of age. I suffered chronic sinusitis from around that time until I had that tooth extracted 5 years ago. Since then I have had no episodes of sinusitis at all. My energy levels have been amazing and I have felt for the first time in my life really well.

My daughter fractured a front tooth at age 12 years and had a root canal filling. In recent years she suffered from bleeding gums. She was studying in Tasmania. She flew to Perth mid 2010 and I arranged for her to have the root canal tooth extracted and the gap bridged. The bleeding gums ceased immediately. She telephoned me 2 weeks later and told me her studies were so much easier as the constant low grade flu feeling she suffered from all her life was gone.

I have no doubt that root canal fillings and amalgams are major causes of illness in our society.

[Celeste’s side note]. I dealt with a metallic taste and loss of the ability to smell for several months. During that period, I was evaluated by two different ear nose and throat specialists to no avail. I was put on a mouth wash to help with dry mouth, and evaluated by a dentist. Eventually this problem subsided, and at the time I believed the symptom improved because I switched from generic levothyroxin. As I look back, that period was the beginning of a series of crowns to replace large amalgam fillings because of severe bruxism. After reading what Dr. Whiteside has to say, it is my opinion; one should give serious consideration to replacing amalgam. I understand the expense; many insurance policies in the US will only cover amalgam because they are CHEAP! At least consider replacing them by attrition. This week I found a dentist that does not have amalgam in his office.

*Amalgam is a low cost mixture of mercury and metal used to restore teeth.

MALE AND FEMALE BIO-IDENTICAL HORMONE REPLACEMENT THERAPY (BHRT)
It is an indictment of our medical profession that these were never used as the treatment of choice in the first place. As we learned of the properties of the different hormones (progesterone, estrogen, DHEA, testosterone, etc.) , we had the ability to provide safe oral contraception to women and to provide safe treatment of heavy painful periods, premenstrual syndrome, post natal depression, and support the ageing process to minimize the onset of degenerative disease and cancer. But these substances were generic. They could not be patented. The Pharmaceutical Industry followed the dollar and proceeded to make and patent artificial hormones that were as close as possible to the real thing. But they were not the real thing, and they have been responsible, and continue to be responsible, for much of the illness we see in our modern society.

The best introduction is found in the Life Extension articles. Go to www.lef.org and enter bioidentical hormones into the search engine. For further research go to www.naturalnews.com and enter bioidentical HRT. Natural News is the best medical detective web site on the net. It is well researched and is not biased by product sales.

Fibromyalgia, women and BHRT

Fibromyalgia is more common in women. From puberty onward progesterone deficiency is common in women. In young women anovulatory cycles (absence of ovulation), produce no progesterone and in the cycles where an egg is released, often the progesterone production is less than optimal. Anovulatory cycles and luteal insufficiency are common due to the many stressors of modern life: poor diet, emotional stress causing excess cortisol, intensive exercise (elite female athletes frequently have no menstrual periods, with continual anovulatory status), and pollution. The use of the oral contraceptive pill containing false progesterone (progestagen) suppresses normal progesterone biochemistry.
Anovulatory, absence of ovulation
Luteal Insufficiency, less than optimal progesterone

Progesterone is the single most nourishing hormone for the female body. It is an antidepressant. It is a calmative, smoothing out mood swings. It is a diuretic assisting maintenance of ideal weight. It promotes deep delta wave sleep allowing better tissue repair overnight. It normalizes the blood clotting system to protect against deep vein thrombosis, heart attacks and strokes. It protects against breast cancer and osteoporosis. The “high” that most women feel in the last 2/3 of their pregnancies is due to the massive amount of progesterone produced from the placenta. It is a feel good hormone. When the placenta is delivered at childbirth this rich source of progesterone is removed and if the ovaries are low progesterone producers then post natal depression immediately follows. The treatment of post natal depression with bio-identical progesterone is quick and effective. These women are suffering from a low progesterone level, not an antidepressant deficiency.

There is no down side to the prescription of progesterone. There are no serious side effects. Because it can be given safely to all women, it is part of my regime for all women with fibromyalgia.

Estrogen is only needed for perimenopausal and post menopausal women. Before that time women suffer from estrogen dominance, mainly due to the pollution of our environment with false estrogens (xenoestrogens). This pollution is global, xenoestrogens are even found in the polar bears in the Arctic Circle. Perimenopausal and post menopausal women with fibromyalgia need a little estrogen in their cocktail.

DHEA and testosterone are repair hormones (androgens). In women they are very frequently suppressed by the progestagens in the oral contraceptive pill (OCP). It is really silly that the Pharmaceutical Industry made an artificial toxic substance that gave women the freedom to have sex without the fear of an unwanted pregnancy, while at the same time, suppressing the very hormones that make them want to have sex in the first place. How wonderful would it have been if they had made a bio-identical HRT oral contraceptive with progesterone and made women safe from blood clots and breast cancer and retained the repair properties of the androgens?

In women the androgens are produced in the adrenal glands and this function deteriorates with age. The production is also decreased by stress. Thus in a woman with fibromyalgia it is common to see low androgen production, and this problem becomes worse with age. After blood testing to confirm the fact, it is normally essential to include androgens in the cocktail for women with fibromyalgia.

Fibromyalgia, men and BHRT

In men, the main hormones that need attention are DHEA and testosterone. The most important is testosterone produced by the testes. Decreased production is documented as occurring from the 50’s onward, but I am seeing this in much younger men. This more widespread age group of presentation is again manly due to false estrogens (xenoestrogens) in the environment. A man with fibromyalgia must have his testosterone levels checked and if the levels are in the low normal range (not necessarily below the lower limit of normal), then a trial of testosterone therapy should be given. Correctly prescribed, the only contraindication to testosterone therapy is an established prostate cancer. Until the appearance of a prostate cancer, keeping the testosterone levels high protects against the development of prostate cancer. There are no other problems with testosterone in men. It is as good for men as progesterone is for women. Any man presenting to me with pain and fatigue, unless his blood levels are very high, will be given a trial of testosterone replacement.

Hormones for men and women to consider

Pregnenolone

Another hormone worth considering in both men and women is pregnenolone. This was widely used with great success for arthritic pain in the 1940’s, but fell out of favor when synthetic cortisone was developed and patented by the Pharmaceutical Industry. Pregnenolone was safe and effective and synthetic cortisone was dangerous, but pregnenolone was generic and again it was more important to make money than to heal people.

Thyroid hormone

The final hormone that needs attention in both men and women is thyroid hormone. Nutritional medical doctors look at where the thyroid levels are in relationship to the normal range. If the level of TSH (thyroid stimulating hormone) is in the upper half of the normal range (indicating low tissue thyroid levels, it is reciprocal), and the patient has symptoms of low thyroid function, then it is worth a trial of thyroid replacement. The main symptoms of low thyroid levels are fatigue, foggy brain, constipation, increasing weight, dry skin, and pain. Yes pain. Any patient with fibromyalgia must be seriously considered for a trial of thyroid replacement.

[Celeste’s side note]: “How does Hypothyroidism, Hypometabolism, Hashimoto’s and Thyroid Resistance Relate to Fibromyalgia of Chronic Fatigue Immunodysfunction?”

http://fmcfstriggerpoints.blogspot.com/2011/02/what-are-hypothyroidism-hypometabolism.html

Optimal thyroid replacement requires the prescription of both T4 and T3. Traditional medicine normally only prescribes T4. This must be converted to T3 to be active. T4 is a storage hormone and exerts no effect on its own. In patients with fibromyalgia this conversion may be sub-optimal and they will fail to benefit from T4 alone. T3 is best given as a slow release capsule dispensed from a compounding pharmacy.

With all the other hormones described above there are no serious problems with regard to side effects. With thyroid replacement it is important to know that too much thyroid hormone can cause palpitations. This problem can be minimized by taking high dose magnesium, together with a good quality multivitamin. It is also important to be careful about using other stimulants such as coffee. This should only be prescribed by a physician skilled in bio-identical HRT.

DIET
If you have fibromyalgia then your diet needs to be as non toxic as possible. The symptoms of fibromyalgia are emanating from widespread myofascial trigger points. To decrease the sensitivity of these trigger points we need to provide a clean, low allergy, high nutrient diet. Your diet should be organic as much as possible.

Dairy

I recommend removing all normal dairy produce from the diet. Normal dairy is genetically A1, a type of protein found in milk. The A1 cows produce milk containing the A1 beta-casein. After digestion this liberates a fragment called beta-casomorphine-7 (BCM7), a powerful opioid (narcotic). It is an oxidant, the opposite of antioxidant, and therefore acts as a free radical to damage tissues. From research beginning in 1993 it is now implicated in many illnesses, including heart disease, Type 1 diabetes, autism, and a range of auto-immune diseases.

The new A2, also a type of protein found in milk, is non allergenic. This milk has been available in Australia and New Zealand since 2003, and can now be found at select locations in the US. Goats and sheep milk and yoghurt and cheese are all A2 and can be consumed safely.

In New Zealand, the dairy farmers are secretly converting their herds to the A2 genotype. This takes about 10 years to complete. In 20 years time we may look back and see that this staple food we have been encouraging our children to eat has been one of the main causes of illness in our society.
If you have fibromyalgia you do not want A1 milk in your diet.

For further detail, I thoroughly recommend the book, Devil in the Milk by Thomas Cowan, MD.

[Celeste’s side note] Well folks, I Google searched this and it appears Hy-Vee Grocery in the Midwest is the only store that sells A2 milk. I suggest you do an on-line search on A2 milk and the benefits to those with allergies and gut problems, and see if you can find a distributor near you.

Gluten

The next most important food intolerance to consider is gluten. Gluten is the protein in grains, bread, cereal, and pasta. Gluten intolerance is common and it is the great mimicker of the 21st Century. It can mimic any illness. Any patient with fibromyalgia must be considered gluten intolerant until confidently excluded by a trial and challenge.

Traditional medicine describes celiac disease as true gluten intolerance and looks with suspicion on all those other alternative thinkers who talk about their gluten sensitivity. Traditional medicine uses a blood test for antibodies to gluten and endoscopy to take a sample of bowel lining to confirm or deny the existence of celiac disease. In my experience very few people have true celiac disease but many are intolerant to gluten.

[Celeste’s side note] The following is so commonsensical, if you don’t do anything else, DO THIS! This approach will give YOU control in your treatment. I am asked all the time, is there something I can do in my diet? Well, here you go.

The best way to test this is to eat a diet totally free of gluten for 3 weeks then challenge over 2 days by eating as much gluten as you can. If you are gluten intolerant you will have a very large reaction when you challenge.

If your challenge is negative, meaning it produces no aggravation of your symptoms, theoretically, you can bring gluten back into your diet. However, gluten foods are all foods that convert quickly to glucose and are therefore not good foods in the first place, so you will be healthier without them.

Sugar

The third most important item is sugar. Sugar is a poison. It contributes to leaky bowel syndrome and thus allows large allergenic molecules to pass through and set up auto-immune illness. Fibromyalgia is an autoimmune illness.

[Celeste’s side note] A great alternative to sugar and artificial sweeteners is honey. If you can get your hands on locally produced honey, all the better. Local pollen is carried by bees during pollination and may help desensitize you to allergens, boost your immune system, and decrease your need for antihistamines. The pitfalls and comorbid conditions regarding a high glycemic index diet are discussed in the book.

*caution: Because allergens are in amounts sufficient to desensitize the adult, honey can be toxic to an infant with allergies.


Increasingly it is documented that if you can keep your insulin levels consistently low then you will enjoy the optimal level of health. Thus you need to avoid all foods that quickly convert to glucose, and this includes the gluten foods.

The diet I recommend, and the diet I eat myself, is as follows.

Breakfast

For breakfast a protein shake is best. I recommend a specific product “The Sun Warrior” brand protein (contact www.sunwarrior.com to find your local distributor in the USA). This is made from bio-fermented raw sprouted whole grain brown rice, and sweetened with Stevia ®. There are no artificial chemicals and no sugar. Please note I have no financial connection to this company apart from retailing their product through my clinic.

Make up a shake in a blender with the powder alone or add a banana and/or frozen blueberries if desired. As a general rule one scoop per day is sufficient for a sedentary person. This can be increased to 2 or 3 scoops as your exercise levels increase.

An alternative to this would be a cooked breakfast, such as, an omelet.

The rest of the day

Eat normal food; red meat, chicken, sea food, vegetables, salad, nuts, seeds, fruit. If you get hungry, have another protein shake. This is a low allergy, low sugar diet. It is what I eat and I have plenty of energy. I am 66 years of age, work out at the gym 3 times per week, do my clinical work Monday to Friday, and spend time at the computer on the weekends. It works for me!

If you have fibromyalgia it important you consider this type of healthy eating.

NUTRITIONAL SUPPLEMENTS

Even if you are eating a totally organic diet including your meat, chicken, and fish, you are still exposed to all the pollutants in the environment. You will benefit from good quality nutritional supplements.

There are 2 groups of supplements. There are those that are necessary to build the foundations of your health. These are high dose B vitamins, magnesium, zinc, selenium, C, E, D, other trace minerals, and omega 3 fatty acids. Then there is everything else. I call this group the “add ons”. This includes all the many things marketed as the best thing for your health; spirulina, Gogi berries, acai berries, etc. these are all beneficial but are of little use unless you have first laid down the foundation.

Over the nearly 20 years of practicing nutritional medicine I have tested many different combinations. I have settled on the Usana brand as the world’s best. I state here that I am not distributor of this product. I do retail the product through my clinic and if you wish to have this distributed to your home you can contact my wholesaler Vitaly and Jenny Orban at jenovita@bigpond.com

If you begin with the Usana Essentials supplement you will have all the items needed to build the foundation for your program. If you add the Usana Biomega, then you will have good quality clean omega 3 fatty acids. For fibromyalgia patients, I would also recommend Cal Plus. This is a high dose calcium and magnesium tablet. If you take T3 and T4, I would definitely add Cal Plus.

If you do not want to purchase the Usana brand, try to get the highest dose multi containing the items noted above.

[Celeste’s side note] Because you should take thyroid medication on an empty stomach, and some vitamins and supplements, particularly calcium and magnesium, can interfere with absorption, either wait four hours or switch to taking your thyroid medication at night.

PHYSICAL THERAPY

When all the above items are attended to, then you are ready for physical therapy. The best therapy is the local anesthetic injections by a skilled doctor. The next best is the use of acupuncture needles to release trigger points. This is usually called dry needling or intramuscular stimulation. If you cannot find therapists with the above techniques then the next best therapy is good old fashioned deep tissue massage. This needs to begin gently and gradually increase in intensity as you heal. This will take a very long time. But if you correct the perpetuating factors I have noted above, then weekly massage over many months should see gradual recovery.

[Celeste’s side note] Here in the US other modalities may be available to you, which include myofascial trigger point therapy, myofascial release, and active release therapy (ART). Specialists you might want to consider for treatment are physical therapists, physiatrists, sports medicine physicians, chiropractor’s, and pain management physicians trained to treat myofascial trigger points. I have not been able to convince pain management doctors in my care to leave out the steroids, which have not been shown to be of any greater benefit in the FM patient, limits the number of trigger points (TrPs) that can be treated and can cause trigger points to calcify. That is why I see a sports medicine physician that understands fibromyalgia and myofascial trigger points. However, even she will not treat more than 5-7 TrPs at a time and will not inject those in the neck, which are a primary source of dysfunction.

SUMMARY

1. Begin Bio-identical HRT. Look in the telephone book for Compounding Pharmacists in your area. They will give you a list of the doctors that send them prescriptions. These should know how to prescribe your bio-identical hormones. I prefer the use of a troche rather than the creams. A good starting point is for a woman is a troche with progesterone 200 mg, taken a ¼ twice daily. For perimenopausal and menopausal women I would add Biest 1mg, and if the blood tests showed low normal range testosterone and DHEA, I would add DHEA 25 mg and testosterone 4 mg. This is a perfectly safe mixture and you can take this all your life. (disclaimer: in this litigation conscious age I state that taking BHRT will not totally eliminate the chance of developing breast cancer, or having a heart attack or stroke, but there is good evidence to suggest it will reduce your chances of these conditions. You must read the evidence and make your own decision)

For thyroid replacement a safe beginning would be T4, 50 mcg per day and T3 in a slow release capsule 10 mcg per day. You will need to find a doctor to monitor this.

2. Eliminate dairy, gluten, and sugar from your diet.

3. Remove all root canal fillings and amalgams. Follow the links on the site www.robertgammal.com to find an alternative dentist near you.

4. Ideally begin Usana Essentials and Biomega.

5. Begin physical therapy.

[Celeste’s side note] In the United States, we are split between seeing a rheumatologist that only looks at the centralization of fibromyalgia, and someone to treat myofascial trigger points. This is grueling, disconnected, and lacks continuity of care. Australia is lucky to have Dr. Whiteside, who is taking into account all aspects of fibromyalgia, the centralization, effects on the immune system, treatment for myofascial trigger points AND therapies that address each person individually.

Learn more about Dr. Whiteside at http://www.myomed.com.au/ and be sure to click on the download button and watch the video in the supplements link.

Celeste's Website

Celeste's Website
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