12 Months and 14 Fibro Musings by The Pained Ink Slayer

As fibromyalgia awareness month winds down, I am reminded of all the wonderful work of advocates and fellow bloggers. However, this month is a difficult one for me personally, because I also have chronic migraine; and the unstable atmosphere of spring weather is a trigger I cannot control. Fibromyalgia and its partners can be more than a physical challenge. For instance, a special PAINS-KC meeting I looked forward to attending was side railed because of what would end up being a 14-day status migrainosus. And, I can’t remember doing an interview for May awareness that I did not have migraine. Unintentionally, this introduction is also a segue to June headache and migraine awareness month, stay tuned.

What I write is rooted in my personal quest for help. I have learned to forgive myself for the things I can’t control and to embrace adversity. I realize that good days for others are spectacular to me. I hope you find something that is helpful for you.

Note: For future reference, archived blogs are in the right column of this page, Celeste’s freelance articles are in the header tab Celeste’s Publications, and this particular blog will be linked in the header tab Fibro Musings.

  

Just published! 7 Tips for Reclaiming Control over Fibromyalgia

Ways we can manage the effects of fibromyalgia on our central, autonomic, metabolic, and immune systems…

9 Reasons Tai Chi Reduces Pain and Promotes Health

Explore the types and benefits and practices tai chi, dubbed “medication in motion” for those of us living with chronic pain…

Fibro-mates, GI Disturbance, and Hypnosis

There is a well-documented bidirectional pathway between the brain and gut. Read about fibro-mates, IBS and GERD, and evidence on supportive therapies of the mind…

​Pitfalls and Pleasures of Therapeutic Massage for Fibromyalgia and Myofascial Pain

Determining the most beneficial type of therapeutic massage or bodywork relies on our understanding of the differences between fibromyalgia and myofascial pain syndrome. What massage techniques can help?...

Science, Fibromyalgia, and Exercise

What type of movement is showing promise for managing our fibromyalgia? You might be surprised to see the recent evidence…

Does Rare Disease—EDS—Plague Fibromyalgia?

Fibromyalgia and EDS (hEDS = EDS hypermobile type) share connections you might not have considered…

3 Tips for Reducing Stress in Fibromyalgia

What you may not know about your symptoms, stressors, and management tools…

Myofascial Pelvic Pain in Men and Women with Fibromyalgia

About the male and female fibromyalgia pelvis, pain and the myofascia, diagnosis to treatment…

Update: Fibromyalgia FM/a Blood Test and EpicGenetics Landmark Clinical Research

Genetic studies on fibromyalgia are underway with the assistance of the University of California, UCLA, and University of Illinois at Chicago using the FM/a blood test to identify participants.

Fibromyalgia and Thyroid Dysfunction

Thyroid problems can co-exist with and/or sometimes mimic fibromyalgia, the science, medicine, and awareness...

Lymphatic Massage, Clogged Drains and Fibromyalgia Pain

To understand why manual lymphatic massage is beneficial for those of us with fibromyalgia, we must first understand how it works.

The Lessons of Myofascial Pain Syndrome and Fibromyalgia

Why does myofascial pain become chronic? What causes the chronic pain of fibromyalgia? Does myofascial pain sustain fibromyalgia pain? Difference between a trigger point and tender point, and more...

Casting Light on the Shadow of Fibromyalgia: Finding the cause

The FDA "Voice of the Patient", getting unstuck, the biology of body matter, immune cells, and noteworthy news...

It’s a Battlefield: Bruising and Fibromyalgia

Are your arms and legs like battlefield magnets? Do your extremities look like a world atlas? For those of us with fibro, there might be an explanation to why that is.

Criteria and Chaos: Diagnosing Fibromyalgia

Disparity, agreements, 2016 Revisions to the 2010/2011 Fibromyalgia Diagnostic Criteria appear to address previous concerns, and now conclude...

Don’t miss:

The Pain Advocate’s Corner: How to Raise Your Voice

(also permalinked in the header tab of The Pained Ink Slayer).

“To unleash victory, I must have an open mind and willing heart,

judge not, embrace change, and be a steadfast observer of self.”

In healing,

Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!

http://www.CelesteCooper.com

~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others. 

Lymphatic Massage, Clogged Drains and Fibromyalgia Pain

In 2015 investigators Yuan SL, Matsutani LA, and Marques AP noted lymphatic massage as the most helpful type of massage for fibromyalgia. So what is lymphatic massage and why is it important to our health?

The lymph system

To understand why manual lymphatic massage is beneficial for those of us with fibromyalgia, we must first understand how it works.

Courtesy PrintableDiagrams.com via Google

The purpose of our lymph system is to maintain fluid balance in our body’s tissue. Lymph vessels carry lymph fluid around our body and through our lymph nodes where cellular trash is filtered and collected. Special blood cells, called macrophages, then digest the cellular debris before recycled lymph fluid is returned to circulation as plasma, the liquid part of blood.

Unlike our blood circulation, our lymph system is passive. This means circulation of lymph fluid depends solely on contraction of surrounding muscles during exercise, body movement, deep breathing, and properly functioning organs. When movement is disrupted, excessive lymph accumulates leading to swelling, called edema, and a buildup of toxins in our tissue. 

As a nurse and a patient, I know the important role of the lymph system. I have idiopathic edema—a fancy way of saying “yes, you are swelling, but we don’t know why”. In 1994, Deodhar AA, Fisher RA, Blacker CV, and Woolf AD concluded that rheumatologists should be aware of fluid retention syndrome and fibromyalgia. I couldn’t find any recent data on this. But, I suspect this type of swelling in fibromyalgia could be due to immune system dysfunction as identified by the FM/a® blood test. Because of this long-standing issue, I had to get creative when recovering from skin cancer surgery on my leg. I knew I needed to optimize my already damaged immune system so I could heal.

For any number of reasons, our lymph system sometimes needs help to reduce swelling. That’s where lymphatic massage comes in.

What is lymphatic massage?

Lymphatic massage, also known as Vodder Lymphatic Massage, was pioneered by Dr. Vodder it in the 1930’s for treating chronic sinusitis and other immune disorders. The therapist manipulates the body externally through massage, which opens lymphatic ducts and helps reduce stagnation and generalized swelling. Lymphatic massage encourages the flow of lymph fluid through muscles and tissues and into the lymph system for circulation. 

Manual Lymph Drainage (Vodder Technique) massage requires special training. You can find a therapist at Dr. Vodder School of International.

*There are some health conditions where massage should be avoided.

Additional reading:
Exercise and the Forgotten Lymph (from my website)

Leg Circulation, Skin Cancer and My Second Pump?

BODY-WORK: The Anatomy’s’ Labor of Love

In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN

Author—Patient—Freelance Writer at Health Central & ProHealth —Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  

Leg Circulation, Skin Cancer and My Second Pump: Another Three?

The first week in January, I had a squamous cell skin cancer removed from the inside of my foreleg. You could nearly drop a marble in the hole when the cancerous tissue was removed. A vertical incision was done so the edges would come together for healing. Unfortunately, it did not stay that way. I developed blisters, sloughing, excoriation, and eventually an open and deep wound.

Healing Stages

Healing with chronic illness

The surgeon asked me if I had other medical problems besides having thin skin, a history of cellulitis, Raynaud's, and idiopathic edema. Other than having Hashimoto’s, fibromyalgia and ME/CFS I didn’t have an explanation, I didn’t have an explanation. I don’t know if I will ever know why my body reacts this way. I do not take a medication that would cause skin thinning, poor healing or easy bruising. I wonder if the immune factors elevated in my FM/a test might play a role. But, whatever it might be, I needed to manage this wound successfully. As a nurse, I knew it was going to take time and careful attention.

Stagnation and movement

I was sedentary with my legs elevated for two months, and it was grueling. I knew the importance of keeping blood and lymph moving and this is a perfect example of why I write about it. Lack of movement was not only detrimental to my leg healing, it also caused my fibro, arthritis, and myofascial pain to flare. I had to find a way to get the blood and lymph moving for my general health and for this leg!

The second heart pump: a win-win motivation spin

In my search I found many ways to keep circulation chugging along like the little engine that could. Most I already knew but none was as motivating as thinking of my legs as a second heart pump. It made it easy to include mindfulness and visualization with movement and help with mind/ body balance.

*These movement strategies are also helpful for restless leg cramping and more.

Dr. Sam Robbins’ You Tube video gives relatable information on how our legs, as a second heart pump, are important to our health. He gives us three valuable exercises that no doubt help with healing. Once I was able to start my daily walk again, my leg wound began to heal at a faster rate.

A plan

So, how did I go about moving while tethered to a chair?

·        Exercise on the hour.

·        Three repetitions. The number three is my start-low and go-slow strategy. Repetition is not my friend because of myofascial trigger points. So when I progress any routine, I increase the frequency, not the repetitions. Maybe that doesn’t work for you, but whatever you prefer, the goal is to stay movement motivated.

·        When up to the bathroom, I swung my leg back and forth and kicked the air while holding onto something. The “pumping” motion helped return blood and lymph back into circulation. Dr. Robbins inspired me with his information on “rebounding”, which works something like bouncing does for astronauts.

·        In the chair, I did leg lifts, bicycle peddling, flexing and extension of my ankle, etc. These are essential elements for those of us with leg circulation problems. 

This has been a great learning experience for me. Sure, I wouldn’t ask to have this happen again, but it did happen. I practice T’ai Chi, but the conscious awareness I now have for my second heart pump has added a new meditative movement that will help all of my leg problems and I hope sharing my story will do the same for you.

“When confronted with challenge,

I discover my inner strength.”

Celeste Cooper,

Broken Body, Wounded Spirit: Balancing the See-Saw of Chronic Pain, Spring Devotions

In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN

Author—Patient—Freelance Writer at Health Central & ProHealth —Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All answers and blogs are based on the author's opinions and writing and are not meant to replace medical advice.