My neighbor lived with fibromyalgia and chronic fatigue
syndrome for 34 years, but despite it, she still enjoyed the outside; planting
flowers, feeding the birds, fishing, and going to the casino. However, the past
three years she stopped. Her chair
became her home. She stopped cooking
“real meals.” She spent day and night in
her chair. Little by little she lost her ability and her will to do the things
she loved. Her body began to wither; she
lost all muscle tone and strength. She
succumbed to her pain and disabilities; she had lost her will to fight.
She too experienced the cycle ~we all know so well ~ pain,
no sleep, depression; more pain, less sleeping.
This pain that I am experiencing today, she was experienced every day. I
understand why she felt like giving up. I know that when I hit a flare, I don’t
want to move or eat. I forget and let the anxiety of the fog and pain take over
my mind and body. It takes sleep, food and physical movement to help me get
through it.
What do you suppose is on my friend’s death certificate?
Despite her long history, do you think it reads complications due to fibromyalgia,
CFS, or depression?
Cause of death “myocardial infarction,” HEART ATTACK.
Could her death have been prevented? Maybe not, but her final years could have been spent with hope, not despair. Depression is a side effect of living with chronic pain and illness, and in my friend’s case, the biggest obstacle, the least understood, fibromyalgia and chronic fatigue syndrome.
We must raise awareness; we must not let one more person succumb because of ignorance that threatens to rob one of their self esteem including, family and friends, and even healthcare providers.
Can we make it our New Year’s resolution to do that? Can we encourage one more person not to give up the fight? Yes we can, it’s called hope.
Will you join me today?
You can follow Melissa here:
Melissa's blog here. Http://survivingwithfibro.wordpress.com
Facebook page here.
Twitter here.
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All answers and blogs are based on the author's
opinions and writing and are not meant to replace medical advice.
Celeste Cooper is a retired RN, educator,
fibromyalgia patient, and lead author of the Broken Body Wounded Spirit:
Balancing the See Saw of Chronic Pain devotional series (coauthor, Jeff Miller
PhD), and Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and
Myofascial Pain: The Mind-Body Connection (coauthor, Jeff Miller PhD) She is a
fibromyalgia expert for Dr. Oz, et al., at Sharecare.com, here, and she advocates for all chronic pain patients as a participant
in the Pain Action Alliance to Implement a National Strategy, here. You can read more educational information and about her books on
her website, http://TheseThree.com
