Sunday, June 10, 2012

KaleidoPain NEWS: Ever Changing Colors of Chronicity, June 10th

by Celeste, RN, author, patient
June 10, 2012

 “When we empower ourselves with knowledge, we own it.
Hold on tight, it's going to be quite a ride.”


“The poor man is not he who is without a cent but he who is without a dream.”
~Harry Kemp Words of encouragement for times of change by Catherine DeVrye, 2004

“I cherish my friend because we stand together looking in the same direction.”
~ Celeste Cooper

*Tips for writing your own affirmations
*Tips on journaling


A Thief in the Night: Is pain robbing you of love?

*Celeste’s Blogspeak Links for May and April now available.


Migraine Study Participation Encouraged During Migraine Awareness Month

Action Lyme Org. The Diagnostic Standard that we ended up with as a result of this charade: OspA and B are left out...

House cuts two-thirds of Gulf War Illness research

Children’s Hospital of Colorado Ordered to Pay $95K in FM Job Discrimination Suit. Spate of Disability & Job Discrimination Wins for ME/CFS and Fibromyalgia Patients. ProHealth


Forever Young Nutrition. “How to Avoid Toxins in Food.”

Andrew Weil, MD. Food Intolerance Best Test! (The importance of nutrition Discussed in Chapter Four of Integrative Therapies for Fibroyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind Body Connection. (Healing Arts Press, cooper & Miller, 2010).

Vacations vs Staycations: Is Taking a Vacation More than It’s Worth? By Deirdre Rawlings, PhD, ND

FEATURING Q&A by Celeste at Sharecare

How can I help my doctor diagnose fibromyalgia?

How can I help my loved one deal with their fibromyalgia-related stress?

How do I know if my fatigue is caused by fibromyalgia?

What causes the pain associated with fibromyalgia?

*Follow all answers by Celeste at


Change is something that occurs when one has to accept chronic illness. We resist it but wouldn’t it be better if we embraced it? Here is a great little book, and easy read but profound in understanding change in our lives.

Who Moved My Cheese by Spencer Johnson, MD. GP Putnam: NY, 1998.

INSPIRING MOMENTS: Giving forward momentum a shove

+Virtual Photo Walks™ Virtual tours for those getting outside is difficult, but anyone with accessibility challenges, or physical or mental issues is welcome to join; sometimes it really helps to get out of the house, whether you're doing it virtually or the normal way. :)


IACFS/ME releases new guidelines for Chronic Fatigue Syndrome.

Mayo Clinic. Improving the Recognition and Diagnosis of Fibromyalgia


Renan-Ordine R, Alburquerque-Sendín F, de Souza DP, Cleland JA, Fernández-de-Las-Peñas C. Effectiveness of myofascial trigger point manual therapy combined with a self-stretching protocol for the management of plantar heel pain: a randomized controlled trial. J Orthop Sports Phys Ther. 2011 Feb;41(2):43-50. Epub 2011 Jan 31
[Yet another study showing MTP therapy shows better results when adjunctive to home stretching. Cc]

Ge HY, Nie H, Graven-Nielsen T, Danneskiold-Samsøe B, Arendt-Nielsen L. Descending pain modulation and its interaction with peripheral sensitization following sustained isometric muscle contraction in fibromyalgia. Eur J Pain. 2012 Feb;16(2):196-203. doi: 10.1016/j.ejpain.2011.06.008.
[This result should be no surprise in light of the stress contraction puts on a muscle when it has myofascial trigger points present, Cc]

Gonzalez-Perez LM, Infante-Cossio P, Granados-Nunez M et al. 2012. Treatment of temporomandibular myofascial pain with deep dry needling. Med Oral Patol Oral Cir Bucal. [May 1 Epub ahead of print].
[Another comorbid condition to FM with a myofascial component that is responding to MTP therapy. Cc]

*See all featured research for June at


Constant Complaining: Does It Serve Us Well? by Toni Bernhard, J.D.

SNEAK PEEK (Cooper & Miller, Healing Arts Press: Vermont, 2010 )

Recognizing Resistance ©

Historically the role of the doctor in the physician-patient relationship has been paternalistic, with the patient dependent solely on the physician’s authority. (Excerpt, Chapter Two).

*You can review “about the book” including the Table of Contents of Integrative Therapies…at About the Books


Depression is frequently related to chronic illness because of associated losses. with having disorder. We forget as patients that those around us have lost something too. They have lost the person we once were, and in some cases depending on the severity and number of coexisting conditions, the work load increases exponentially for the care giver.

A caregiver can become isolated too, affecting their relationship with the patient and with others. Acceptance is the first step to managing any illness but can be difficult for the patient and the caregiver.

Help your loved one by getting the support you both need. TRANSFORM YOUR CHRONIC LIFE, Caregiver Resources might be helpful for you and your caregiver.

Blogtalk Radio Georgia Huston with "Teen Pain Help Foundation" by Coach Marla

Related Sharecare answers :

Should fibromyalgia be treated differently in teens?

What skills can I learn to help my loved one deal with their fibromyalgia?


“This book is empowering.”

Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome and Myofascial Pain: The Mind-Body Connections recommended ready by Dr. Mark Guariglia


How will being prepared give me the courage to make the best of it?



The many others who share information, support our books, and promote the philosophies of this newsletter.

*Additional Help Links at

  All blogs, posts and answers are based on the work in Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain: The Mind-Body Connection by Celeste Cooper, RN, and Jeff Miller, PhD. 2010, Vermont: Healing Arts press and are not meant to replace medical advice.

  Author of Chapter Five, Living with and Coping Effectively Through Fibromyalgia: Detecting Barriers, Understanding the Clues, in Fibromyalgia Insider Secrets: 10 Top Experts, 2nd Ed. Ebook complied by Deirdre Rawlings, ND, PhD

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