Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Saturday, May 29, 2021

Accepting Our Limits While Exploring Our Passion

 

Courtesy Celeste's Photography

ACCEPTING OUR LIMITS

As people who live with chronic pain and illness, we know the importance of identifying our limitations and learning to work within our boundaries. These coping impositions and repositions mostly affect our physical capabilities and our abilities to perform certain tasks.  We talk about Measuring Limits” in our book Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-body Connection. (Cooper, C and Miller, J, 2010


Regardless of courage or decisiveness, your first task is to accurately assess your ability today. You need an objective measure for determining if this is a “terrific” or “semi-terrific” day... Every day you should spend all your available energy pennies, but not one more. One extra penny of effort today will cost a dollar tomorrow. Make daily deposits in your well-being bank... At the same time, you need to do a balancing act with your unconscious process of self-accommodation and deceit, the permission we give ourselves to loaf, stall, or nonperform. This tendency to give up prematurely, surrender to dread, to drop our own ball at the first sign of difficulty is universal. That’s right, universal. Everyone knows the decision to let the Frisbee pass without diving to try to catch it... The key point is that the one judging is also guilty

at some time.

 

Who we are is more than the body or the personality.

Ram Dass

 

It is equally important to explore what we can do. In Broken Body, Wounded Spirit: Balancing theSee-Saw of Chronic Pain Spring Devotions,  we call this Optivity."

 

Optivity (our word for envisioning positive thought, word, and deed) empowers us to balance the four-seated teeter-totter we talk about throughout this series. Each seat, which makes up our teeter-totter, represents physical, emotional, mental, and spiritual elements of who we are as a total package, and it is based on - and inspired by - the wisdom of the Native American Medicine Wheel. Each seat should be equally off the ground with the same weight and attention.

 

EXPLORING OUR PASSION


There are many ways to become full of life in thinking. We can be present in our compassion for others, be active in mindfulness, and look at things from a different perspective. These things help us broaden the boundaries of not too much, yet enough. It allows us, gives us, permission to explore our hidden talents. For instance, I learned that writing poetry allows me to immerse myself in learning new words and new ways to express something I find interesting. It gives me a different perspective that takes me to a place where I can put my pain or current health issue in the backseat.  It was really fun and rewarding to write this poem.

 

The Promise of Like ©
 
I like camping, picnics, mountains with streams,
Invading my space and into my dreams,
Loony family, self, friends, and birds,
Even failing to speak with words.
 
Fortune to learn, watching children at play,
Scenery, lakes that reflect on the day,
Cakes, spirituality, flowers, a good book,
And cactus that winks with a funny look.
 
Mixed sun, rain, fall, a cloud that churns,
Laughter, antiques, Hummel’s and urns,
Gentle music, dogs, sea horses and cats,
Wildlife inspires me, even the bats.
 
I like promise and hope, flowers I like.
I like beginnings and endings, I just like.



I wrote this poem from a random list of things I like and found a stirring of many passions I might not have thought of otherwise.  Maybe you will try it.


In healing

Think adversity?-See opportunity!

The Pained Ink Slayer



~ • ~ • ~ • ~ • ~ • ~



Additional Reading:  

Wednesday, March 14, 2018

Pained Ink Slayer Series: Mindfulness and Chronic Pain



Delicate Strength©  Celeste's Photography


Coping strategies can vary among each of us. I write and advocate as a way of coping. I am open to learning anything that will help me avoid the pitfalls of negative thinking and one of those is to live in the moment, to be mindful.

FOCUS

When things seem out of perspective, I realize the importance of focusing, living in the moment, being aware of my surroundings, and giving my body the loving care it needs. Mindfulness is a learned ability to live in the moment without judgment or fret over intruding thoughts. It’s about visualizing details without becoming emotionally involved. For instance, to breathe mindfully is to use all my senses, the sound and feel of air traveling over passageways, the smell of my surroundings, and I can see the crisp air of fall because of my breath. I realize the beauty of a flower is the sum of its minute detail, aspects that can only be captured by getting close. If I am lucky, I will catch a honeybee sipping on its sweet nectar. I would never get that snapshot if I let fear of being stung overcome my desire to capture the moment.

___________________________________________________________________________

Mindfulness is about being fully awake in our lives.
It is about perceiving the exquisite vividness of each moment.
~Jon Kabat-Zinn, Molecular Biologist, University Teacher, Writer, and Physician

___________________________________________________________________________


It takes practice, but we can learn to be mindful of our pain without judging it. After all, it is our body crying out for attention, love, and caring, not ridicule and disturbing dialogue or worry. Denying the reality of it or catastrophizing it will only make it worse. So, why not use pain as a teaching tool for focused redirection creating an environment that helps us live fully.​

WATCH OUT, CHANGE AHEAD

Mindfulness reduces stress, anxiety, and depression, and promotes relaxation. This is extremely important to those of us living with chronic pain because we unconsciously assume postures and hold muscles in an effort to guard against pain. Only when we become aware can we train ourselves not to react to it emotionally. Over time, we recognize the powerful energy mindfulness has in our lives and change happens. Will mindfulness make the disease that causes our pain go away? No, but it certainly changes our perception in the moment.

BEING MINDFUL

From our book, Broken Body, Wounded Spirit: Balancing the See-Saw of Chronic Pain, Summer Devotions edition©:

·        Take a couple of deep breaths.
·        Focus on the colors, shapes, smells.
·        Identify and release thought projects. 
·        Appreciate that your mind is clear.
·        Fill it up with the present moment.
·        Enjoy being present

___________________________________________________________________________


Living mindfully promotes awareness, acceptance,
lenience with self and others, and tolerance of change.

___________________________________________________________________________



Get as comfortable as possible in a place where you can keep distractions at bay for about 20 minutes.

1.     Begin by doing a body check for discomfort, numbness, weakness, or pain. Without judgment, color each area with a hue that reflects the disease you feel. I (Jeff ) use orange for aches, blue for numbness, grey for weakness, and red for acute pain. If you are aware that a disease will occur if you move, or don’t move, add it in as if it were already present. Whatever system of ouchies and colors you pick will work just fine.
2.     Begin breathing as deeply as practical and keep the body map in your mind’s eye. Accept this map as “where we start”.
3.     With every breath note the intensity of the colors fading a bit. Note how some colors fade quickly, some more slowly, some completely, others less so. Which might change and in what way? Focus on the colors and how they shift. As your mind wanders off task, bring it back gently to breathing and observing.
4.     When you sense the fading has reached its peak, begin visualizing warm, gentle rain that blurs the colors beautifully like a soft watercolor painting. Enjoy what you have created; residual pain is always interesting.
5.     Close by affirming your intention to observe and learn from these sensations

There are many good books and many stress reduction programs available on mindfulness and meditation; I have a repertoire of them. One of my favorites is Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness by Jon Kabat-Zinn. In my meditation playlist, I have guided meditation and mindfulness exercises by Deepak Chopra and music like Meditation Movement from Charles Lam, which encourages me to get up and rock out some T’ai Chi, another favorite coping mechanism of mine.

Additional reading:
Making the Best of AFFIRMATIONS by The Pained Ink Slayer
Pained Ink Slayer Series: Avoiding Lockdown


In healing,
Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!




“Listen closely; I hear the sweet sound of existence.”


~ • ~ • ~ • ~ • ~ • ~

Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  



Friday, February 16, 2018

Making the Best of AFFIRMATIONS by The Pained Ink Slayer



Celeste’s Photography in Spring Devotions©

                                      
“Words of affirmation are powerful.
Words change lives; words and ideas change the world.”
― Bryant McGill

Affirmations are powerful. They tweak perceptions and provide light in the darkness of chronic pain and chronic illness. Following are tips for writing these personal tidbits that promote positive direction.

HOW AND WHY AFFIRMATIONS WORK


A study in March of 2017 investigated “whether patients’ expectation to pain reduction was associated with pain intensity after morphine treatment in opioid treatment-naïve patients with various types of cancer.” What they found is important to understanding how our perceptions affect our ability to cope. Patients with high expectations that morphine would ease their pain had a significantly lower pain intensity experience. Measurable evidence in this study supports the notion that when we expect good, we do better. And that's where affirmations come in. Changing our internal dialogue can have a powerful effect on the way we cope with pain. 

WHAT AFFIRMATIONS DO

·        They encourage positive thinking.
·        They help us express our gratitude.​
·        They present us with purpose.
·        They incite change.
·        They create positive self-awareness.
·        They set examples.
·        They touch our spirituality.
·        They empower us.
·        They connect us to all living things.

EXAMPLES OF AFFIRMATIONS

·        I have no duty to be perfect.
·        I always have options.
·        I am not my mistakes.
·        This is a learning experience.

A few of my personal affirmations

·        Let my spirit be filled with the melody of joy.
·        I embrace detours; they take me to undiscovered places.
·        If I listen closely, I hear the sweet sound of human interaction. 
·        I am sick, I am sexy, I am sixty-ish; I am a scud missile; don't mess with me.
·        I choose my words well and create a voice for the benefit of others.

TIPS FOR WRITING YOUR OWN AFFIRMATIONS

·        Write them as thought they are happening now.
·        Affirm what you want.
·        Keep them short and easy to remember.
·        Keep your favorite affirmations written where you can see them frequently.
·        Personalize them with words such as, I, my, me.
·        Start with thought provoking words that you typically use in your daily life and focus on the goal.
o   I am...  
o   I hear...
o   I see…
o   I feel…
·        Make it positive with words like:
o   grateful
o   smile
o   thank
o   forgive
o   inspire
o   promote
·        Put motion to them with verbs:
o   create
o   do
o   make
o   give
o   follow
o   seek
·        Commit yourself to one affirmation at a time and read it frequently.


* If you have favorite quotes, pick key phrases that bring you in and write it from your personal perspective.

"Defeat is a possibility of try, but to quit scars the soul."
Celeste Cooper, Fall Devotions

​Grab your pen, pencil or keyboard NOW!


Additional Reading:


In healing,
Celeste Cooper, RN / Author, Freelancer, Advocate

Think adversity?-See opportunity!



~ • ~ • ~ • ~ • ~ • ~

“To unleash victory, I must have an open mind and willing heart, judge not, embrace change, and be a steadfast observer of self.”
  
Learn more about Celeste’s books here. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.


All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  

Sunday, October 15, 2017

Your Life/My Life with Chronic Pain #MakeItVisible


Throughout the month of October the U.S. Pain Foundation is teaming up with Healthline to bring awareness to invisible illness. The request: share a photo or video on Instagram with the #MakeItVisible hashtag and make your chronic condition visible. For every submission, Heathline will donate $5 to U.S. Pain Foundation.



The following are excerpts from an interview I did for Melissa Swanson and the National Fibromyalgia and Chronic Pain Association.

My life before fibro was not without pain. I had my first cystoscopy at age five, and I have had migraines and irritable bowel syndrome (IBS) since puberty.

During my school years, I ran track, bowled on a team, and played intramural volleyball. As a young adult, I was a competitive racquetball player and instructor, and a competitive downhill skier. [All my life] I enjoyed physically active sports. Having joint hypermobility, I experienced some significant soft tissue injuries, [but] I thought I was invincible, and I wanted to fit in. It never occurred to me that what I experienced—muscle symptoms and recovery time, feeling sick to my stomach after activity—was anything different from my peers.

I worked all my life with chronic pain, but it wasn’t until my brain turned to mush that my life really changed. I knew I would not be able to continue my nursing career or continue my work as a Legal Nurse Consultant… By age 50, I had to face a harsh reality. {As] I walked out those hospital doors for the last time as a healthcare provider, I had no idea what was ahead of me. I only knew what I was leaving behind. I was terrified. 

Melissa is founder of Fibro Warriors Living Life and author of Ravyn’s Doll: How to Explain Fibromyalgia to Your Child. You can read the entire interview here.

What I have learned from interviewing others is that my story is not unique. We all struggle with the stigma associated with invisible illness, especially chronic pain. Discrimination against certain groups of people, women being one, is increasing, not diminishing. I write about this in my Health Central article, Women, Bias, Discrimination, and Chronic Pain. And labels affect everyon as I share in my ProHealth article, Pain and Prejudice: Surviving Fibromyalgianess. Discrimination against those of us living with chronic pain doesn’t stop there either. Many patients are not only forced to live with the stigma of chronic pain, they are also suffering physically as the opioid crisis grows. Last resort medications are being withdrawn. Some patients are forced into withdrawal, and the suicide rate is growing because of untreated pain. Pain warriors are now living in exile. It’s time for the tide to turn, but it won’t happen unless we…

#MakeItVisible

Healthline is encouraging us to share our story. Help the world understand that we might be battling chronic pain and/or illness even though we don't always look sick.

In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.

All blogs and comments are based on the author's opinions and are not meant to replace medical advice.  





Thursday, June 29, 2017

Musings of Pain from Celeste – Part One


As many of you know, my husband and I spend as much time as possible enjoying nature. I personally use this time to reflect on things that bring me peace, which is especially helpful during difficult times. Spending time in the forest allows me to immerse myself in the things I enjoy, photography and writing.  I find the simplicity of life's treasures to be the most comforting.

What a privilege to have wonderful people like you who support my writing. Without knowing it, you lift me up and for that, I am grateful.



A Sampling of Musings from Celeste - Part One

·        When Fibromyalgia Is More than Pain        
·        Chronic Pain and Medicine Philosophy Cornucopia - Slide Show
·        Rolfing – The Most Up-to-Date Info from Expert, Ann M. Matney

And more …


“There is nothing to writing. All you do is sit down at a typewriter & bleed.”
~ Ernest Hemingway



In healing,,Celeste

"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate


Celeste’s Website: http://CelesteCooper.com

Wednesday, February 22, 2017

Take Action NOW if you are a Medicare or Medicaid Patient taking Opioids for Pain


CMS to make CDC "Opioid Guidelines" policy

Friday
MARCH 3, 2017

As stated in my article Count Down 2016 – CDC Opioid Prescribing Guidelines and Chronic Pain, there are drastic differences between a policy and a guideline. Is the CDC acting in good faith? Why are the Centers for Medicare and Medicaid Services (CMS) morphing a guideline into a policy, potentially putting millions of taxpayers in harm’s way? They have not been properly represented. Is CMS aware that the CDC did NOT consult with all stakeholders or do an in-depth literature review or follow any of the other policy procedures set by our government? My biggest fear is that the CMS is basing their decisions as though the CDC guidelines are already a policy. They are assuming the statistics they received are unbiased. See Why should we hold the CDC accountable?

The following is an excerpt of an article written by Rick Martin, Guest Columnist for Pain News Network. You can find his letter here. Please comment to the Center for Medicare and Medicare Services.

Change takes work if the pain community is going to stop the Centers for Medicare and Medicaid Services (CMS) from making the CDC’s opioid prescribing guidelines mandatory for millions of Medicare patients, including a ban on daily doses higher than 90 mg morphine equivalent (see “Medicare Planning to Adopt CDC Opioid Guidelines”).

We don’t need CMS and the insurance industry dictating what medication a physician can prescribe for pain or the appropriate amount of medication needed (see"Insurers Behind Medicare's 'Big Brother' Opioid Policy").

Rick asks that we share with at least 10 people and ask them to share with ten more. I decided to share my letter with everyone in my social networks via this blog. Surely, ten of my many friends will keep the ball rolling. Rick gives his permission to use his letter, and you are certainly welcome to use mine.

---Begin---

CMS at this email address: AdvanceNotice2018@cms.hhs.gov

Subject line: CMS Disregard for Governmental Standards in Policy and Procedure-Putting Patients in Harm's Way

To Whom It May Concern:

Let the record show that I, Celeste Cooper, oppose the Centers for Medicare and Medicaid Services’ plan to align its policies with the CDC Guideline for Prescribing Opioids for Chronic Pain. The “Guidelines” did not go through the required process for policy development, and many feel they are biased. We as citizens, taxpayers, and people living with chronic pain were not represented fairly, nor was ALL the literature reviewed or processes followed that were put in place to protect consumers from the consequences of prejudice.

“Guidelines” give physicians and other licensed prescribers the discretion in determining what is right for their patients. However, your policy as presently drafted will make the guidelines mandatory for doctors, patients, and pharmacists. And, what are the provisions for end-of-life and cancer pain?

On June 1, 2016, Dr. Debra Houry, Director of the CDC’s National Center for Injury Prevention and Control, wrote the following:

“The Guideline is a set of voluntary recommendations intended to guide primary care providers as they work in consultation with their patients to address chronic pain. Specifically, the Guideline includes a recommendation to taper or reduce dosage only when patient harm outweighs patient benefit of opioid therapy. The Guideline is not a rule, regulation, or law. It is not intended to deny access to opioid pain medication as an option for pain management. It is not intended to take away physician discretion and decision-making.”

Why would the Centers for Medicare and Medicaid Services (CMS) try to adopt a guideline as a policy? This has the potential to put millions of taxpayers in harm’s way, because they have not been properly represented.

Advocates have shared their concerns over favoritism in the drafting the CDC Opioid Prescribing Guidelines of favoritism in drafting the CDC Opioid Prescribing Guidelines. (See links to reports below.) My biggest fear is that you, the CMS, are basing your decisions as though the CDC guidelines are already a policy that has met the standards of law. You are assuming the statistics reported in the CDC Opioid Prescribing Guidelines are unbiased.

Can you in good conscience implement a guideline as policy when it has not met the test set forth by our government, for and by the people?

Sincerely,

Celeste Cooper, RN, advocate, Medicare person living with chronic pain


Reports:

American Academy of Pain Management Statement to the CDC on the Opioid Prescribing Guidelines
Richard Martin, RPh, U.S. Department of Health and Human Services, June 1, 2016 pdf
https://static1.squarespace.com/static/54d50ceee4b05797b34869cf/t/578e661603596e40a74db59e/1468950040230/Houry+letter.pdf  (accessed thru Pain Network News, CDC: Opioid Guidelines 'Not a Rule, Regulation or Law'
A Former Federal Peer Reviewer’s Analysis of the Draft CDC Guidelines, National Pain Report
Congress Investigating CDC’s Opioid Guidelines by Pain Network News
Shared at the Addiction Treatment Forum
Congress Investigating CDC’s Opioid Guidelines

---End---

BCC:
U.S. Pain Foundation:  contact@uspainfoundation.org 
National Fibromyalgia and Chronic Pain Association info@fmcpaware.org
American Chronic Pain Association:  acpa@theacpa.org  
Alliance for Balanced Pain Management:  info@alliancebpm.org

I also sent a copy to my senators and legislator., which had to be done on their contact form.

Find your senator https://www.senate.gov/
More links can be found on my website via http://www.celestecooper.com/advocate.html

In healing,,Celeste
"Adversity is only an obstacle if we fail to see opportunity."

~ • ~ • ~ • ~ • ~ • ~

Celeste Cooper, RN
Author—Patient—Freelance Writer at Health Central & ProHealth Advocate

Celeste’s Website: http://CelesteCooper.com

Learn more about Celeste’s books at her website or find links here on Celeste's  blog. Subscribe to posts by using the information in the upper right hand corner or use the share buttons to share with others.


Celeste's Website

Celeste's Website
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