tag:blogger.com,1999:blog-3069533709334209690.post2958920662511585967..comments2023-12-01T00:19:28.295-08:00Comments on The Pained Ink Slayer: Are we judged by the company we keep? My correspondence with Dr. Frederick WolfeThe Pained Ink Slayerhttp://www.blogger.com/profile/09495729147432131238noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3069533709334209690.post-42431215791702833542014-06-09T14:43:24.870-07:002014-06-09T14:43:24.870-07:00Leslie, the symptoms of hemochromatosis could be m...Leslie, the symptoms of hemochromatosis could be mistaken for many things. You are absolutely right, it should be considered by the physician and ruled out any time a patient expresses symptoms of joint pain, weakness and fatigue. Is it? Probably not. This is exactly why we need a biomarker, despite some rheumatologist telling me a biomarker is not necessary. Dr. Gillis has done a follow up study on the FMa/test that will be published soon. The test was found to be 93% accurate in diagnosing FM compared to other autoimmune rheumatological disorders. <br /><br />We can say the same for thyroid disease and FM and CFS/ME. Specific blood work for autoimmune thyroiditis, which is being studied in relationship to FM, is not done. I happen to be one of the patients that fell through the cracks. Low dose levothyroxine got me out of bed.<br /><br />Thank you for sharing, and I hope patients, myself included, will make sure their doctor has checked them for hemochromatosis. The problem is that most physicians want empirical evidence, which is lacking.The Pained Ink Slayerhttps://www.blogger.com/profile/09495729147432131238noreply@blogger.comtag:blogger.com,1999:blog-3069533709334209690.post-74906646672112720662014-06-05T12:13:22.082-07:002014-06-05T12:13:22.082-07:00Celeste and all: I read through most of this post ...Celeste and all: I read through most of this post and I find it astounding that I did not see hemochromatosis mentioned one time - maybe I missed it and if so, my apology. I invite you to visit my web page at www.ibs-hemochromatosis-fibromyalgia-cfids.com and take a look at my papers to see where I am coming from. I know a little about this mess in that I was diagnosed to have fibromyalgia some 60 years ago and latter to be diagnosed having hemochromatosis. Please don't try to tell me that the two conditions don't go together. About 40 % of the people diagnosed for hemochromatosis have been previously been diagnosed to have fibromyalgia. Before making a diagnosis of fibro, iron overload or hemochromatosis must be ruled out. I hope this helps and gets a few more folks diagnosed who have hemochromatosis.Anonymoushttps://www.blogger.com/profile/10532625542913283409noreply@blogger.com