Showing posts with label CHRONIC MYOFASCIAL PAIN. Show all posts
Showing posts with label CHRONIC MYOFASCIAL PAIN. Show all posts

Friday, December 5, 2014

Part I – Proprioception: Are you a bull in the china cabinet? Is it fibro or myofascial pain syndrome? By Celeste Cooper




Are you a bull in the china cabinet? I know I sure feel like one. We run into things at an extraordinary pace, and we have the bruises to prove it. We feel like our legs are tied together or we are walking a 90 degree angle plank. A disturbance in proprioception is thought to occur in both fibromyalgia (FM) and myofascial pain syndrome (MPS), but for different reasons. Myofascial pain syndrome  can co-exist or be confused with FM.



Proprioception = a sense of where our body and its appendages are located in relationship to the space around us.

Proprioception in Myofascial Pain Syndrome

Myofascialtrigger points (MTrPs) are knotted up pieces of muscle fiber that shorten the muscle, cause pain locally and in a pain referral pattern. They also cause muscle weakness, and joint dysfunction. A temporary problem experienced by those with an athletic or other muscle injury becomes myofascial pain syndrome in others. (Learn more here.) Most people have experienced the pain and stiffness of “sleeping on their neck wrong,” as an example, and they respond well to usual treatments, i.e. massage or in more severe injury, trigger point injections. But in those of us with chronic myofascial pain a simple injury, or a slight breeze can activate trigger points and trigger points develop in other compensating and opposing muscle fibers. 


So How is Proprioception Affected by Myofascial Pain Syndrome? 
A very important muscle in the neck, the sternocleidomastoid (SCM), functions to keep our head where it belongs and provide range of motion. Among other things, it also keeps an eye on where our head is located in space (proprioception) and provides feedback to the brain to help us maintain balance and interpret visual information. When trigger points develop in the sternocleidomastoid, they shorten the muscle placing its job in jeopardy. When this happens we walk into things, drop things without warning, become dizzy, have visual disturbances, experience headaches, and more.



Trigger points in the legs can also affect gait and cause imbalance—another blog for another day.

Proprioception in Fibromyalgia

Proprioception and balance problems have been studied in relationship to fibromyalgia and sleep, posture problems, and neuro regulation. This suggests that fibromyalgia does affects our brain’s ability to orchestrate important information correctly. A Great deal of research suggests this “neuro dysregulation,” is at play, but it is still unclear as to which came first, the cart or the horse. Does the dysregulation that affects proprioception also affect the brains ability to lead the band for immune regulation? Some think yes it does, but that is another story for another day. You can read more about this and the role of myofascial trigger points in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome,and Myofascial Pain: The Mind-body Connection

What is the Difference between FM and MPS, What Sets Them Apart and Links Them Together?

Fibromyalgia is accompanied by certain specific symptoms and particular conditions, such as:  gastrointestinal disorders, TMJ, Raynaud’s, migraine, restless leg syndrome, hypothyroidism, SICCA, bladder and pelvic difficulties  and sexual dysfunction (male and female), chronic fatigue syndrome, hypothyroidism, ankylosing spondylitis, Sjögren’s,  systemic lupus erythematosus, rheumatoid arthritis, multiple chemical sensitivities,  and autonomic dysfunction. Many of these conditions also share a myofascial component and is why some believe myofascial pain syndrome is a common comorbid disorder to fibromyalgia that explains many symptoms we experience. There are however, some who believe the symptoms we experience are nothing more than random complaints. The later is unfortunate because it impedes important research that might lend better information for why we have such difficulty with our proprioception.

Watch for Part II – Proprioception in FM and MPS: Are you a bull in the china cabinet? What can we do?

Five Safety Tips for the Holidays for Persons Living with Fibromyalgia and Myofascial Pain Syndrome by Celeste Cooper

Resources:

Alonso-Blanco C1, Fernández-de-las-Peñas C, Morales-Cabezas M, Zarco-Moreno P, Ge HY, Florez-García M. Multiple active myofascial trigger points reproduce the overall spontaneous pain pattern in women with fibromyalgia and are related to widespread mechanical hypersensitivity. Clin J Pain. 2011 Jun;27(5):405-13. doi: 10.1097/AJP.0b013e318210110a.

Cooper, C and Miller, J. Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-body Connection. Healing Arts Press: Vermont. 2010.

Cooper, C. Questioning the Preliminary Proposed Diagnostic Criteria for Fibromyalgia. The Pain Practitioner. 21(2):24-25.

Starlanyl, DJ and Sharkey, J Healing through Trigger Point Therapy: A Guide to Fibromyalgia, Myofascial Pain and Dysfunction. North Atlantic Books (September 11, 2013).

Wolfe F, Brähler E, Hinz A, Häuser W.Arthritis Care Res (Hoboken).Fibromyalgia prevalence, somatic symptom reporting, and the dimensionality of polysymptomatic distress: Results from a survey of the general population. 2013 Feb 19. doi: 10.1002/acr.21931. [Epub ahead of print]



~ • ~ • ~ • ~ • ~ • ~

"Adversity is only an obstacle if we fail to see opportunity."  
Celeste Cooper, RN
Author, patient/ advocate
http://CelesteCooper.com



All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.  

Sunday, May 5, 2013

What are fibromyalgia and Chronic Fatigue Syndrome (ME/CFS): Similarities and Differences?



The primary presenting complaint in fibromyalgia is muscle pain, and the primary reason chronic fatigue syndrome (CFS/ME) patients seek treatment, is life altering fatigue and an overwhelming feeling of illness. Though in neither case, is this where symptoms stop.

The diagnostic criteria for fibromyalgia (FM), here,  and  chronic fatigue syndrome (CFS/ME), here,  are very specific to each disorder and are dissimilar in several respects. 

Fibromyalgia and CFS/ME (as we refer to in our book,  chronic fatigue immunodysfunction, CFID) do share some common comorbid conditions, and both are thought to have central nervous system disruption, however, disruptions are different between the two, and newer research is showing a stronger connection to viral, infectious, and immune overload in CFS/ME than seen in FM, though immune problems have been established in fibromyalgia too. (Behm, 2012). These problems are complex and researchers are still weeding through research results which allow them to make new hypothesis and,, hopefully, move the research in a more distinct direction.  Learn more about fibromyalgia comorbid conditions here 

 and CFS.ME here

Fibromyalgia and CFS/ME also share autonomic effects such as loss of heart rate variability and POTS, however, in a study done by Light, et al (2011) it was reported “At least two subgroups of patients with CFS can be identified by gene expression changes following exercise. The larger subgroup showed increases in mRNA for sensory and adrenergic receptors and a cytokine [an immune modulator]. The smaller subgroup contained most of the patients with CFS with orthostatic intolerance, showed no post-exercise increases in any gene and was defined by decreases in mRNA for α-2A. FM-only patients can be identified by baseline increases in three genes. Post-exercise increases for four genes meet published criteria as an objective biomarker for CFS and could be useful in guiding treatment selection for different subgroups.

This leads us the discussion on exercise. Study after study indicates that exercise worsens the symptoms of CFS/ME, yet low impact exercise is one of the treatment protocols for helping improve body-wide pain in FM. I propose this could be due to a higher incidence of orthostatic intolerance in CFS/ME secondary to an underlying viral, infectious, or immune causation. There are studies indicating that FM patients symptoms are also worsened by exercise, but I propose this is due to the presence of untreated myofascial pain syndrome, where the muscles become weak from the presence of myofascial trigger points, learn more hereand primary deregulation of the HPA axis.
   
Repeated studies of FM suggest a disruption of the hypothalamus-pituitary-adrenal axis and oxidative stress, which could result in secondary immunologic deregulation. In contrast, It is quite possible immunologic deregulation in CFS/ME is primary and results from a viral or infectious insult. This is where the differences are exposed.  

Myofascial pain syndrome is thought to overlap in both FM and CFS/ME, which massacres research reliability. Researchers are currently studying muscle tissue irregularities in both FM and CFS/ME. It is my greatest hope that they are considering the presence of myofascial pain syndrome, for without this consideration and examination for the presence of myofascial trigger points; study results once again become skewed.  We discuss this and other considerations at length in our book (Cooper and Miller, 2010).

There are specific biological differences between FM and CFS/ME. Also interesting is a study done by Castro-Marrero et al., who suggest their data leads to “the hypothesis that mitochondrial dysfunction-dependent events could be a marker of differentiation between CFS and FM indicating the mitochondria as a new potential therapeutic target for these conditions” Both are considered neuroendocrineimmune disorders, as is Lyme’s disease, Gulf War Syndrome, Lupus, and others. Though they fall under the same umbrella, they are different.

We explain the differences and the similarities, why they are confused and the importance in having the right diagnosis in Chapter One, “All about Fibromyalgia, Chronic Fatigue Immunodysfunction—The Muster to Master, and Chronic Myofascial Pain—Nerve to Muscle, and Double Cross". here 



All blogs, posts and answers are not meant to replace medical advice.

Resources:

Bardal E, Olsen T, Ettema G et al. 2013. Metabolic rate, cardiac response, and aerobic capacity in fibromyalgia: a case-control study. Scand J Rheumatol. [Mar 26 Epub ahead of print].

Behm FG, Gavin IM, Karpenko O, Lindgren V, Gaitonde S, Gashkoff PA, Gillis BS. Unique immunologic patterns in fibromyalgia. BMC Clin Pathol. 2012 Dec 17;12(1):25. doi: 10.1186/1472-6890-12-25.
Brewer JH, Thrasher JD, Straus DC, Madison RA, Hooper D.. Detection of Mycotoxins in Patients with Chronic Fatigue Syndrome. Toxins (Basel). 2013 Apr 11;5(4):605-17.

Castro-Marrero J, Cordero MD, Saez-Francas N, Jimenez-Gutiérrez C, Aguilar-Montilla FJ, Aliste L, Alegre-Martin J. Could mitochondrial dysfunction be a differentiating marker between Chronic Fatigue Syndrome and Fibromyalgia? Antioxid Redox Signal. 2013 Apr 22. [Epub ahead of print]

Cooper, C and Miller, J. (2010). Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection. Vermont: Healing Arts Press.

Ge HY, Nie H, Graven-Nielsen T, Danneskiold-Samsøe B, Arendt-Nielsen L. Descending pain modulation and its interaction with peripheral sensitization following sustained isometric muscle contraction in fibromyalgia. Eur J Pain. 2012 Feb;16(2):196-203.

Gerdle B, Forsgren MF, Bengtsson A, Leinhard OD, Sören B, Karlsson A, Brandejsky V, Lund E, Lundberg P. Decreased muscle concentrations of ATP and PCR in the quadriceps muscle of fibromyalgia patients - A (31) P-MRS study.Eur J Pain. 2013 Jan 30. doi: 10.1002/j.1532-2149.2013.00284.x. [Epub ahead of print]

Kulshreshtha P, Deepak KK. Autonomic nervous system profile in fibromyalgia patients and its modulation by exercise: a mini review. Clin Physiol Funct Imaging. 2013 Mar;33(2):83-91.

Light AR, Bateman L, Jo D, Hughen RW, Vanhaitsma TA, White AT, Light KC. Gene expression alterations at baseline and following moderate exercise in patients with Chronic Fatigue Syndrome and Fibromyalgia Syndrome. J Intern Med. 2011 May 26. doi: 10.1111/j.1365-2796.2011.02405.x. [Epub ahead of print]

Klaver-Król EG, Rasker JJ, Henriquez NR, Verheijen WG, Zwarts MJ.. Muscle fiber velocity and electromyographic signs of fatigue in fibromyalgia. Muscle Nerve. 2012 Nov;46(5):738-45.

Olausson P, Gerdle B, Ghafouri N, Larsson B, Ghafouri B. Identification of proteins from interstitium of trapezius muscle in women with chronic myalgia using microdialysis in combination with proteomics. PLoS One. 2012;7(12):e52560.

Perrin RN, Richards JD, Pentreath V, DF. Muscle fatigue in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and its response to a manual therapeutic approach: A pilot study. International Journal of Osteopathic Medicine xxx (2011) 1e6
Peter C. Rowe, MD, Neuromuscular Strain in CFS. Association News, Research News, Understanding CFS | 13. JUN, 2012
http://www.research1st.com/2012/06/13/rowe-riww/ (accessed 5-5-2013)

Shang Y, Gurley K, Symons B, Long D, Srikuea R, Crofford LJ, Peterson CA, Yu G. Noninvasive optical characterization of muscle blood flow, oxygenation, and metabolism in women with fibromyalgia. Arthritis Res Ther. 2012 Nov 1;14(6):R236.

Takamoto K, Sakai S, Hori E, Urakawa S, Umeno K, Ono T, Nishijo H. Compression on trigger points in the leg muscle increases parasympathetic nervous activity based on heart rate variability. J Physiol Sci. 2009 May;59(3):191-7. Epub 2009 Feb 21.

Wilhelmina M. H. Behan, MD, FRCPath, FRCP J Holt, PhD David H. Kay, MBChB Pamela Moonic, BSe. In vitro Study of Muscle Aerobic Metabolism in Chronic Fatigue Syndrome. Journal of Chronic Fatigue Syndrome, Vol. 5( 1) 1999
1999 by The Haworth Press, Inc. All rights reserved.





Friday, December 28, 2012

Exercise and Chronic Pain: Complimentary Roommates



The article includes:

What is exercise?
When to exercise
Types of exercise
Movement and tolerance
Finding your target heart rate(THR)
Effects of exercise

Due to the number of linked resources on my website, please refer to the following link.

Monday, November 5, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 11-5-2012



KaleidoPain NEWS: Ever Changing Colors of Chronicity, containing news for all pain and neuro-endocrine-immune patients, healthcare providers, and caregivers. 

                                   
“The weak can never forgive. Forgiveness is the attribute of the strong.”
~Mahatma Gandhi, Unsurpassed leader of Indian nationalism in British-ruled India,
and led non-violence movements for civil rights. 1869 - 1948 


CELESTE’s BLOGSPEAK  Click here for direct links to each blog  


  • Are Your Power Lines Down: Sensitivity of Neuro-Endocrine-Immune Disorders.
  • Fighting for the right of choice. RE: PROPS.
  • KaleidoPain News: Changing Colors of Chronicity 10-17-12.
  • Human Touch: Soft Tissue and Massage Therapy in Chronic Pain Conditions.
  • Book Launch for Those Living with Chronic Pain.
  • Monthly feature for October is CRPS/RSD.
  • A Thief in the Night: Is pain robbing you of love?

FEATURED BLOG or Website



HEALTHY HABITS



INSPIRATION

Mindful awareness expands my being, encouraging me to live consciously without judgment. 


FEATURING Q&A by Celeste at Sharecare
(I hope you chose to join Sharecare and follow the links directly, however you can also go to www.sharecare.com and copy and paste the question into the ASK search box to go directly to my answers for the question.) 
*See over 280 questions answered by Celeste 


THE ADVOCATE

Be an advocate, vote in the CITGO Fueling GoodIn the running: 

National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels. NPAF translates the experience of millions of patients who have been helped by our companion, Patient Advocate Foundation, which provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.

If you are in need of direct patient services, please contact Patient Advocate Foundation at 1-800-532-5274 or on the web.


PAIN STRATEGIES 

ANNOUNCEMENTS

If you have or know someone who has CFS, please view and share this video testimony by Jeri McClure Kurre at the CFSAC Committee Meeting.


IN THE NEWS

Not on Twitter?  Follow my tweets from Celeste Speaks 


NEWS FOR YOU! 

Tuesday, October 30, 2012

Are Your Power Lines Down: Sensitivity of Neuro-Endocrine-Immune Disorders




It's not enough that we hurt interrupting sleep and other important activities, but with fibromyalgia and chronic fatigue syndrome, we know our brain is on hyper alert for different reasons, but sensitive all the same.  This puts us at risk for sensitivity to light, sound, household chemicals and odors, cold, heat, and even some medications.

Particularly troublesome are those things in our environment that we have little to no control over, which has an effect on many neuro-endocrine-immune disorders

We can’t live in a dark room all day every day.  Recommendations are that we spend about 20 minutes a day in sunlight, a great source of vitamin D, which is low in some patients.  After other causes of photophobia (light sensitivity) have been ruled out, we should protect our eyes with dark polarized sunglasses with UV protection. Even snow can be a source of irritation, so wear your sunglasses or a wide brimmed hat year round. Light sensitivity, is also common in migraine so these precautions could help prevent a migraine attack too. If ambient light or a computer screen is a factor for you, a lighter tinted glass you can wear all the time may help.

Sound sensitivity (hyperacusis) or misophonia (sensitivity to certain sounds) is another matter, and it seems not only sound and tones, but several people talking at one time can be irritating.  Tinnitus, ringing in the ear, may also play a part for you, and is sometimes caused by the presence of myofascial trigger points of myofascial pain syndrome. Total avoidance may not be possible because it is important to spend time with others to combat isolation, but we can identify and avoid certain known toxic noise situations.  Carrying ear plugs for those times when you have one nerve left and noise/sound/music is unbraiding it may be helpful.  Try to keep your environment as chaotic free as possible. There are auditory retraining therapies available so you may need a referral to a specialist.

If light and sound sensitivity causes a great deal of anxiety, discuss this with your doctor, there may be a medication or supplement that can help. Deep breathing, Qi Gong, mindfulness therapy, and meditation have been scientifically proven to lower our hyper alert response.

Multiple chemical sensitivity (MCS) is best treated by first identifying offensive environmental chemicals and medications.  Once the culprit/s is identified, the best solution is avoidance.  Unfortunately, this is not always possible.  Discuss particular aggravating factors with your doctor to explore treatment options

Talk to your doctor about your sensitivities so he or she can work with you to come up with an effective treatment plan.

In healing and hope, Celeste

All blogs, posts and answers are not meant to replace medical advice.

Want to know more about Celeste’s books?  (click on the title)







Sunday, September 30, 2012

KaleidoPain News Sept 30, 2012


"To lose patience is to lose the battle."
 - Mahatma Gandhi

*Tips for writing your own affirmations www.thesethree.com/Key_to_Affirmations.html
*Tips on journaling www.thesethree.com/Journaling.html

CELESTE’s BLOGSPEAK

Raising the roof on the article, “Fibromyalgia Patients Self-Medicating With Cannabis May Have Poor Mental Health Outcomes.” 
http://fmcfstriggerpoints.blogspot.com/2012/09/raising-roof-on-article-fibromyalgia.html#.UFtI1I1lTVI

Intimacy and Fibro: The nuts and bolts of the pelvic floor
http://fmcfstriggerpoints.blogspot.com/2012/09/intimacy-and-fibro-nuts-and-bolts-of.html
at Sharecare http://www.sharecare.com/user/celeste-cooper/blog/post/fc4f4e68-6b98-4e55-95ac-37357b130980

KaleidoPain News 9-11-12
http://fmcfstriggerpoints.blogspot.com/2012/09/kaleidopain-news-9-11-2012_11.html

Demanding body, cellular strength, LGS:  Are we what we eat?
http://fmcfstriggerpoints.blogspot.com/2012/09/demanding-body-cellular-strength-lgs.html

*Who Should Be Prescribing Our Pills?
http://fmcfstriggerpoints.blogspot.com/2012/09/who-should-be-prescribing-your-meds.html
On Sharecare http://www.sharecare.com/user/celeste-cooper/blog/post/006dd176-a756-40e1-8983-e8f9c2369f0f

*See past blog links at httpss://thesethree.com/Featured_Blog_Links.html
FEATURED BLOGS

Relieving Pain in America: How you can help to improve care. by nfmcpa
http://www.blogtalkradio.com/nfmcpa/2011/12/09/relieving-pain-in-america-how-you-can-help-to-improve-care?utm_source=BTRemail&utm_medium=ShowReminder

Occupy CFS, Will FDA Step Up?
 http://www.occupycfs.com/2012/09/13/will-fda-step-up/


HEALTHY HABITS

Six ways to use your mind for healing
http://www.elephantjournal.com/2012/08/six-ways-to-use-your-mind-for-healing/?utm_source=All&utm_campaign=Daily+Moment+of+Awake+in+the+Inbox+of+Your+Mind&utm_medium=email

Tight Jean Syndrome
Wearing tight clothes can compress a sensory nerve called the lateral femoral cutaneous nerve that runs from the abdomen through the thigh. The compression can cause numbness, tingling, and a burning pain in the legs above the knees, a condition called "meralgia paresthetica," also known as "tingling thigh syndrome" and now sometimes termed "tight jean syndrome." http://www.drweil.com/drw/u/TIP04494/Tight-Jean-Syndrome.html


FEATURING Q&A by Celeste at Sharecare
*Follow all answers by Celeste at  www.sharecare.com/user/celeste-cooper/answers

Who should I tell about my fibromyalgia?
http://www.sharecare.com/question/who-should-tell-about-fibromyalgia

Can my diet affect my fibromyalgia?
http://www.sharecare.com/question/can-diet-affect-fibromyalgia

How is dizziness in fibromyalgia treated?
http://www.sharecare.com/question/how-dizziness-fibromyalgia-treated

What qualifies a psychologist to treat my fibromyalgia?
http://www.sharecare.com/question/what-qualifies-neurologist-treat-fibromyalgia

ANNOUNCEMENTS
A note for everyone dealing with chronic pain.  Please know that many are working hard to realize, collaborate, and facilitate the Institute of Medicine (IOM) “Perspectives on Pain.”  The Patient Action Alliance to Implement a National Strategy (*PAINS) has established the mission, “To help Americans who struggle with pain have access to integrative pain care consistent with their goals and values."  I am happy to be affiliated with this group and make contributions as requested. See my note, https://www.facebook.com/notes/integrative-therapies-for-fibromyalgia/the-pains-action-alliance-to-implement-a-national-strategy-pains/525869224095152
For Grace’s Women in Pain,  ***An archive of the complete 2012 Women In Pain webcast will be available October 1st!  Please join us then to re-live the magic of our 5th Annual Women In Pain Conference!*** http://www.forgrace.org/women/in/pain/C265/
Women in Pain.

IN THE NEWS
Not on Twitter?  Follow my tweets on the bottom of the welcome page at http://TheseThree.com

Major changes needed to end inadequate pain management for millions, say Stanford authors of IOM study by Krista Conger.  Phillips Pizzo, Chair-IOM, Advancing Pain Research, Care, and Education; Dean Stanford University School of Medicine.
http://med.stanford.edu/ism/2011/june/pain.html

Chronic Fatigue Syndrome Not Linked to Suspect Viruses; Study Puts to Rest Notion That XMRV or pMLV Cause the Mysterious Ailment
http://www.sciencedaily.com/releases/2012/09/120918083907.htm
CII Press Conference: Multicenter Study on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.  W. Ian Lipkin, MD (Moderator)
http://cii.yewda.com/Blog.aspx?LOfRcb

NEWS FOR YOU from Celeste

Don’t miss the Sept/Oct edition of the National Fibromyalgia and Chronic Pain Life, a journal for all patients in pain.  Featured, “Relieving Pain in America.”  An organization dedicated to doing just that. The online journal is at no cost, just click on the magazine icon at the bottom of the page.
http://fmcpaware.org/

What is a “Pain Activist?”
https://www.thesethree.com/Pain_Activist.html

How to Cope With Unsolicited Advice When You Have an Invisible Chronic Illnesshttp://invisibleillnessweek.com/2010/08/24/how-to-cope-with-unsolicited-advice-when-you-have-an-invisible-chronic-illness/

*Follow other “NEWS FOR YOU”  at www.TheseThree.com

ROLFING THE RESEARCH
September’s Research Updates with comments https://thesethree.com/Research_Sept__2012.html


BOOK REVIEW

How to Be Sick by Toni Bernhard
I earmarked too many pages to share all of them in this review, so I will share two that will forever be affirmations to me, finding joy in the joy of others, and implementing loving-kindness that I often give others, but seldom reserve for myself.  This book offers a personal journey and provides true enlightenment for those of us who cope with chronic illness.
--Celeste Cooper, RN, author, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection, and FM expert at Sharecare.com  www.thesethree.com


ABOUT THE BOOKS 
www.thesethree.com/About_the_Books_WPCN.html


COMMENT CORNER
5.0 out of 5 stars Very information and helpful!, July 8, 2012
By TruthSeeker - See all my reviews
This review is from: Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection (Paperback)
Book is presented as a textbook and is easy to read with helpful explanations, definitions and exercises. Very informative on a variety of related syndromes/illnesses. My problem, Chronic Fatigue Syndrome, is seriously misunderstood and misdiagnosed. Those of us who have it need verification and support, not to be dismissed as just crazy/lazy. Will share this book with many others.

POINT TO PONDER    (Sneak Peek from our soon to be released, Broken Body, Wounded Spirit: Balancing the See Saw of Chronic Pain, a series beginning with “Fall Devotions”)

How can I balance my teeter totter?

*This virtual newsletter is for informational purpose only and is not meant as medical advice.
Have the KaleidoPain News delivered right to your Inbox by subscribing to the RSS feed.
The KaleidoPain newsletter is for you, join in and submit one of your inspiring moments or book review's. Make a contribution and share with others. To submit contributions put "inspiring moment" or "book review" in the subject line and email to Celeste@TheseThree.com

Saturday, August 25, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 8-25-12

Have the KaleidoPain News delivered right to your Inbox by subscribing to the RSS feed.

The KaleidoPain newsletter is for you, join in and submit one of your inspiring moments or book review's.  Make a contribution and share with others. To submit contributions put "inspiring moment" or "book review" in the subject line and email to Celeste@TheseThree.com

BALANCING THE TEETER TOTTER OF CHRONIC PAIN:

A Dose of Nature, My Marriage and Pain ©

Pain interferes with my marriage, it’s so.
I know that it will, if I don’t let go.
My marriage falls prey to struggles of pain.
The life raft is nature, says the rain.

Twenty minutes a day the experts say
So I will take my mate with me today.
Harmony the example of all that live here,
The squirrels, the leaves, flowers and deer.

Any marriage needs to feel the swift breeze,
To be nourished by nature just as the trees.
If my marriage learns to crave these things,
Worries take a backseat, even my pain.

So carry on nature, keep up the good work,
We are glad to learn from your great book.
In nature I’m able to endure pain’s course,
All of God’s creatures abhor a divorce.

This is why nature is a good place to rest,
If only a short while, it brings out the best.
Be steadfast with nature, harmony abides,
If WE take a few minutes to go outside.

Celeste Cooper,  August 18, 2012

*Tips for writing poetry in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN and Jeff Miller, PhD
*Tips for writing your own affirmations http://thesethree.com/Key_to_Affirmations.html
*Tips on journaling https://thesethree.com/Journaling.html

BLOGSPEAK BY CELESTE

A comprehensive review on the proposed and modified American College of Rheumatogy diagnostics for fibromyalgia.


What the heck is a syndrome, and are the syndromes; fibromyalgia, chronic fatigue and myofascial pain different?



HEALTHY HABITS

Do vitamins really work with Dr Andrew Weil.
http://www.drweil.com/drw/u/TIP04474/Do-Vitamins-Really-Work.html

Nutritional expert Deirdre Rawlings speaks up on How to overcome America’s most overlooked disease. In healing, harmony and hope,  Celeste Cooper contributing author to her EBook series, Fibromyalgia Insider Secrets: 10 Top Experts
http://articles.healthrealizations.com/FoodsForFibromyalgia/2012/05/21/How-to-Overcome-Americas-Most-Overlooked-Disease.aspx

Developing Healthy Habits, Southwest Wrap
http://www.youtube.com/watch?v=ZdIWlUeJcb4&feature=youtu.be

FEATURING Q and A by Celeste at Sharecare

What can I do to improve my fibromyalgia?
http://www.sharecare.com/question/what-can-do-improve-fibromyalgia

What criteria must I meet to be diagnosed with fibromyalgia?
http://www.sharecare.com/question/criteria-meet-diagnosed-with-fibromyalgia

How is my fibromyalgia affecting my thinking?
http://www.sharecare.com/topic/fibromyalgia-mental-effects

*Follow all answers by Celeste at  http://www.sharecare.com/user/celeste-cooper/answers

INSPIRING MOMENTS: Giving forward momentum a shove

Grieving Loss In Order To Heal

For most of us, only for a brief moment, you tell of your grief. We shed our tears for a while and then began our day. For me, its not only about where I am today, but about how long I've been here. Unlike some illness, when we speak of ours, it’s in terms of years not days or weeks. We all suffer at its hands, the loss of things undone, lives not lived, events missed and the days yet to come. 

Then there's the times when an event in our lives brings up painful memories, some taking us back to the time that we first got sick. We then feel as if we're right back there, in the thick of that early pain. It can be overpowering and scary, leaving us in a state of grief. We don't have to dwell on this grief, yet we must see it, feel it, and release it, each time it comes to the surface. Otherwise, it comes back the next time with reinforcements. Ignoring it doesn't cause it to go away. It only encourages it somehow.

My hope for us would be that through all of the grieving, we'll forgive ourselves for being in this place, not of our own making. In order to move forward, we must grieve our loss or we may find ourselves stuck within the walls of our illness. So grieve, cry, release and live the best life you can, for each day. Knowing, you're not alone in your brand of sorrow. We walk this path together, in order that the journey may be a bit lighter. Healing cannot begin until we let go.

Submitted by Clarissa Shepard at Fellow Travelers (Facebook)


IN THE NEWS

Chronic pain could be causing cognitive deficit.  NIH featured research by the NFMCPA.
http://www.fmcpaware.org/nih-mackey

Mysterious illness links teenage girls along S.A.'s I-10 corridor. KENS5.com News, San Antonio
http://www.kens5.com/news/ito-151467795.html

'Female' gene may be to blame for making women more prone to migraines
http://www.newkerala.com/news/newsplus/worldnews-33272.html

FEATURED ARTICLE

Augusts’ featured article is on Ankylosing Spondylitis (AS). Learn more and about its association with FM at  https://www.thesethree.com/Ankylosing_Spondylitis.html

The Dark Side of Pain: Serious Challenges We ALL Face
http://thepainjournal.wordpress.com/2012/08/23/dark-side-of-pain/#comment-90

ROLFING THE RESEARCH

July/August Research (some with comments) under Monthly Features just posted.
https://thesethree.com/Featured_Research.html

*See complete resource list from TheseThree categorized by condition and therapies 
https://thesethree.com/Resources_3379.html

BOOK REVIEW

The Trigger Point Therapy Workbook: Your Self-Treatment Guide for Pain Relief, Second Edition [Paperback]by Clair Davies(Author), Amber Davies (Author), David G. Simons (Author)

Myofascial pain syndrome is a common comorbid condition to fibromyalgia. This book has timeless information and superb diagramming of myofascial trigger points, their specific pain and symptoms patterns as defined by Drs. Travell and Simons.  Treating peripheral myofascial trigger points is paramount in improving muscle function and minimizing input and amplification of pain found in fibromyalgia. As a patient, RN, author and fibromyalgia expert at Sharecare, I found this book to be particularly helpful and well illustrated, something that isn’t always easy to find.  It is a must for your massage therapist, physical therapist or any bodyworker who wants to understand how myofascial trigger points can affect the body.
Celeste Cooper, author, Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection.  (co-author, Jeff Miller, PhD) and fibromyalgia expert at Sharecare.

SNEAK PEEK (Cooper and Miller, Healing Arts Press: Vermont, 2010, available here  http://www.amazon.com/Integrative-Therapies-Fibromyalgia-Syndrome-Myofascial/dp/1594773238/ref=sr_1_1?ie=UTF8&s=books&qid=1267467759&sr=8-1

“The ADA and the EEOC” ©

Many people with chronic pain disorders, such as FM, CFID, and CMP, attempt to remain in the workforce in spite of their pain. What statistics do not show is how many of us do not utilize available resources, in part because we are unaware of what protections exist. (Excerpt, Chapter Seven)
Helpful Links https://www.thesethree.com/Helpful_Links_WXOJ.html#Legalities_and_Red_Tape

*You can review “about the book”  including the Table of Contents of Integrative Therapies…at  About the Books http://thesethree.com/About_the_Books_WPCN.html

NEWS for YOU!

Johns Hopkins Health Alerts takes a look at: ARTHRITIS: Knee Pain: An Early Warning Sign of Osteoarthritis

Osteoarthritis is the most common form of arthritis, affecting an estimated 27 million people in the United States. By age 40, approximately 90 percent of us have at least some signs of osteoarthritis continue reading.
http://www.johnshopkinshealthalerts.com/alerts/arthritis/Knee-Pain-Early-Warning-of-Osteoarthritis_6254-1.html?ET=johnshopkins:e87942:208366a:&st=email&s=W1R_120728_001

COMMENT CORNER

Christina Tina Bonafede I refer to her book [Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain] as my new health bible. I love it, it is so enlightening.

POINT TO PONDER   

Do I plan outings when I’m able?

*Additional Help Links at TheseThree.com http://thesethree.com/Helpful_Links_WXOJ.html
“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away.  Hold on tight, it's going to be quite a ride.”

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.  http://www.thesethree.com



Monday, July 9, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 7-9-12



BALANCING THE TEETER TOTTER OF CHRONIC PAIN:


"An illness is like a journey into a far country; it sifts all one's experience and removes it to a point so remote that it appears like a vision." Sholem Asch

 I am confident I have purpose.~ Celeste

*Tips for writing your own affirmations    *Tips on journaling

BLOGSPEAK BY CELESTE

Blogspeak by Celeste, Exposing the Cover Up of Myofascial Trigger Points in Fibromyalgia, Mention in CFS/ME

*Celeste’s Blogspeak Links for April and June now available.

HEALTHY HABITS

From Frugal Living for Spoonies. Housework for Spoonies

Avoid These Foods if You Have Rheumatoid Arthritis from John Hopkins

FEATURING Q&A by Celeste at Sharecare

What if my fibromyalgia causes too much pain to exercise?

How long does it take to diagnose fibromyalgia?

*Follow all answers by Celeste here.
INSPIRING MOMENTS: Giving forward momentum a shove

What Those with Chronic Pain or Illness DON’T Want to Hear You Say
Even the well-intentioned often don’t know how to talk to the chronically ill.
by Toni Bernhard, J.D.


X Rx Blog. I am in Hawaii, treating Andrew, an 11 year old boy with severe ME from Northern Ireland who has been essentially bedridden for three years. He has been seen by the best doctors in the UK and offered no work-up or treatment. He was sent to me by an amazing group of people who have started an organization called Little Acorns to help ME children get treatment Read on….

Hope in determination

ANNOUNCEMENTS

PANDORA celebrating ten years, join us as we applaud their dedicated service to helping all people with neuroendocrineimmune disorders.
Look for PANDORA and Classy Awards

Tweet sharing now available at http://thesethree.com/

If you like what you see at my website offering featured conditions, research updates, blog links, news for you on different conditions, important articles including how to write an affirmation, about FM, CFS/ME, and MPS, helpful links, about the books, and about the authors, you can now tweet it to your friends. I hope you will check it out!

IN THE NEWS

ME/CFS Orgs Push Secretary of Health Sibelius For Strategy Meeting. by Cort on July 2, 2012. [Standing together for the greater good. Don’t miss this most important article from Phoenix Rising.

Joint Request from the ME/CFS Community for Action

Confessions of a RX Pharmaceutical Drug Pusher on You Tube

The Wall Street Journal in the Lab. How old viruses may haunt us by AMY DOCKSER MARCUS

4 genes linked to migraines found

FEATURED ARTICLE

Avoiding Lockdown

ROLFING THE RESEARCH

Chung JH, Kim SA, Choi BY, Lee HS, Lee SW, Kim YT, Lee TY, Moon HS. The association between overactive bladder and fibromyalgia syndrome: A community survey. Neurourol Urodyn. 2012 Jun 5. doi: 10.1002/nau.22277. [Epub ahead of print][The presence of myofascial trigger points in the pelvic floor, including those surrounding the urethra play a role in symptoms of urgency, AND interstitial cystitis. Cc]


Jarrell J, Giambarardino MA, Robert M et al. 2011. Bedside testing for chronic pelvic pain: discriminating visceral from somatic pain. Pain Res Treat 2011:692102. “Tests of cutaneous allodynia, myofascial trigger points, and reduced pain thresholds are easily applied and well tolerated. The tests for cutaneous allodynia appear to have the greatest likelihood of identifying a visceral source of pain compared to somatic sources of pain.”
[Well of course, CPP has been correleated with myofascial pain and trigger points, a very biological condition, Cc].

*See all featured research for July here.

BOOK REVIEW

Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic [Paperback] by Hillary Johnson

This book is pivotal, interesting, enlightening and timeless regarding chronic fatigue syndrome (CFS), now also known by many as CFS/myalgic encephalomyelitis or chronic fatigue immunodysfunction.

Hillary Johnson, journalist and patient spent nine years of unremitting, scrupulous research on CFS. Osler’s Web reads like a mystery novel, as she exposes the inept attempts by the CDC to respond to epidemics and their failure to recognize the existence of what we call CFS/ME today. The mystery unwinds as she exposes the unwillingness of biomedical research to respond to the dismal picture playing out before their eyes, one of the first of many missed opportunities.

Hillary’s uncovers the medical research establishment’s breakdown in recognizing CFS/ME as a serious illness. Her account, interviews of patients, advocates, medical professionals, epidemiologist and more, covers the span of a decade, 1984 to 1994. Those who should have been protecting humankind from this unknown and little understood disease ignored the facts because they were clueless as to how to respond to such a complex disease. Today nearly two decades later, a causative agent has not been found, despite the fact that millions of people have had their lives, as they knew them, ravaged by a disease that attacks the immune system, leaving them unable to exercise or participate in activities because it makes their symptoms unbearable.

Osler’s Web gives a crucial, historic account of CFS/ME and is extraordinarily well written book. Hillary Johnson’s dedication to investigative journalism is obvious as you turn each page. If you have or suspect you have CFS/ME, "Raggedy Ann disease," or "yuppie flu," this is a book you won't want to put down. Read Hillary’s overview here.

SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010, available here.
“Brain Fog—Symptoms of Blowout before a Power Failure” ©

Stress is often blamed for many things, and rightly so. Does this mean that if we control the stress in our lives, we will be rid of the cognitive difficulties some of us suffer? According to what I’ve read about our conditions, probably not. However, learning to recognize stress stimuli and work through the experience will help us control our reactions. (Excerpt, Chapter Six)

Chapter 6 Dealing with Circuit Overload 294

Brain Fog—Symptoms of Blowout before a Power Failure 295
Time Management—An Exercise in Energy Conservation 302
Crisis Management—Dealing with Major Life Events 307
Chapter Conclusion 309
Summary Exercise: Unloading the Gray Matter 309

Also See Brainfog at http://thesethree.com/Brainfog.html
*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books

FEATURED WEBSITE OR BLOG!

Why Are So Many People Getting Thyroid Disease?  By Mary Shomon

NEWS for YOU!

Seventeen year old CFS/ME writes a letter to President Obama, July 2, 2012.

Doc Talk: Filling the Information Gap Between CFS Clinicians and Patients, by Lucinda Bateman MD, Founder, Fatigue Consultation Clinic

COMMENT CORNER

Nancy Likespizza Celeste, I love u. You're a beauty soul. Than you. Been reading more of yr book this week. Such a good reference when sick. Bless u.

POINT TO PONDER

Is there something I can do to improve my bedtime ritual?

SUPPORTING THOSE WHO SUPPORT ME

Sharecare. Q&A Health Site created by Jeff Arnold (Web MD), Dr. Mehmet Oz, Harpo Studios, SONY Pictures Television, and Discovery Communications

PANDORA
National Fibromyalgia and Chronic Pain Association
FibroLIFE
Chronic Intractable Pain and You
FibroMadness
Dr. John Whiteside
Dr. Mark Guariglia
Deirdre Rawlings, ND, PhD
Devin Starlanyl, author/researcher
Bill Douglas, author, T’ai Chi expert for Dr. Andrew Weil, book endorsement for Integrative Therapies
Jeff Miller, PhD, co-author

and

The many others who share information, support our books, and promote the philosophies of this newsletter.
*Additional Help Links 


“When we empower ourselves with knowledge, not even one iota of what learn
the hard way can take it away. Hold on tight, it's going to be quite a ride.”

All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice. http://www.thesethree.com

Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD

Monday, July 2, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity 7-1-12


 
BALANCING THE TEETER TOTTER OF CHRONIC PAIN:

"A feeling of aversion or attachment toward something is your clue that there's work to be done."
-Ram Dass

 “It’s my personal obligation to see prospects for improvement when I’m faced with hardship.” ~ Celeste

 *Tips for writing your own affirmations http://thesethree.com/Key_to_Affirmations.html


BLOGSPEAK BY CELESTE

Website’s Featured Article for July 2012 - Systemic Lupus Erythematosus
https://www.thesethree.com/Lupus__SLE_.html
June 2012 Blogs
  • Are your drains clogged? – Lymphatic Massage (here)
  • Thyroid, what have you done to me now? (here)
  • A Thief in the Night: Is pain robbing you of love? (here)
  • Plumping up our prunes, sinusitis in Fibro and CFID. (here)
*Celeste’s Blogspeak Links for April and June now available. (here) 

 
HEALTHY HABITS

Breathing with Dr. Weil
 
FEATURING Q&A by Celeste at Sharecare 
  • How do I manage fibromyalgia on a daily basis? (here)
  • Can pregnancy cause fibromyalgia? (here)
  • Is Fibromyalgia Related to Restless Leg Syndrome? (here)
*Follow all answers by Celeste at http://www.sharecare.com/user/celeste-cooper/answers

INSPIRING MOMENTS: Giving forward momentum a shove

 
Eight Things I learned from Pain via Kate Bartolotta (here)

 
ANNOUNCEMENTS

 
P-A-N-D-O-R-A making a difference for you. June 11, 2012

DSM-5 Task Force American Psychiatric Association

1000 Wilson Boulevard Suite 1825
Arlington, VA 22209
Members of the DSM-5 Task Force, view letter here
Look for PANDORA and "Classy Awards" (here)

 
Interesting patient comments on the CFSAC committee meeting at the Phoenix Rising forum

IN THE NEWS

 
Researcher Calls For Expansion Of Programs To Identify Potential Drug Abusers And Protect Pain Patients. (here)
Interstitial cystitis: A current guide 
to diagnosis and treatment. Lindsey A. Miller, MSBS, PA-C. (here)

 
FEATURED ARTICLE

July’s http://thesethree.com/ website feature Systemic Lupus Erythematosus
 
ROLFING THE RESEARCH
 
Chang CM, Warren JL, Engels EA. Chronic fatigue syndrome and subsequent risk of cancer among elderly US adults. Cancer. 2012 May 30. doi: 10.1002/cncr.27612.[This study suggests a correlation in cellular immune dysfunction and cancer, which may only include a subset of CFS patients. Cc]

 
Häuser W, Jung E, Erbslöh-Möller B, Gesmann M, Kühn-Becker H, Petermann F, Langhorst J, Weiss T, Winkelmann A, Wolfe F. Validation of the Fibromyalgia Survey Questionnaire within a Cross-Sectional Survey. PLoS One. 2012;7(5):e37504. Epub 2012 May 25. Further validation studies of the FSQ in clinical and general population settings are necessary. [Germans testing the validity of the Preliminary Diagnostic Criteria for diagnosing Fibromyalgia.  I have concerns regarding not addressing some unresolved concerns.  More testing of this tool is indicated, and of course, I would like to see someone address the plethora of research that suggests the comorbidity of myofascial pain syndrome. Cc] 

*See all featured research for July at https://thesethree.com/Featured_Research.html 

BOOK REVIEW
 
Breaking Thru the Fibro Fog: Scientific Proof Fibromyalgia is Real by Kevin White, MD, PhD
Dr. Kevin White does a magnificent job providing scientific fact that fibromyalgia is a very real and disabling disorder. He speaks to two audiences the patient and the healthcare community. Though he is a clinician and researcher you wouldn't believe he didn't have fibromyalgia himself. To have such insight as a practitioner is a gift to those for whom he advocates. He has an innate ability to make the reader anxious to hear more about science, which is usually pretty boring reading. No difficulty keeping me tuned in, other than my own disparity of the side effects of having fibromyalgia.
 
SNEAK PEEK (Find the book here Cooper & Miller, Healing Arts Press: Vermont, 2010 )   
“The Blues” © 

This could be a reaction to an event, a death of someone not extremely close, a loss, or bad news, such as an unwelcome diagnosis or test results. If you’ve ever lost a beloved pet, you understand this completely. (Excerpt, Chapter Five)
*You can review “about the book” including the Table of Contents of Integrative Therapies…(here)  

FEATURED WEBSITE OR BLOG!

My dear friend and mentor, who so kindly wrote the foreword to our book now has a group on Facebook. She will offer invaluable support. In healing, harmony and hope, Celeste

Utube on CFS
 
NEWS for YOU!

Can where you live affect joint pain from Dr. Mehmet Oz. (here)

COMMENT CORNER
 
Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection is recommended reading by author Devin Starlanyl,  http://homepages.sover.net/~devstar/bibcopin.htm
 
POINT TO PONDER

 
What motivates me?

 
SUPPORTING THOSE WHO SUPPORT ME

Sharecare Q&A Health Site created by Jeff Arnold (Web MD), Dr. Mehmet Oz, Harpo Studios, SONY Television, and Discovery Communications
P-A-N-D-O-R-A
National Fibromyalgia and Chronic Pain Association
FibroLIFE
Chronic Intractable Pain and You
FibroMadness
Dr. John Whiteside, Australia
Kevin White, MD, PhD, Canada
Dr. Mark Guariglia 
Deirdre Rawlings, ND, PhD
Devin Starlanyl, author/researcher who wrote the forward to Integrative Therapies....
Bill Douglas, author, T’ai Chi expert for Dr. Andrew Weil, book endorsement for Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connection.
Jeff Miller, PhD, co-author
and
The many others who share information, support our books, and promote the philosophies of this newsletter.
*Additional Help Links at TheseThree.com http://thesethree.com/Helpful_Links_WXOJ.html
 
“When we empower ourselves with knowledge, not even one iota of what learn
 the hard way can take it away. Hold on tight, it's going to be quite a ride.”

 

Celeste's Website

Celeste's Website
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